Communicating with patients and their families about palliative and end-of-life care: comfort and educational needs of nurses

Moir, Cheryl; Roberts, Renee; Martz, Kim; Perry, Judith; Tivis, Laura J.

doi:10.12968/ijpn.2015.21.3.109

Cited by 72 publications

(69 citation statements)

References 12 publications

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“…Professional intra-and inter-relationships and teamwork in palliative care were often based on shared trust and nurses working in home-care perceived the value of teamwork more than nurses working in hospices (Maurits, de Veer, van der Hoek, & Franck, 2015;Moir, Roberts, Martz, Perry, & Tivis, 2015).…”

Section: Discussionmentioning

confidence: 99%

Nursing’s professional dignity in palliative care: Exploration of an Italian context

Stıevano¹,

Sabatino²,

Affonso³

et al. 2019

Journal of Clinical Nursing

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Aims and objectives To determine the relevance of nursing's professional dignity in palliative care. Background Dignity is a valued concept in the ethical discourse of health disciplines. Nursing's professional dignity, a concept related to professional identity, is not clearly defined nor have its characteristics been delineated for its clinical relevance in palliative care. Design A qualitative methodological approach. Methods Focus groups elicited dialogues of nursing's professional dignity among 69 nurses working in hospices and home‐care in Italy. Data were content‐analysed via an inductive process. The COREQ checklist for qualitative studies was used for reporting this research. Results A central theme related to (a) “Intrinsic dignity of persons” was embedded in the essence of palliative care. Several corollary themes underscored this central theme: (b) Professional (intra‐ and inter) relationships and teamwork; (c) Nursing professionalism; (d) Ethical dilemmas; and (e) Relationships with patients and their significant persons. Conclusions Nurses valued the essence of respect as persons and the essence of respect for their work as coherent with intrinsic dignity and work dignity in palliative care. Nurses perceived their psycho‐social relationships with patients and their families as rewarding incentives amidst disputatious interactions with peers and/or other healthcare professionals. They experienced ethical dilemmas, which they perceived as inherent in palliative care. Relevance to clinical practice Study findings corroborate the literature regarding the concept of nursing's professional dignity which is intrinsic in respect of the human person. The intrinsic dignity in palliative care manifests as nurses are working in juxtaposition of a demanding yet rewarding care ambience.

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Section: Discussionmentioning

confidence: 99%

Nursing’s professional dignity in palliative care: Exploration of an Italian context

Stıevano¹,

Sabatino²,

Affonso³

et al. 2019

Journal of Clinical Nursing

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“…Recent work has shown that years of nursing experience is positively associated with comfort in communicating about end of life, one of the transition points in a goals-of-care discussion (Moir, Roberts, Martz, Perry, & Tivis, 2015). …”

Section: Discussionmentioning

confidence: 99%

Nurse Communication About Goals of Care

Wittenberg¹,

Ferrell²,

Goldsmith³

et al. 2016

JADPRO

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Conversations about goals of care with the patient and family are a critical component of advanced practice in oncology. However, there are often inadequate team structures, training, or resources available to assist advanced practitioners in initiating these conversations. We conducted a study to assess nurses’ perceived role and communication tasks in such conversations about goals of care. In a cross-sectional survey of 109 nurses attending a comprehensive 2-day end-of-life nursing education course, nurses were asked to describe how they would participate in a "goals of care" meeting in three different scenarios. They were also asked what changes they desired in their clinical settings. Nurses overwhelmingly described that their primary task and communication role was to assess patient/family understanding. Nurses referenced their team members and team support with the least frequency across scenarios. Team roles, structure, and process were reported as areas in greatest need of change in patient/family goals of care meetings. These findings demonstrate that lack of preparation to function as a team is a barrier for nurses in communicating about goals of care, and there is a demand to move such conversations upstream in oncology care.

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“…We highlight the need to train ICU nurses on coping with the end of life, developing abilities to support patients and family members who are living through terminality (20) . The success of the work depends on the training of healthcare providers (21) . Besides that, we also highlight the importance of establishing and following directives and consensual assistance planning for end-of-life care, involving team members, patients requests (if they have autonomy and conditions for this), and family members for the assistance to be less aggressive.…”

Section: Discussionmentioning

confidence: 99%

“…It is observed that the longer the time of employment of the nurse, the better he/she is prepared for dealing with matters related to end-of-life care (21,23) . Likewise, the more involved with the patient and family, the more significant the death becomes to the professional, and death predictable situations were less traumatic (24) .…”

Section: At the Beginning The Assistance Is For The Patient To Livementioning

confidence: 99%

Da frustração ao enfrentamento do cuidado para a morte por técnicos de enfermagem

2015

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Objective: to understand nurse technicians' experience with caring for the death of terminal patients in ICUs and to confi gure a theoretical model. Method: qualitative study with theoretical saturation when analyzing the 10 th non-directive interview, having as reference Grounded Theory, Symbolic Interactionism and Bioethics. Results: the core category -from frustration to coping with dignifi ed nursing care for fi nitude: the acceptance of death as a therapeutic and intervenient component -emerged from the comparison of the sub-processes: when the nurse does not feel prepared for caring for death, accepting death as a therapeutic phenomenon and developing coping strategies. Conclusion: according to Symbolic Interactionism, a novice professional's frustration in caring for an individual for death is related to his/her interaction and interpretation of the situation as he/she feels prepared only to care for individuals for life. Key words: Death; Nursing Care; Intensive Care Units. RESUMO Objetivo: compreender a experiência de técnicos de enfermagem com o cuidado para a morte de pacientes terminais em UTI e confi gurar um modelo teórico. Método: estudo qualitativo, com saturação teórica mediante a análise da 10 a entrevista não diretiva, tendo como referenciais a Teoria Fundamentada nos Dados, o Interacionismo Simbólico e a Bioética. Resultados: a categoria central -da frustração ao enfrentamento do cuidado digno de enfermagem para a fi nitude: a aceitação da morte como componente terapêutico e interveniente -emergiu da comparação dos subprocessos: não se sentindo preparado para o cuidado para a morte, aceitando a morte como um fenômeno terapêutico, desenvolvendo estratégias de enfrentamento. Conclusão: segundo o Interacionismo Simbólico, a frustração do profi ssional iniciante em cuidar da pessoa para a morte está relacionada à sua interação e interpretação da situação, por sentir-se preparado somente para assistir a pessoa para a vida. Descritores: Morte; Cuidados de Enfermagem; Unidades de Terapia Intensiva. RESUMEN Objetivo: comprender la experiencia del personal de enfermería con el cuidado a la muerte de pacientes terminales en UTI y confi gurar un modelo teórico. Método: pesquisa cualitativa, con saturación teórica a través del análisis de la 10ª entrevista. Los referenciales son la Teoría Fundamentada en los Datos, el Interaccionismo Simbólico y la Bioética. Resultados: la categoría central -desde la frustración al afrontamiento del cuidado digno de enfermería para la fi nitud: la aceptación de la muerte como componente terapéutico e interviniente -emergió de la comparación de los sub procesos no sintiéndose preparado para el cuidado a la muerte, aceptando la muerte como un fenómeno terapéutico, desarrollando estrategias de afrontamiento. Conclusión: según el Interaccionismo Simbólico, la frustración del profesional iniciante en los cuidados de la persona a la muerte está relacionada a su interacción e interpretación de la situación. Palabras clave:

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Communicating with patients and their families about palliative and end-of-life care: comfort and educational needs of nurses

Cited by 72 publications

References 12 publications

Nursing’s professional dignity in palliative care: Exploration of an Italian context

Nursing’s professional dignity in palliative care: Exploration of an Italian context

Nurse Communication About Goals of Care

Da frustração ao enfrentamento do cuidado para a morte por técnicos de enfermagem

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