Communicative access and decision making for people with aphasia: Implementing sustainable healthcare systems change

Simmons‐Mackie, Nina; Kagan, Aura; Christie, Charlene O’Neill; Huijbregts, Maria; McEwen, Sara; Willems, Sara

doi:10.1080/02687030600798287

Cited by 153 publications

(112 citation statements)

References 19 publications

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“…There is a growing literature describing methods of increasing communicative access for people with aphasia (e.g., Alarcon & Rogers, 2010;Kagan, Black, Duchan, Simmons-Mackie, & Square, 2001;Simmons-Mackie, Kagan, O ' Neill Christie, Huijbregts, McEwen, & Willems, 2007). For example, characteristics of aphasia-friendly printed materials and supports have been described (e.g., Hilari & Byng, 2001;Kagan, 1998;Rose, Worrall, & McKenna, 2003;Worrall, Rose, Howe, Brennan, Egan, Oxenham, et al, 2005).…”

Section: Development Of the Assessment For Living With Aphasiamentioning

confidence: 99%

The assessment for living with aphasia: Reliability and construct validity

Simmons‐Mackie

Kagan²,

Victor

et al. 2013

International Journal of Speech-Language Pathology

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(2003) and Cruice, Hill, Worrall, and Hickson (2010) identifi ed factors such as engaging in meaningful activities, socializing with others, and having a positive outlook as aspects of QoL in aphasia. Additionally, there is increased awareness that improvements in a clinical setting do not necessarily result in improvements in daily life situations or life satisfaction; thus, there has been a call for interventions that positively and directly affect life quality (Cruice et al., 2003(Cruice et al., , 2005Holland & Thompson, 1998;Kagan & LeBlanc, 2002;LaPointe, 1999; LPAA Project Group, 2000;Ross, 2005;Ross & Wertz, 2003;Sarno, 2004;Simmons-Mackie, 2000, 2008Worrall & Holland, 2003). In order to devise interventions that address QoL, clinicians must understand the impact of communication diffi culties on the daily lives of clients with aphasia.

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Section: Development Of the Assessment For Living With Aphasiamentioning

confidence: 99%

The assessment for living with aphasia: Reliability and construct validity

Simmons‐Mackie

Kagan²,

Victor

et al. 2013

International Journal of Speech-Language Pathology

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“…7,10,[14][15][16] People with aphasia have limited access to health care information. 17 Health information access for people with aphasia is recognized to be multifaceted, incorporating features of information availability as well as ease of obtainability. 8 Information accessibility may also be qualifi ed in terms of accuracy and appropriateness 18 of content, format, and media.…”

mentioning

confidence: 99%

Do People With Aphasia Want Written Stroke and Aphasia Information? A Verbal Survey Exploring Preferences for When and How to Provide Stroke and Aphasia Information

Rose

Worrall

Hickson

et al. 2010

Topics in Stroke Rehabilitation

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A phasia can be defined as "the loss or impairment of language function." 1(p49) It is a multimodality disorder that manifests in difficulties with speaking, reading, and writing.1 Various studies have investigated the prevalence of aphasia resulting from stroke, estimating between 10% to 18% of stroke survivors will have aphasia long term.2-4 Given the language diffi culties encountered by people with aphasia, there is a growing recognition of the need to produce aphasia-friendly written health information.5-9 Aphasia-friendly information incorporates many of the recommendations for how best to format written information for stroke patients 10,11 but to an exaggerated degree. 12Preliminary research found that people with aphasia comprehended more health information when standard health information brochures and booklets were reformatted to contain simple words and short sentences, larger font, white space, and pictures. 6 Before further pursuing research in the area of aphasia-friendly text formatting, it is fundamental to determine whether people with aphasia wish to receive health information in written formats. "Virtually every variety of aphasia entails some diffi culty in oral reading or reading comprehension." 13(p60) Given this, and the wide variety of media available for patient education (eg, DVDs, Websites, verbal information), it should not be assumed that people with aphasia desire to receive health information in a written Purpose: Written health information can be better comprehended by people with aphasia if it is provided in an aphasiafriendly format. However, before pursuing research in the area of text-formatting for people with aphasia, it must be determined whether people with aphasia consider it helpful to receive health information in the written media. This study, therefore, aimed to determine the following: whether people with aphasia consider it important to receive written stroke and aphasia information; when people with aphasia prefer to receive this information; and what their preferences are for health information media. Method: Surveys were administered in a face-to-face interview with 40 adults with aphasia. Participants were purposefully selected using maximum variation sampling for a variety of variables including aphasia severity, reading ability, and time post stroke. Results: Participants thought it important to receive written information about both stroke and aphasia. They considered it helpful to receive written information at several stages post stroke, particularly from 1 month onwards. The largest proportion (97%) of participants identifi ed 6 months post stroke as the most helpful time to receive this information. Written information was the most preferred media at participants' present time post stroke (M = 39 months; range, 2-178 months). Videos/DVDs were the most preferred media during the 6 months immediately following the stroke. Conclusion: Despite reading and language diffi culties, participants considered written information to be important, hence people wi...

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“…Offering an environment conducive to therapeutic communication associated with training, family involvement, an appropriate physical environment, and attitudes of professionals is essential to establish a proper communication (18) . A research carried out with people with aphasia showed that they communicate better with professionals who have been properly trained (19) .…”

Section: Discussionmentioning

confidence: 99%

Communication Strategies Of The Nursing Team In The Aphasia After Cerebrovascular Accident

Souza

Arcuri

2014

Rev. esc. enferm. USP

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RESUMENEstudio exploratorio de corte transversal, cuantitativo, cuyo objetivo fue identificar estrategias de comunicación utilizadas por el equipo de enfermería en el cuidado de pacientes afásicos después de un accidente cerebrovascular. Se utilizaron las técnicas de entrevistas y de observación participante en 27 sujetos del equipo de enfermería de unidades de neurología de un hospital general. Las estrategias más referidas fueron gestos (100%), comunicación verbal (33,3%), comunicación escrita (29,6%) y los toques (18,5%). Entre las estrategias observadas, los gestos alcanzaron el 40,7 % y el toque estaba presente en todas las situaciones dado su carácter instrumental esencial para cuidar. Los resultados indican un desconocimiento de la comunicación no verbal, proxémica, kinésica o háptica. No se observaron diferencias significativas entre las categorías profesionales en función del tiempo de experiencia con respecto a las estrategias mencionadas por los miembros del personal de enfermería para el cuidado de los pacientes con afasia. DESCRIPTORESAccidente cerebrovascular Afasia Comunicación Grupo de enfermería Relaciones enfermero-paciente RESUMOEstudo exploratório, transversal, de delineamento quantitativo, cujo objetivo foi identificar estratégias de comunicação referidas e usadas pela equipe de enfermagem durante o cuidado de pacientes afásicos após acidente vascular encefálico. Foram utilizadas a técnica de entrevista e a observação participante com 27 sujeitos da equipe de enfermagem de unidades neurológicas de um hospital geral. As estraté-gias mais referidas foram os gestos (100%), a comunicação verbal (33,3%), a comunicação escrita (29,6 %) e os toques (18,5%). Entre as estratégias observadas, os gestos atingiram 40,7% e o toque esteve presente em todas as situações, dado seu caráter instrumental imprescindível aos cuidados. Os achados indicam desconhecimento da comunicação não verbal, proxêmica, cinésica ou tacêsica. Não foram observadas diferenças significativas entre as categorias profissionais em função do tempo de experiência com respeito às estratégias referidas pelos membros da equipe de enfermagem para cuidar do paciente afásico. DESCRITORES ABSTRACTThis is an exploratory, cross-sectional study of quantitative design that aimed to identify the communication strategies used and reported by the nursing staff in the care of aphasic patients after a stroke. The techniques used were the participant observation and interviews with 27 subjects of the nursing staff of neurological units in a general hospital. The most frequently mentioned strategies were gestures (100%), verbal communication (33.3%), written communication (29.6%) and the touch (18.5 %). Among the observed strategies, the gestures reached 40.7% and the touch was present in all situations, given its instrumental character essential to care. The findings show lack of knowledge of nonverbal, proxemics , kinesics and tacesics communication. No significant differences were observed among the professional categories depending on the length o...

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Communicative access and decision making for people with aphasia: Implementing sustainable healthcare systems change

Cited by 153 publications

References 19 publications

The assessment for living with aphasia: Reliability and construct validity

The assessment for living with aphasia: Reliability and construct validity

Do People With Aphasia Want Written Stroke and Aphasia Information? A Verbal Survey Exploring Preferences for When and How to Provide Stroke and Aphasia Information

Communication Strategies Of The Nursing Team In The Aphasia After Cerebrovascular Accident

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