Community-Academic Partnerships: Approaches to Engagement

Noel, Lailea; Phillips, Farya; Tossas, Katherine Y.; Spear, Krista; Vanderford, Nathan L.; Winn, Robert A.; Vanderpool, Robin C.; Eckhardt, S. Gail

doi:10.1200/edbk_246229

Cited by 19 publications

(17 citation statements)

References 31 publications

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“…Ultimately, to our knowledge, this is the first study to utilize photovoice to engage Appalachian youth regarding their experiences with cancer. This work has significant potential given that community-based participatory research can address and perhaps ameliorate cancer disparities [ 19 , 20 , 21 ].…”

Section: Discussionmentioning

confidence: 99%

Through the Lens: Youth Experiences with Cancer in Rural Appalachian Kentucky Using Photovoice

Gaines

Martín

Prichard

et al. 2021

IJERPH

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Rural Appalachian Kentucky experiences disproportionately high cancer incidence and mortality rates. This cancer burden is due to social determinants of health and cultural factors prominent in the region. The firsthand experiences of community members—especially young people—can highlight these factors and identify areas for improvement. The purpose of this study was to encourage Appalachian Kentucky youth to consider determinants of cancer and visualize the effects that cancer has on their families or communities by asking them to take photographs of cancer-related objects around them. Content analysis was performed on 238 photographs submitted by 25 students, and photographs were organized into themes, subthemes, and subtopics. The six themes that emerged were risk factors and exposures, marketing, awareness and support, health care, experiences, and metaphorical representations. Many of the submitted photographs aligned with cultural, environmental and/or situational factors prevalent in Appalachian Kentucky. Of the submitted photographs, 54 were displayed as an installment in two Kentucky art galleries. Viewer comments at the exhibitions demonstrated that young community members can educate and motivate change in those around them. Ultimately, this project demonstrates that young community members can recognize cancer-related issues around them and connect personal experiences back to the larger Appalachian Kentucky cancer disparity while also having an impact on other community members.

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Section: Discussionmentioning

confidence: 99%

Through the Lens: Youth Experiences with Cancer in Rural Appalachian Kentucky Using Photovoice

Gaines

Martín

Prichard

et al. 2021

IJERPH

Self Cite

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“…[1,2,28] For this reason, a number of academic-community partnerships have applied community-based participatory research (CBPR) principles to prioritizing community needs, identifying and implementing appropriate evidence-based interventions, and disseminating best practices. [3,[29][30][31][32] Academicians bring expertise in medicine, epidemiology, anthropology, and other elds to the table, providing varying degrees of structure, facilitation, and methodologic expertise. Community partners bring real-world expertise to the table based on their own lived experiences and those of the populations they serve.…”

Section: Discussionmentioning

confidence: 99%

An Informatics Infrastructure to Catalyze Cancer Control Research and Practice

Rose

Dong

Kim

et al. 2021

Preprint

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PurposeA disconnect often exists between those with the expertise to manage and analyze complex, multi-source data sets, and the clinical, social services, advocacy, and public health professionals who can pose the most relevant questions and best apply the answers. We describe development and implementation of a cancer informatics infrastructure aimed at broadening the usability of community cancer data to inform cancer control research and practice; and we share lessons learned. MethodsWe built a multi-level database known as The Ohio Cancer Assessment and Surveillance Engine (OH-CASE) to link data from Ohio’s cancer registry with community data from the U.S. Census and other sources. Space- and place-based characteristics were assigned to individuals according to residential address. Stakeholder input informed development of an interface for generating queries based on geographic, demographic, and disease inputs and for outputting results aggregated at the state, county, municipality, or zip code levels. ResultsOH-CASE contains 723,410 patient records for Ohioans diagnosed with cancer from 1/1/2006 – 12/31/2017 across 88 counties containing 1215 municipalities and 1197 zip codes. Stakeholder feedback from cancer center community outreach teams, advocacy organizations, public health, and researchers suggests a broad range of uses of such multi-level data resources accessible via a user interface. ConclusionOH-CASE represents a prototype of a transportable model for curating and synthesizing data to understand cancer burden across communities. Beyond supporting collaborative research, this infrastructure can serve the clinical, social services, public health, and advocacy communities by enabling targeting of outreach, funding, and interventions to narrow cancer disparities.

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“…Community-academic partnerships optimize the engagement of academic and community resources thereby increasing the pertinence of academic research and trust in ndings in the community. Community-academic partnerships support diverse solutions to meet the needs of speci c communities [23].…”

Section: Declarationsmentioning

confidence: 99%

Evaluating research co-production: Protocol for the Research Quality Plus for Co-Production (RQ+ 4 Co-Pro) Framework

McLean¹,

Carden

Graham

et al. 2022

Preprint

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BackgroundResearch co-production is an umbrella term used to describe research users and researchers working together to generate knowledge. Research co-production is used to create knowledge that is relevant to current challenges and to increase uptake of that knowledge into practice, programs, products, and/or policy. Yet, rigorous theories and methods to assess the quality of co-production are limited. Here we describe a framework for assessing the quality of research co-production – Research Quality Plus for Co-Production (RQ+ 4 Co-Pro) – and outline our field test of this approach.MethodsUsing a co-production approach, we aim to field test the relevance and utility of the RQ+ 4 Co-Pro framework. To do so we will recruit participants who have led research co-production projects from the international Integrated Knowledge Translation Research Network. We aim to sample 16 to 20 co-production project leads, assign these participants to dyadic groups (8 to 10 dyads), train each participant in the RQ+ 4 Co-Pro framework using deliberative workshops and oversee a simulation assessment exercise using RQ+ 4 Co-Pro within dyadic groups. To study this experience, we use a qualitative design to collect participant demographic information and project demographic information, and will use in-depth semi-structured interviews to collect data related to the experience each participant has using the RQ+ 4 Co-Pro framework.DiscussionThis study will yield knowledge about a new way to assess research co-production. Specifically, it will address the relevance and utility of using RQ+ 4 Co-Pro, a framework that includes context as an inseparable component of research, identifies dimensions of quality matched to the aims of co-production, and applies a systematic and transferable evaluative method for reaching conclusions. This is a needed area of innovation for research co-production to reach its full potential. The findings may benefit co-producers interested in understanding the quality of their work, but also other stewards of research co-production. Accordingly, we undertake this study as a co-production team representing multiple perspectives from across the research enterprise, such as: funders, journal editors, university administrators, and government and health organization leaders.

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Community-Academic Partnerships: Approaches to Engagement

Cited by 19 publications

References 31 publications

Through the Lens: Youth Experiences with Cancer in Rural Appalachian Kentucky Using Photovoice

Through the Lens: Youth Experiences with Cancer in Rural Appalachian Kentucky Using Photovoice

An Informatics Infrastructure to Catalyze Cancer Control Research and Practice

Evaluating research co-production: Protocol for the Research Quality Plus for Co-Production (RQ+ 4 Co-Pro) Framework

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