Communicating with patients with idiopathic pulmonary fibrosis: can we do it better?

Wijsenbeek, Marlies; Bonella, Francesco; Orsatti, Leticia; Russell, Anne-Marie; Valenzuela, Claudia; Wuyts, Wim

doi:10.1183/23120541.00422-2021

Cited by 4 publications

(2 citation statements)

References 47 publications

(74 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Poor communication can leave patients feeling disregarded, impacting care quality, treatment adherence, and shared decision-making. However, achieving patient-centered communication is challenging due to time constraints, and inadequate provider training and lack of prioritization in practice [49].…”

Section: Communicationmentioning

confidence: 99%

Palliative care in advanced pulmonary fibrosis

Kalluri

2024

Current Opinion in Pulmonary Medicine

View full text Add to dashboard Cite

Purpose of review Updated clinical practice guidelines for pulmonary fibrosis recommend early integrated palliative care using a primary palliative approach. Clinicians need to be aware of the various palliative interventions in order to implement guidelines’ recommendations. This review provides an update on evidence-based palliative therapies. Recent findings Literature review indicates early integration of palliative care in pulmonary fibrosis is feasible and meets patient needs. Key components of a primary palliative approach include comprehensive symptoms and needs screening, systematic symptom management using nonpharmacologic interventions, supplemental oxygen and opioids for dyspnea and cough. Patient-centered communication is essential for successful integration of palliative care. Early, iterative advance care planning in clinic to understand patient goals, values and preferences for current and future care, improves patient care and satisfaction. Prioritizing caregiver inclusion in clinics can address their needs. Collaborating with a multidisciplinary allied team facilitates integration of palliative care and supports patients throughout the disease course. Different models of palliative care delivery exist and can be adapted for local use. The use of artificial intelligence algorithms and tools may improve care and continuity. Summary Clinicians must develop competency in palliative care. Organizational and policy support is essential to enable seamless integration of palliative care throughout the care continuum.

show abstract

Section: Communicationmentioning

confidence: 99%

Palliative care in advanced pulmonary fibrosis

Kalluri

2024

Current Opinion in Pulmonary Medicine

View full text Add to dashboard Cite

show abstract

“…Till high-quality trials unravel the exact role of particular therapeutic modalities, timely identification and management of suspicious lesions is crucial [6 ▪▪ ,122]. Importantly, above all algorithms are patient preferences [123]. Empathetic communication taking into consideration patients’ needs can lessen the burden that IPF causes to patients’ and relatives’ lives.…”

Section: Future Perspectives and Concluding Remarksmentioning

confidence: 99%

Management of patients with idiopathic pulmonary fibrosis and lung cancer: challenges in clinical practice

Karampitsakos

Sampsonas

Herazo-Maya

et al. 2023

Current Opinion in Pulmonary Medicine

View full text Add to dashboard Cite

Purpose of review Idiopathic pulmonary fibrosis (IPF) is the nonmalignant, chronic lung disease with the worst prognosis. Prevalent comorbidities including lung cancer exert a negative impact on patients’ survival. However, there is considerable lack of knowledge on the diagnostic and therapeutic management of patients diagnosed with both clinical entities. This review article presents the main challenges in the management of patients with IPF and lung cancer and highlights future perspectives. Recent findings Recent registries for patients with IPF demonstrated that approximately 10% of patients developed lung cancer. Importantly, incidence of lung cancer was increasing remarkably over time in patients with IPF. Patients with IPF and otherwise technically operable lung cancer who underwent surgical resection had improved survival compared with those who did not undergo surgery. However, specific precautions perioperatively are crucial. Finally, the first randomized-controlled, phase 3 trial (J-SONIC trial) showed no significant difference in exacerbation-free survival for chemotherapy-naive patients with IPF and advanced nonsmall cell lung cancer that were allocated to receive carboplatin and nab-paclitaxel every 3 weeks with or without nintedanib. Summary Lung cancer is prevalent in IPF. Management of patients with IPF and lung cancer is challenging. A consensus statement aiming to attenuate confusion is greatly anticipated.

show abstract

Patient-centered care in pulmonary fibrosis: access, anticipate, and act

Hofman,

Magrì,

Moor

et al. 2024

Respir Res

View full text Add to dashboard Cite

Comprehensive care integrates individual patient needs and is highly valued for patients with pulmonary fibrosis (PF). The importance of a patient-centered care approach is rooted in the unpredictable progressiveness of the disease course in PF. The respiratory impairment associated with PF has a major impact on the quality of life for both patients and their caregivers. We believe that prioritizing patient preferences could improve the shared decision making process and may ultimately lead to better health outcomes. Despite the growing emphasis for this approach, it remains challenging to adopt it in clinical practice. In this review, we propose the comprehensive Triple A Care Model, consisting of the domains Access, Anticipate, and Act, which emphasizes core elements of patient-centered care for patients with PF. We will provide an overview of the unmet needs in care for patients with PF and elaborate on the current methods for delivering patient-centered care. The latest insights into symptom management and supportive measures and several approaches to improving access to care are discussed, in line with the most recent guidelines.

show abstract

Communicating with patients with idiopathic pulmonary fibrosis: can we do it better?

Cited by 4 publications

References 47 publications

Palliative care in advanced pulmonary fibrosis

Palliative care in advanced pulmonary fibrosis

Management of patients with idiopathic pulmonary fibrosis and lung cancer: challenges in clinical practice

Patient-centered care in pulmonary fibrosis: access, anticipate, and act

Contact Info

Product

Resources

About