Communicating the External Beam Radiation Experience (CEBRE): Perceived Benefits of a Graphic Narrative Patient Education Tool

Arya, Ritu; Ichikawa, Tomoko; Callender, Brian; Schultz, Olivia; DePablo, Marina; Novak, Kira; Li, Shanyanyan; Shenoy, Apoorva; Everman, Andrea; Braunstein, Sarah L.; Dec, Isabel; Lala, Sayeri; Feng, Yachu; Biltz, Laura; McCall, Anne R.; Golden, Daniel W.

doi:10.1016/j.prro.2019.09.001

Cited by 13 publications

(5 citation statements)

References 35 publications

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“…However, written educational material has been shown to enhance patient understanding of medical conditions and possible treatments (30). Written materials can be used as a framework to guide shared decision-making conversations to ensure that all aspects of a particular treatment decision are discussed (31). Furthermore, written materials provide patients and their families a reliable reference after leaving a health care visit.…”

Section: Discussionmentioning

confidence: 99%

Readability of Patient Education Materials From High-Impact Medical Journals: A 20-Year Analysis

Rooney

Santiago

Perni³

et al. 2021

Journal of Patient Experience

120

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Comprehensive patient education is necessary for shared decision-making. While patient–provider conversations primarily drive patient education, patients also use published materials to enhance their understanding. In this investigation, we evaluated the readability of 2585 patient education materials published in high-impact medical journals from 1998 to 2018 and compared our findings to readability recommendations from national groups. For all materials, mean readability grade levels ranged from 11.2 to 13.8 by various metrics. Fifty-four (2.1%) materials met the American Medical Association recommendation of sixth grade reading level, and 215 (8.2%) met the National Institutes of Health recommendation of eighth grade level. When stratified by journal and material type, general medical education materials from Annals of Internal Medicine were the most readable ( P < .001), with 79.8% meeting the eighth grade level. Readability did not differ significantly over time. Efforts to standardize publication practice with the incorporation of readability evaluation during the review process may improve patients’ understanding of their disease processes and treatment options.

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Section: Discussionmentioning

confidence: 99%

Readability of Patient Education Materials From High-Impact Medical Journals: A 20-Year Analysis

Rooney

Santiago

Perni³

et al. 2021

Journal of Patient Experience

120

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“…Educational comics have emerged as an innovative way to promote patient education and engagement in a variety of clinical settings including pediatric, gynecology, radiation oncology, neurology, and endocrine practices [ 27 - 34 ]. Despite these findings, to our knowledge, no studies have looked at using educational comics to promote patient-centered EHR use in academic primary care practices.…”

Section: Introductionmentioning

confidence: 99%

Impact of an Educational Comic to Enhance Patient-Physician–Electronic Health Record Engagement: Prospective Observational Study

et al. 2021

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Background Electronic health record (EHR) use can impede or augment patient-physician communication. However, little research explores the use of an educational comic to improve patient-physician-EHR interactions. Objective To evaluate the impact of an educational comic on patient EHR self-advocacy behaviors to promote patient engagement with the EHR during clinic visits. Methods We conducted a prospective observational study with adult patients and parents of pediatric patients at the University of Chicago General Internal Medicine (GIM) and Pediatric Primary Care (PPC) clinics. We developed an educational comic highlighting EHR self-advocacy behaviors and distributed it to study participants during check-in for their primary care visits between May 2017 and May 2018. Participants completed a survey immediately after their visit, which included a question on whether they would be interested in a follow-up telephone interview. Of those who expressed interest, 50 participants each from the adult and pediatric parent cohorts were selected at random for follow-up telephone interviews 8 months (range 3-12 months) post visit. Results Overall, 71.0% (115/162) of adult patients and 71.6% (224/313) of pediatric parents agreed the comic encouraged EHR involvement. African American and Hispanic participants were more likely to ask to see the screen and become involved in EHR use due to the comic (adult P=.01, P=.01; parent P=.02, P=.006, respectively). Lower educational attainment was associated with an increase in parents asking to see the screen and to be involved (ρ=−0.18, P=.003; ρ=−0.19, P<.001, respectively) and in adults calling for physician attention (ρ=−0.17, P=.04), which was confirmed in multivariate analyses. Female GIM patients were more likely than males to ask to be involved (median 4 vs 3, P=.003). During follow-up phone interviews, 90% (45/50) of adult patients and all pediatric parents (50/50) remembered the comic. Almost half of all participants (GIM 23/50, 46%; PPC 21/50, 42%) recalled at least one best-practice behavior. At subsequent visits, adult patients reported increases in asking to see the screen (median 3 vs 4, P=.006), and pediatric parents reported increases in asking to see the screen and calling for physician attention (median 3 vs 4, Ps<.001 for both). Pediatric parents also felt that the comic had encouraged them to speak up and get more involved with physician computer use since the index visit (median 4 vs 4, P=.02) and that it made them feel more empowered to get involved with computer use at future visits (median 3 vs 4, P<.001). Conclusions Our study found that an educational comic may improve patient advocacy for enhanced patient-physician-EHR engagement, with higher impacts on African American and Hispanic patients and patients with low educational attainment.

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“…In a perceived benefits study, patients who had already completed their radiation therapy treatment course and radiation oncologists both rated hypothetical use of the discussion guide during initial consultation as likely to reduce patient anxiety and improve understanding of the radiation therapy treatment process. 25 Nevertheless, patient satisfaction with the informed consent process is insufficient to ensure true informed consent: the ultimate goal is achieving a deeper understanding of the treatment alternatives being discussed.…”

Section: Informed Consent Document and Other Written Materialsmentioning

confidence: 99%

Informed Consent in Radiation Oncology

Gutiontov

Golden

McCloskey

et al. 2021

International Journal of Radiation Oncology*Biology*Physics

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Communicating the External Beam Radiation Experience (CEBRE): Perceived Benefits of a Graphic Narrative Patient Education Tool

Cited by 13 publications

References 35 publications

Readability of Patient Education Materials From High-Impact Medical Journals: A 20-Year Analysis

Readability of Patient Education Materials From High-Impact Medical Journals: A 20-Year Analysis

Impact of an Educational Comic to Enhance Patient-Physician–Electronic Health Record Engagement: Prospective Observational Study

Informed Consent in Radiation Oncology

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