2020
DOI: 10.1097/njh.0000000000000654
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Communication and Cultural Sensitivity for Families and Children With Life-Limiting Diseases

Abstract: The health care decisions of families of children who have life-limiting genetic diseases are impacted by multiple factors including religious and ethical values, education and knowledge, emotional trauma, availability of support, and accessibility of care. Palliative care nurses must practice the highest standards by delivering nonbiased, nonjudgmental support to patients and families; however, nurses may experience moral distress if their personal values conflict with a family's decisions and needs. This cas… Show more

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