Community-based Participatory Research

Holkup, Patricia A.; Tripp–Reimer, Toni; Salois, Emily Matt; Weinert, Clarann

doi:10.1097/00012272-200407000-00002

Cited by 356 publications

(151 citation statements)

References 9 publications

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“…Dissemination may have been enhanced by assigning greater leadership responsibilities to the research mentors who are most experienced in preparing conference presentations and publications. Additionally, as is often a weakness in CBPR, patients were not systematically involved in the development of the interventions or dissemination of the results [21,25-28], which may have enhanced both the relevance of the projects and potentially their sustainability.…”

Section: Discussionmentioning

confidence: 99%

“…CBPR is better conceived of as an approach to collaboration across multiple research projects where there is no one right method for all issues and all communities on a single research study, but projects do conform to the principles of CBPR over time [12,18,19]. The degree to which key principles of CBPR are incorporated into a given project is largely based upon such factors as funding, feasibility, length of the relationship between partners, and preferences of all stakeholders [20,21]. …”

Section: Introductionmentioning

confidence: 99%

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Collaborative research between clinicians and researchers: a multiple case study of implementation

et al. 2010

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BackgroundBottom-up, clinician-conceived and directed clinical intervention research, coupled with collaboration from researcher experts, is conceptually endorsed by the participatory research movement. This report presents the findings of an evaluation of a program in the Veterans Health Administration meant to encourage clinician-driven research by providing resources believed to be critical. The evaluation focused on the extent to which funded projects: maintained integrity to their original proposals; were methodologically rigorous; were characterized by collaboration between partners; and resulted in sustained clinical impact.MethodsResearchers used quantitative (survey and archival) and qualitative (focus group) data to evaluate the implementation, evaluation, and sustainability of four clinical demonstration projects at four sites. Fourteen research center mentors and seventeen clinician researchers evaluated the level of collaboration using a six-dimensional model of participatory research.ResultsResults yielded mixed findings. Qualitative and quantitative data suggested that although the process was collaborative, clinicians' prior research experience was critical to the quality of the projects. Several challenges were common across sites, including subject recruitment, administrative support and logistics, and subsequent dissemination. Only one intervention achieved lasting clinical effect beyond the active project period. Qualitative analyses identified barriers and facilitators and suggested areas to improve sustainability.ConclusionsEvaluation results suggest that this participatory research venture was successful in achieving clinician-directed collaboration, but did not produce sustainable interventions due to such implementation problems as lack of resources and administrative support.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Collaborative research between clinicians and researchers: a multiple case study of implementation

et al. 2010

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“…Many scholars and community leaders see CBPR as being uniquely situated for research with Indigenous Peoples due to its relational and decolonizing focus (Castellano, 2004;Castleden et al, 2012;Holkup, Tripp-Reimer, Salois, & Weinert, 2004;LaVeaux & Christopher, 2009). However, some express doubts about the application of any Western research paradigm to Indigenous matters (Coombes, 2012;Kovach, 2009).…”

Section: Community-based Participatory Research and Indigenous Communmentioning

confidence: 99%

Indigenous Research and Academic Freedom: A View from Political Scientists

Alcantara

Lalonde

Wilson

2017

iipj

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Over the last several decades, scholars working on Indigenous topics have faced increasing pressure to engage in research that promotes social justice and results in formal partnerships with Indigenous communities. In this article, we argue that non-community-based research, in which the researcher exercises academic autonomy over the project, still has a role to play in Indigenous-focused research, depending on the research question, topic, and situation at hand. We explore this argument from the perspective of political scientists who study Indigenous-settler political relations in Canada.

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“…LaVeaux and Christopher identify eight principles of CBPR including: respect for community identity, building on strengths and resources of the community, facilitating collaborative partnerships throughout the whole research process, integration of knowledge and action for mutual benefits, promoting co-learning, an iterative process ensuring post-research feedback is discussed with the community, addressing health from both positive and ecological perspectives, and disseminating findings to all partners (LaVeaux & Christopher, 2009). Although CBPR is very time-consuming and requires a long-term commitment with communities (Holkup, Tripp-Reimer, Salois, & Weinert, 2004), respecting these principles is necessary to conduct relevant research (LaVeaux & Christopher, 2009). …”

Section: Considerations For Biological Sampling With Aboriginal Populmentioning

confidence: 99%

“…Data can easily be misinterpreted and the directionality of the intended objective can be misguided. CBPR can immensely benefit First Nations along with the research society when it is accomplished with carefulness (Holkup et al, 2004). Such an approach may be used to establish dialogue, and develop meaningful, long-lasting trusting relationship that may lead to additional research opportunities (e.g., biological sampling).…”

Section: Considerations For Biological Sampling With Aboriginal Populmentioning

confidence: 99%

Ethics of Biological Sampling Research with Aboriginal Communities in Canada

Nowrouzi¹,

McGregor²,

McDougall³

et al. 2016

GJHS

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Background: The objective of this paper is to identify key ethical issues associated with biological sampling in Aboriginal populations in Canada and to recommend approaches that can be taken to address these issues. Methods:Our work included the review of notable biological sampling cases and issues. We examined several significant cases (Nuu-chah-nult people of British Columbia, Hagahai peoples of Papua New Guinea and the Havasupai tribe of Arizona) on the inappropriate use of biological samples and secondary research in Aboriginal populations by researchers. Results:Considerations for biological sampling in Aboriginal communities with a focus on community-based participatory research involving Aboriginal communities and partners are discussed. Recommendations are provided on issues of researcher reflexivity, ethical considerations, establishing authentic research relationships, ownership of biological material and the use of community-based participatory research involving Aboriginal communities. Conclusions:Despite specific guidelines for Aboriginal research, there remains a need for biological sampling protocols in Aboriginal communities. This will help protect Aboriginal communities from unethical use of their biological materials while advancing biomedical research that could improve health outcomes.

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Community-based Participatory Research

Cited by 356 publications

References 9 publications

Collaborative research between clinicians and researchers: a multiple case study of implementation

Collaborative research between clinicians and researchers: a multiple case study of implementation

Indigenous Research and Academic Freedom: A View from Political Scientists

Ethics of Biological Sampling Research with Aboriginal Communities in Canada

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