Communication of bad news in the context of neonatal palliative care: experience of intensivist nurses

Camilo, Beatriz Helena Naddaf; Serafim, Taynnara Caroline; Salim, Natália Rejane; Andreato, Álida Maria de Oliveira; Roveri, Júlia Rudzinski; Misko, Maira Deguer

doi:10.1590/1983-1447.2022.20210040

Cited by 14 publications

(27 citation statements)

References 15 publications

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“…This allows the sharing of information about environment, routines, tools and procedures, as well as the appreciation of joint decisions. 3 , 25 , 28 , 29 …”

Section: Discussionmentioning

confidence: 99%

“…Technological advances and the development of health sciences have allowed an increase in survival rates of extreme preterm newborns (NB) and/or with severe congenital malformations. 1 - 3 However, this has led to an increasing number of children with severe sequelae and physical and intellectual disabilities, increasing and prolonging the suffering of these patients, their families and the caregiver team. 2 , 3 …”

Section: Introductionmentioning

confidence: 99%

“… 1 - 3 However, this has led to an increasing number of children with severe sequelae and physical and intellectual disabilities, increasing and prolonging the suffering of these patients, their families and the caregiver team. 2 , 3 …”

Section: Introductionmentioning

confidence: 99%

“…6 And for the effective development of this mode of care, care plans should be carried out, with the involvement of the family and multidisciplinary team, to ensure that they continue without interruption or bias, always seeking to improve the quality of life of the sick and their families. 1 , 3 , 5 , 7 Pregnant women with serious diseases and risks, both for them and for the baby, tend to have to make emotionally challenging decisions about a possible termination of pregnancy, and PC aims to support these families. 8 …”

Section: Introductionmentioning

confidence: 99%

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Grasping the meaning of perinatal palliative care for the multiprofessional team

Melo,

Zani,

Araujo

et al. 2024

Rev. paul. pediatr.

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Objective: To grasp the meaning of perinatal palliative care for the multidisciplinary team. Methods: This is a qualitative study guided by content analysis. The study included 56 health professionals working in maternal and child units of a public university hospital. A semi-structured interview was conducted, which was recorded and subsequently fully transcribed. The collection took place from June 2018 to May 2019. Data were entered and exported to Atlas ti: The Qualitative Date Analysis & Research Software, version 23.1.1.0. Results: Four thematic categories emerged from the data analysis: palliative care and eligible public in the view of professionals; communication between family and team in decision-making; assistance in palliative care; humanized care. Conclusions: The professionals think of palliative care in Perinatology in a similar way and perceive the difficulties of communication with the family and decision-making. They agree that it is necessary to provide greater support to the family, and to provide comfort measures, either for the non-viable fetus or for the baby eligible for palliative care.

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“…This allows the sharing of information about environment, routines, tools and procedures, as well as the appreciation of joint decisions. 3 , 25 , 28 , 29 …”

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Grasping the meaning of perinatal palliative care for the multiprofessional team

Melo,

Zani,

Araujo

et al. 2024

Rev. paul. pediatr.

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“…The quality of psycho-social assistance provided depends on the way in which assistance is provided and created according to the individual and developmental needs of each child or adolescent separately [2,35], on the personality traits of the support professional, and on teamwork cooperation and atmosphere that exists within the team dealing with palliative care [36,37].…”

Section: Psycho-social and Spiritual Aspects In Palliative Carementioning

confidence: 99%

Palliative care - illness, dying, and death as biological-medical and socio-cultural phenomena

Prodović¹,

Prodović-Milojković

Krstovic

et al. 2023

Srp Arh Celok Lek

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Introduction. In modern global times, the answer to the question of how to live well is palliative care. It is a type of care that is dedicated to creating circumstances in which the process of dying, and death itself, becomes a dignified and acceptable moment. The palliative approach is based on empathy, understanding, preserving the dignity of the patient, open two-way communication, but also caring for the patient's family. Objective. This article comprises three aims. First aim refers to introducing our professional milieu to the basic concepts and philosophy of palliative care. Second aim points out to the importance of multidisciplinary and comprehensive care (physical, psycho-social and spiritual) in palliative care in general and third aim was to critically consider various obstacles and resistance that exists in our environment regarding the organization of palliative care, through the prism of various models of palliative care around the world, particularly in Europe and in the regional countries. To search the literature, we used the following databases: Web of Science, PubMed, SCIndeks, Google Scholar; by keywords: palliative care; neonatal palliative care; nursing; palliative pain; national palliative care program. We presented the analyzed data using a descriptive method. Conclusion. If the right to palliative care is seen as a special human right, it can be concluded that our country lags significantly behind developed countries in this regard. Hence, the preoccupation of the author in this paper is the theoretical foundation of palliative care, with special emphasis on the multidisciplinary team. The purpose of this paper is to point out the connection between palliative care and the phenomenon of quality of life, as something that is extremely important not only for each individual but for society as a whole.

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Compassion fatigue and palliative care in neonatal nurses

Bozdag,

Basdas,

Atlı

2024

Pall Supp Care

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Introduction Neonatal intensive care units (NICUs) emerge as one of the areas where palliative care is most needed. This study was conducted to examine the attitudes and compassion fatigue levels of NICUs nurses working in Şanlıurfa, where the fertility rate and infant mortality are highest in Turkey, toward palliative care. Design This study was conducted in descriptive type. Methods The research was carried out with 204 (85%) nurses who agreed to participate in the research between October 2022 and February 2023, out of 240 neonatal intensive care nurses working in the NICU of 2 training and research hospitals and a university hospital in Şanlıurfa. The data of the study were collected using an Introductory Information Form, the Neonatal Palliative Care Attitude Scale, and the Compassion Fatigue Short Scale. Results Nurses; compassion fatigue scale mean score was 61.46 ± 26.64, palliative care scale mean score was 3.13 ± 0.74 for organization subdimension, 2.85 ± 0.73 for resources subdimension, and 3.08 ± 0.89 for clinician subdimension. In the results of the study, 8 barriers (parents do not participate in decisions, there is not enough staff, lack of time to spend with the family, lack of policies/rules in institutions for palliative care, lack of education and communication, society’s beliefs, nurses’ personal attitudes toward death, and lack of appreciation of past experiences with palliative care) and 6 facilitators (Nurses’ ability to express their perceptions, views and beliefs about palliative care, to participate and support palliative care, to inform parents, to provide counseling, adequate physical conditions) for palliative care were determined. Conclusion While it was determined that nurses had a slightly below moderate level of compassion fatigue and a close attitude toward organization and resources toward palliative care, it was determined that ethical conflict toward palliative care was high in clinical subdimension scores. Objectives and Significance of Results It is recommended that all nurses working in the NICU obtain certificates, improvements in resources such as personnel and equipment, improvements in the shift work system and development of policies/rules in institutions for palliative care.

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Communication of bad news in the context of neonatal palliative care: experience of intensivist nurses

Cited by 14 publications

References 15 publications

Grasping the meaning of perinatal palliative care for the multiprofessional team

Grasping the meaning of perinatal palliative care for the multiprofessional team

Palliative care - illness, dying, and death as biological-medical and socio-cultural phenomena

Compassion fatigue and palliative care in neonatal nurses

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