Community-Based Participatory Research: a Family Health History-Based Colorectal Cancer Prevention Program Among Chinese Americans

Li, Ming; Yeh, Yulyu; Sun, Helen; Chang, Barbara J.; Chen, Lei‐Shih

doi:10.1007/s13187-019-1486-1

Cited by 13 publications

(21 citation statements)

References 14 publications

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“…Some examples from the literature that should be explored further in future research include establishing participatory news websites with contributions by local residents, community organizations, and traditional media (Chen et al 2012), and developing written content that meets the information needs of the population by involving patients and those impacted as co‐designers (Smith et al 2017), rather than treating the community as mere study subjects or interviewees for a news segment. Collaborating with local community organizations in the production and dissemination of health materials in communities with particular cultural or linguistic needs is also important (Li et al 2019). Increasingly, researchers are looking at the use of social media forums such as Q&As on Twitter involving health officials, local news reporters, and community members during health crises (Young et al 2018) and how this engagement with the public could be leveraged.…”

Section: Discussionmentioning

confidence: 99%

Cancer risk communication in the news coverage of suspected cancer clusters in Ontario: Contrasting media messaging on cancer by geography

Slavik

Yiannakoulias

2020

Canadian Geographies / Géographies canadiennes

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Key Messages This study suggests that the communication of select information on cancer risk varies between urban and rural settings in newspaper coverage in Ontario. News coverage that reports risk information in a variety of formats could foster health literacy and accurate perceptions of cancer risk among Canadians. Participatory communication practices, involving collaboration between multiple stakeholders, could help address communication inequalities between various geographies.

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Section: Discussionmentioning

confidence: 99%

Cancer risk communication in the news coverage of suspected cancer clusters in Ontario: Contrasting media messaging on cancer by geography

Slavik

Yiannakoulias

2020

Canadian Geographies / Géographies canadiennes

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“…The study protocol was approved by the Institutional Review Board at Texas A&M University [IRB number: 2016-0068D]. The program utilized the community-based participatory research approach with a convenience sample ( 15 ). All participants signed the informed consent and the authorization form for use and disclosure of protected health information before taking part in this study.…”

Section: Methodsmentioning

confidence: 99%

“…Using an integrated theoretical framework, based on the constructs from the Health Belief Model (HBM) ( 16 ), the Theory of Planned Behavior (TPB) ( 17 ), and the Social Cognitive Theory ( 18 ) associated with FHH communication and collection in the literature ( 15 ), we developed a baseline survey instrument in both Mandarin and English. The survey was reviewed by two physicians as well as the leader, staff, and volunteers at the partnering Chinese American organization.…”

Section: Methodsmentioning

confidence: 99%

Family health history of colorectal cancer: a structural equation model of factors influencing Chinese Americans’ communication with family members

Yeh

Kwok

et al. 2019

Transl. Cancer Res

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Background Chinese Americans, the largest subgroup of Asian Americans with a 63% of first-generation immigrants, suffer from high incidence and mortality rates of colorectal cancer (CRC). As an identification marker to classify the CRC risk level, family health history (FHH) of CRC can help physicians provide patients personalized recommendations towards CRC. Yet, Chinese Americans’ communication of FHH of CRC with family members is unknown. The purpose of this first-of-its-kind study is to examine Chinese Americans’ behavior and the associated psychological factors of FHH of CRC communication with family members. Methods We developed an integrated theoretical framework based on the Health Belief Model, the Theory of Planned Behavior, and the Social Cognitive Theory to assess Chinese Americans’ FHH of CRC communication with family members and the psychological factors affecting such communication behavior. Using structural equation modeling, the framework was tested with the baseline survey data from 742 Chinese American participants from a FHH-based CRC prevention program in Texas. Results The majority of Chinese American participants (with an average age of 47.7 years) were female (60.0%), married (72.0%), born outside the US (95.4%), did not speak English at home (95.5%), and had some kind of health insurance (75.2%). About half were employed (52.7%) and had college degrees or above (54.5%), some religious beliefs (52.5%), and primary care physicians (45.1%). Most Chinese Americans in our sample had either never or seldom collected and discussed with their family members about their FHH of CRC. The integrated theoretical framework was supported by the survey data. Perceived susceptibility for getting CRC, perceived severity for CRC, and perceived benefits of FHH of CRC communication with family members were significantly and positively associated with Chinese American participants’ attitudes toward FHH communication with family members (β =0.089, P<0.005; β =0.141, P<0.001; and β =0.479, P<0.001, respectively). Attitudes (β =0.324, P<0.001) and self-efficacy (β =0.577, P<0.001) in FHH of CRC communication were positively and significantly associated with the Chinese American sample’s intention in communicating FHH of CRC with their family members. Stronger intention, older age, lack of health insurance, and non-English spoken at home were correlated with participants’ behavior in FHH of CRC communication (β =0.410, P<0.001; β =0.113, P<0.05; β =−0.112, P<0.05; β =0.096, P<0.05, respectively). Conclusions Given that most Chinese Americans in our sample lacked FHH of CRC communication with family members, interventions and education for this particular racial/ethnic population are needed. Our integrated theoretical framework may provide a guideline for such interventions and education in the future.

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“…18 Similarly, institutional review limited the participation in at least one study, preventing non-academic stakeholders participating in data collection and analysis. 31 Other practical challenges to operationalising partnerships included effective, timely communication, 19,32 and the challenge of partnering with communities in which the dominant language of the researchers and migrant communities differ. 35,43 Finally, the iterative and tailored nature of the interventions produced may also impact on the generalisability of findings, 37 whilst some work could seemingly omit or contradict research evidence due to localising the intervention.…”

Section: Challenges Of Participatory Approaches To Research With Migrantsmentioning

confidence: 99%

“…Only two of the included studies reported explicit evidence of some degree of participation of at least one non-academic stakeholder groups across all research stages. 25,26 Overall, we extracted and categorised evidence of the participation of at least one non-academic stakeholder group in 22 studies during the inception; [17][18][19]21,22,[25][26][27][28][29][30]32,[34][35][36][38][39][40][41][42][43][44]…”

Section: Analysis Of Participation Within Included Studiesmentioning

confidence: 99%

Participatory research in health intervention studies involving migrants: a systematic review

Rustage

Crawshaw

Majeed-Hajaj

et al. 2021

Preprint

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Objective To analyse the use of participatory approaches in research of health interventions for migrants, and how utilised approaches embody core participatory principles of democracy and power distribution. Design A systematic review of original articles. Electronic searchers were carried out in the databases MEDLINE, Embase, Global Health and PsychINFO (from inception to Nov 2020). Eligibility criteria for study selection The analysis included original peer reviewed research which reported on attempts to develop and implement a health intervention for migrants using participatory approaches. We defined migrants as foreign born individuals; studies using definitions demonstrably outside of this were excluded. Only articles reporting the full research cycle (inception, design, implementation, analysis, evaluation, dissemination) were included. Data extraction Information related to who was involved in research (migrants or other non academic stakeholders), the research stage at which they were involved (inception, design, implementation, analysis, evaluation, dissemination), and how this involvement aligned with the core principles of participatory research, categorising studies as exhibiting active, pseudo, or indirect participation of migrants. Results 1793 publication were screened of which 28 were included in our analysis. We found substantial variation in the application of participatory research approaches: across 168 individual research stages analysed across the 28 studies, we recorded 46 instances of active participation of migrants; 30 instances of proxy participation; and 24 instances of indirect participation. Whilst all studies involved at least one non-academic stakeholder group in at least one stage of the research, just two studies exhibited evidence of active participation of migrants across all research stages. Conclusions These data highlight important shortfalls in the inclusion of migrant groups in developing health interventions that affect their lives and suggest a more rigorous and standardised approach to defining and delivering participatory research is urgently needed to improve the quality of participatory research. Registration This review followed PRISMA guidelines and is registered on the Open Science Framework (osf.io/2bnz5)

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Community-Based Participatory Research: a Family Health History-Based Colorectal Cancer Prevention Program Among Chinese Americans

Cited by 13 publications

References 14 publications

Cancer risk communication in the news coverage of suspected cancer clusters in Ontario: Contrasting media messaging on cancer by geography

Cancer risk communication in the news coverage of suspected cancer clusters in Ontario: Contrasting media messaging on cancer by geography

Family health history of colorectal cancer: a structural equation model of factors influencing Chinese Americans’ communication with family members

Participatory research in health intervention studies involving migrants: a systematic review

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