Community-Based Participatory Research (CBPR) to Enhance Participation of Racial/Ethnic Minorities in Clinical Trials: A 10-Year Systematic Review

McFarlane, Soroya Julian; Occa, Aurora; Peng, Wei; Awonuga, Oluwatumininu; Morgan, Susan E.

doi:10.1080/10410236.2021.1943978

Cited by 71 publications

(48 citation statements)

References 139 publications

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“…Strategies for supporting treatment session attendance have been tested, but trial outcomes suggest that much work remains to be done (see Coffey et al (2016) described above and Schacht et al, (2017) for an evaluation of contingency management to improve PE session attendance). Clinical researchers could borrow from successful efforts to increase involvement of racial/ethnic minorities in clinical trials using participatory research methods (see McFarlane, Occa, Peng, Awonuga & Morgan, 2021 for a systematic review) such that individuals with lived experience pertaining to PTSD/SUD help develop and refine treatment and trial design to address the persistent problem of sub-optimal treatment and study retention.…”

Section: Discussionmentioning

confidence: 99%

Efficacy and acceptability of interventions for co-occurring PTSD and SUD: A meta-analysis

Simpson

Goldberg

Louden

et al. 2021

Journal of Anxiety Disorders

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Section: Discussionmentioning

confidence: 99%

Efficacy and acceptability of interventions for co-occurring PTSD and SUD: A meta-analysis

Simpson

Goldberg

Louden

et al. 2021

Journal of Anxiety Disorders

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“…Community-Based Participatory Research (CBPR) to enhance participation of racial/ethnic minorities in clinical trials: a 10-year systematic review 22 This review does not focus on cancer trials and only considers racial/ethnic minorities (not rurality).…”

Section: Systematic Review Titlementioning

confidence: 99%

“…Table 1 details each systematic review and how they differ from our proposed review. 5,[17][18][19][20][21][22][23] The objective of this scoping review will be to determine what is known about rural populations regarding enrollment and participation in cancer therapeutic trials and early detection trials, including barriers and facilitators affecting enrollment and Table 1: Identified systematic reviews and how they differ from the proposed review…”

Section: Introductionmentioning

confidence: 99%

Barriers and facilitators to cancer clinical trial enrollment and participation among rural populations: a scoping review protocol

Palokas

Christian

Hinton

et al. 2022

JBI Evidence Synthesis

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Objective: The objective of this scoping review is to identify barriers and facilitators related to cancer clinical trial enrollment and participation among rural populations. Introduction: Advancing the effectiveness of cancer treatment and increasing early detection of cancer relies on enrollment and participation of individuals in cancer clinical trials. Lack of enrollment and participation in trials is a concern, and there is evidence that individuals living in rural areas are unlikely to participate in such trials. Information on barriers to, and facilitators of, enrollment and participation in cancer clinical trials is needed for the development of evidence-based interventions to increase the enrollment and participation of rural populations. Inclusion criteria: The review will consider studies on adults aged 18 years or older living in rural areas. Studies that report on barriers and facilitators to enrollment and participation in cancer clinical trials, including both cancer therapeutic and cancer early detection trials, will be included in the review. The review will consider quantitative, qualitative, and text and opinion papers for inclusion. Methods: The search strategy will aim to locate published primary studies, reviews, and opinion papers, the latter including those by professional oncology organizations. The databases to be searched include MEDLINE, CINAHL, Embase, Web of Science, and Cochrane Library. Gray literature databases will also be searched. Two independent reviewers will retrieve full-text studies and extract data. The results will be presented in diagrammatic format with a narrative summary.

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“…[ 14 ] also summarized CBPR’s strategies, including integrating community-based practice and knowledge into evidence-based practices [ 16 ]; addressing the inequitable power differentials between researchers and community partners [ 17 ]; and seeking policy and system-change outcomes toward social justice [ 18 ]. Researchers have also identified the elements of CBPR that are associated with positive outcomes, including community partnership participation in (1) a study advisory committee; (2) data collection; (3) development of interventions; and (4) participant recruitment [ 19 ].…”

Section: Introductionmentioning

confidence: 99%

A Case Study of Community—Academic Partnership in Improving the Quality of Life for Asthmatic Urban Minority Children in Low-Income Households

Liu

Chung

et al. 2022

IJERPH

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Community–academic partnerships (CAPs) are being increasingly used to study and address health disparity issues. CAPs help to create new bodies of knowledge and innovative solutions to community problems, which benefits the community and academia. Supported by a grant, a partnership was formed between an academic research team and a community health organization to analyze and interpret data collected from the caregivers of asthmatic African American children living in urban low-income households. Using a case study approach, we discuss how we built a healthy CAP and the lessons learned from the process. Our analysis was guided by the six main factors that facilitate success in developing collaborative relationships, including (1) environment; (2) membership; (3) process and structure; (4) communication; (5) purpose; and (6) resources. Based on these six factors, we describe our collaboration process, challenges, and areas for improvement. We aimed to provide a “points-to-consider” roadmap for academic and community partners to establish and maintain a mutually beneficial and satisfactory relationship. Collaborating with community members and organizations provides unique opportunities for researchers and students to apply their skills and knowledge from textbooks and the classroom, engage with community members, and improve real-life community needs. Building a constructive CAP involves efforts, energy, and resources from both parties. The six major themes derived from our project offer suggestions for building a healthy, collaborative, and productive relationship that best serves communities in the future.

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Community-Based Participatory Research (CBPR) to Enhance Participation of Racial/Ethnic Minorities in Clinical Trials: A 10-Year Systematic Review

Cited by 71 publications

References 139 publications

Efficacy and acceptability of interventions for co-occurring PTSD and SUD: A meta-analysis

Efficacy and acceptability of interventions for co-occurring PTSD and SUD: A meta-analysis

Barriers and facilitators to cancer clinical trial enrollment and participation among rural populations: a scoping review protocol

A Case Study of Community—Academic Partnership in Improving the Quality of Life for Asthmatic Urban Minority Children in Low-Income Households

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