Communication between children and health professionals in a child hospital setting: a Child Transitional Communication Model

Lambert, Veronica; Glacken, Michèle; McCarron, Mary

doi:10.1111/j.1365-2648.2010.05511.x

Cited by 46 publications

(49 citation statements)

References 51 publications

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“…In the contemporary study, children appreciated handing over responsibility to their parents at times and sharing decision-making with them. This finding is in accordance with previous studies by Lambert et al [24,25], who found that children want to waver between being a “passive bystander” and an “active participant” in the communication process, depending on the situation. Children often want to be involved and to participate in and to contribute to shared decision-making.…”

Section: Discussionsupporting

confidence: 93%

“…During the last few decades, studies have been performed with instead of on children. These studies have provided new and important knowledge about, for instance, children’s experiences with regard to the hospital environment [21-23], communication [24,25], consultation [26], short-term illnesses [27,28], chronic illnesses in general [29], and diabetes [30,31]. …”

Section: Introductionmentioning

confidence: 99%

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Characteristics of being hospitalized as a child with a new diagnosis of type 1 diabetes: a phenomenological study of children’s past and present experiences

2015

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BackgroundOur understanding of children and childhood has changed over the last few decades, which may have an impact on children’s conditions in hospitals. Children’s rights have been strengthened by the “Convention on the Rights of the Child” and ward regulations. The aim of this Norwegian study was to identify potential characteristics of children's lived experience of being hospitalized diagnosed with type 1 diabetes today and from a retrospective view in the period 1950–1980, despite the many obvious external changes.MethodsThis study presents a further analysis of data from two previous phenomenological studies. The first had a retrospective perspective, and the second assumed a contemporary perspective. Twelve adults and nine children who had been hospitalized for newly diagnosed type 1 diabetes at the age of approximately 6–12 years old participated. The adults relayed narratives from their childhood memories through interviews, and the study with the children was designed as a combination of observations, in-depth interviews, and photographs. A hermeneutic phenomenological method was used in the analysis.ResultsThe analysis revealed a meaning structure that described a tension between vulnerability and agency in the experiences of being hospitalized as a child, both past and present. The experiences may further be characterized as alienation versus recognition and as passivity versus activity, relating to both the hospital environment and the illness.ConclusionsTo a greater extent than ever, children today tend to experience themselves as active and competent individuals who can manage their own illness. Previously, children seemed to experience themselves as more vulnerable and less competent in relationship to their environment and illness. Presently, as before, children appear to desire involvement in their illness; however, at the same time, they prefer to share responsibility with or hand over responsibility to adults. However, living with diabetes was and remains demanding, and it affects children’s lifeworld. Balancing the children’s vulnerability and agency seems to be the best way to care for children in hospitals. In this article, we thus argue for a lifeworld-led approach when caring for hospitalized children, paying attention to both their vulnerability and agency.

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Section: Discussionsupporting

confidence: 93%

Section: Introductionmentioning

confidence: 99%

Characteristics of being hospitalized as a child with a new diagnosis of type 1 diabetes: a phenomenological study of children’s past and present experiences

2015

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“…Therefore, it may be a relevant tailored intervention to help improve communication during medical visits, according to specific demands of parents and children, which is in agreement with literature (Aburn & Gott, 2011;Coyne & Gallagher, 2011;Coyne & Harder, 2011;Howells & Lopez, 2008;Lambert et al, 2011;Ringnér et al, 2010;Zwaanswijk et al, 2011).…”

Section: Discussionsupporting

confidence: 75%

“…Another relevant aspect highlighted by the literature are the individual preferences for the kind and amount of information, which is related to the adaptation to treatment and satisfaction with health services, endorsing the need for tailored interventions that may contribute to the development of better interactions between pediatricians, caregivers, and children (Aburn & Gott, 2011;Coyne & Gallagher, 2011;Coyne & Harder, 2011;Howells & Lopez, 2008;Lambert, Glacken, & McCarron, 2011;Ringnér, Jansson, & Graneheim, 2010;Zwaanswijk et al, 2011). Therefore, psychosocial interventions are important in order to understand the triadic interaction and provide better communication in pediatric settings.…”

mentioning

confidence: 99%

Effects of pre-consultation lists on the communicative behavior of children with cancer and their caregivers

Kohlsdorf

Costa

Marques

2016

Estud. psicol. (Campinas)

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This cross-sectional study present effects of pre-consultation lists on caregivers' and children's communicative behavior. Thirty-two dyads caregiver-child took part in this research, divided in three groups concerning the study design: Baseline 1, Intervention phase, and Baseline 2. Children and caregivers were individually interviewed before consultations on pediatric cancer treatment, in order to list doubts, expectations, and estimated issues to the medical visit. These themes were written down on a sheet of paper, attached to the child´s medical record cover, and would then be used as a memo in the following consultation. Results show that pre-consultation lists produced no effects on children's behavior, however the procedure was associated to specific doubts discussed by caregivers regarding dietary recommendations, coping with side effects, child development, biological aspects of cancer, and school activities. This study presents a low cost procedure that may contribute to tailor communication in pediatric settings.

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“…Os estudos apresentam a focalização de demandas individuais como elemento que facilita adaptação ao tratamento e satisfação dos usuários (Coyne & Gallagher, 2011;Lambert, Glacken, & McCarron, 2011;Nestel, Taylor, & Spender, 2004;Ranzani, 2009;Ringnér et al, 2010;Zwaanswijk et al, 2011). Especifi camente no caso de doenças crônicas pediá-tricas, momentos distintos do tratamento podem requerer informações específi cas, corroborando a relevância da comunicação sob medida (Kästel et al, 2011).…”

Section: Inclusão De Temas Psicossociais Na Interação E Preferências unclassified

Comunicação triádica em pediatria: revisão de literatura

Kohlsdorfi

Costa

2016

Temas Psicol.

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ResumoA comunicação triádica em pediatria tem sido foco de pesquisa nos últimos 20 anos, considerando a relevância de compreender este processo para melhorar a assistência em saúde a crianças e adolescentes. Esta revisão sistemática de literatura teve como objetivo analisar 118 trabalhos sobre este tema, publicados entre 2000 e 2012. Os resultados mostram distribuição regular dos estudos ao longo do período, com prevalência de pesquisas em caráter descritivo e com metodologia quantitativa. A literatura enfatiza que a comunicação promove melhores níveis de adesão aos cuidados, melhoria de sintomas e respostas clínicas, comportamentos colaborativos e adaptação ao tratamento, contudo a focalização de habilidades comunicativas triádicas durante a graduação profi ssional é insufi ciente. Destaca-se que a criança é excluída da interação e as demandas individuais por informação devem ser prioridade. São necessários mais estudos sobre intervenções psicossociais e em caráter longitudinal, que possam contribuir para a compreensão do processo de comunicação em pediatria.Palavras-chave: Revisão de literatura, comunicação pediátrica, relação terapêutica. Triadic communication in Pediatrics:Literature review AbstractTriadic communication in pediatrics has been focused in the last 20 years, considering the relevance of understanding this process in order to improve health assistance to children and adolescents. The main purpose of this systematic literature review was to analyze 118 papers related to this theme, published between 2000 and 2012. Results show a regular distribution of studies along this period, with prevalence of descriptive researches that included quantitative methodology. Literature emphasizes that communication promotes better adherence to healthcare, improvement in symptoms and clinical responses, collaborative behaviors and adaptation to treatment, however the focus on triadic communicative skills during graduation is not suffi cient. The child is excluded from the interaction and tailored demands for information must be a priority. More studies are needed, concerning psychosocial interventions in longitudinal design, which may contribute to understand communicative processes in pediatric settings.

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Communication between children and health professionals in a child hospital setting: a Child Transitional Communication Model

Cited by 46 publications

References 51 publications

Characteristics of being hospitalized as a child with a new diagnosis of type 1 diabetes: a phenomenological study of children’s past and present experiences

Characteristics of being hospitalized as a child with a new diagnosis of type 1 diabetes: a phenomenological study of children’s past and present experiences

Effects of pre-consultation lists on the communicative behavior of children with cancer and their caregivers

Comunicação triádica em pediatria: revisão de literatura

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