Common ethical issues related to HIV/AIDS

Bogaert, D Knapp van; Ogunbanjo, GA

doi:10.1080/20786204.2011.10874162

Cited by 4 publications

(5 citation statements)

References 14 publications

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“…A total of 28 were approached, and six declined; five parents declined on behalf of their adolescent, and one adolescent personally declined. Purposeful sampling was used to select participants based on their age [ 10 – 19 ], educational level (primary school, secondary school, vocational education and training authority students, and university students), ability to express themselves, knowledge of their positive HIV status, and enrollment in ART. During the interviews, which were conducted by research assistants and the PI, parents or those designated as primary care givers who were not biological parents waited outside the interview room.…”

Section: Methodsmentioning

confidence: 99%

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Qualitative inquiry into adolescents’ experience of ethical challenges during enrollment and adherence to antiretroviral therapy (ART) in Temeke Regional Referral Hospital, Tanzania

et al. 2022

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Background Adolescents living with human immunodeficiency virus (HIV) experience challenges, including lack of involvement in their care as well nondisclosure of HIV status, which leads to poor adherence to antiretroviral therapy (ART). Parents have authority over their children, but during adolescence there is an increasing desire for independence. The aim of the study was to explore adolescents’ experience of challenges identified by adolescents ages 10–19 years attending HIV care and treatment at Temeke Regional Referral Hospital in Tanzania. Methods An exploratory descriptive qualitative design was employed in the HIV Care and Treatment Centre (CTC) in the Out-Patient Department at the Temeke Regional Referral Hospital in Tanzania with adolescents living with HIV who were 10–19 years of age. A total of 22 adolescents participated in semi-structured face-to-face interviews after parental consent and adolescent assent were obtained. Participants were interviewed about their participation in decisions to be tested for HIV and enrolled in the CTC, concerns surrounding disclosure of their HIV status to the adolescent or to others, stigma and discrimination, and the effect of these challenges on their adherence to medication. All interviews were audio-taped, transcribed verbatim in Swahili, and back-translated to English. Data analysis included both inductive and deductive thematic analysis. Results Qualitative themes identified included lack of participation in decisions about HIV testing, challenges to enrollment in care and treatment; issues around disclosure of HIV status, such as delays in disclosure to the adolescent and disclosure to other persons and benefits and harms of such disclosures; and factors supporting and interfering with adherence to ART, such as parental support, organizational (clinic) support and problems, and self-stigmatization and shame. Conclusion Lack of adolescents’ involvement in their care decision making and delayed disclosure of HIV status to the adolescent were identified concerns, leading to poor adherence to ART among adolescents. Disclosure to others, especially teachers, helped adolescents at school to take their medication properly. Disclosure to others led to stigma and discrimination for some adolescents. More research is needed to better understand the role of disclosure and its benefits and challenges for HIV-positive adolescents in Tanzania.

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Section: Methodsmentioning

confidence: 99%

“…Adolescents’ growing desire for independence may lead to conflict between them and their parents or designated care givers [ 9 ]. This is the case, for example, when an adolescent has a diagnosis of HIV and/or acquired immunodeficiency syndrome (AIDS) and ethical issues often arise in the African setting [ 10 ].…”

Section: Introductionmentioning

confidence: 99%

Qualitative inquiry into adolescents’ experience of ethical challenges during enrollment and adherence to antiretroviral therapy (ART) in Temeke Regional Referral Hospital, Tanzania

et al. 2022

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“…Parents who consented to participate were given a questionnaire for the quantitative aspect of the study. The PI purposely selected participants based on their age (10)(11)(12)(13)(14)(15)(16)(17)(18)(19), education level (primary school, secondary school, Vocational Education and Training Authority students and university students), ability to express themselves, knowledge of their positive HIV status, and enrollment in ART. Selected adolescents participated in in-depth interviews.…”

Section: Data Collectionmentioning

confidence: 99%

“…Adolescence is also a time when individuals enroll in HIV care and treatment programs and learn about the importance of adherence to care. And adolescence is a time when HIV stigma and discrimination may particularly affect the developing adolescent and their families (14).…”

Section: Introductionmentioning

confidence: 99%

Qualitative Inquiry of Adolescents’ Experience of Ethical Issues During Enrollment and Adherence to Antiretroviral Therapy (ART) in Temeke Regional Hospital, Tanzania

Joseph

Mahiti

Frumence

et al. 2021

Preprint

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Background Adolescents living with HIV experience ethical challenges including lack of involvement in their care as well nondisclosure of HIV status which leads to poor adherence to antiretroviral therapy (ART). Parents have the authority over their children but during adolescence there is increase sense of independence. Whose decision should be followed in case of disagreement. Aim of the study is to explore experience of ethical issues identified by adolescents age 10 to 19 years attending HIV care and treatment in Temeke regional referral hospital. Methods Exploratory descriptive qualitative design was employed at Temeke regional referral hospital in Care and Treatment Centre in the Out-Patient Department with adolescents living with HIV 10 to19 years of age. A total of 22 adolescents participated in in-depth face-to-face interviews after obtaining parental consent and adolescent assent. All interviews were audio-taped, transcribed verbatim in Swahili, and back translated to English. Data analysis included both inductive and deductive thematic analysis and rigor was maintained using standards of qualitative research. Results Qualitative themes identified included: lack of participation in decisions about HIV care and treatment; issues around disclosure of HIV status, such as delays in disclosure to the adolescent and disclosure to other persons and benefits and harms of such disclosures; and factors supporting and interfering with adherence to ART, such as parental support, organizational (clinic) support and problems, and self-stigmatization and shame. Conclusion Lack of adolescents’ involvement in their care decision making and delayed disclosure are identified ethical concerns leading to poor adolescents’ adherence to ART. Early disclosure to adolescents is beneficial the same as disclosure to others especially teachers helped adolescents at school to take their medication properly. Disclosure to others apart from adolescents lead to stigma and discrimination for some adolescents.

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“…15 Data indicate that there is a need to reconsider the ethical conduct towards the people living with HIV during healthcare provision in view of ensuring breaking bad news, confidentiality, partner notification and discrimination. [16][17][18] Some people might have not accessed health institutions due to various reasons, possibly in apprehension of being stigmatized or discriminated against or because of being excluded from healthcare provision. This fact exacerbates the great risk for public health, as well as the infringement of human rights and right to health.…”

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confidence: 99%

Confidentiality, partner notification and ethical issues: A qualitative research on people living with HIV in Istanbul

Senyurek

Ülman

2019

IGHPE

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Common ethical issues related to HIV/AIDS

Cited by 4 publications

References 14 publications

Qualitative inquiry into adolescents’ experience of ethical challenges during enrollment and adherence to antiretroviral therapy (ART) in Temeke Regional Referral Hospital, Tanzania

Qualitative inquiry into adolescents’ experience of ethical challenges during enrollment and adherence to antiretroviral therapy (ART) in Temeke Regional Referral Hospital, Tanzania

Qualitative Inquiry of Adolescents’ Experience of Ethical Issues During Enrollment and Adherence to Antiretroviral Therapy (ART) in Temeke Regional Hospital, Tanzania

Confidentiality, partner notification and ethical issues: A qualitative research on people living with HIV in Istanbul

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