Community-Based Participatory Research

Israel, Barbara A.; Schulz, Amy J.; Parker, Edith A.; Becker, Adam B.; Allen, Alex; Guzmán, J. Ricardo

doi:10.4135/9781412952576.n61

Cited by 563 publications

(854 citation statements)

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“…We used a CBPR approach to partner with two Catholic churches, a Catholic social service agency, healthcare leaders, and community members for this study. [16][17][18] The community partners formed the Little Village Community Advisory Board (CAB). We conducted a randomized, controlled, community-based intervention trial to test the impact of the church-based intervention on diabetes outcomes compared to enhanced usual care.…”

Section: Methodsmentioning

confidence: 99%

“…The curriculum also included a photovoice exercise, which is a CBPR method that engages community members through the use of photographs and storytelling. 16,36 Participants were also informed of church-sponsored exercise programs they could attend.…”

Section: Intervention: Picture Good Healthmentioning

confidence: 99%

“…7 We used a community-based participatory research (CPBR) approach to partner with community leaders and members to design a church-based diabetes self-management intervention for Latinos. 12,[16][17][18] We trained lay leaders to lead the intervention classes since several studies have noted strong evidence for peer-led group self-management programs in improving self-management and clinical outcomes. 13,[19][20][21][22][23][24][25][26][27] To our knowledge, ours is the first study to evaluate the feasibility, acceptability, and clinical impact of a church-based diabetes selfmanagement intervention among Latinos with diabetes.…”

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confidence: 99%

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Picture Good Health: A Church-Based Self-Management Intervention Among Latino Adults with Diabetes

et al. 2015

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BACKGROUND: Churches may provide a familiar and accessible setting for chronic disease self-management education and social support for Latinos with diabetes. OBJECTIVE: We assessed the impact of a multi-faceted church-based diabetes self-management intervention on diabetes outcomes among Latino adults. DESIGN: This was a community-based, randomized controlled, pilot study. SUBJECTS: One-hundred adults with self-reported diabetes from a Midwestern, urban, low-income MexicanAmerican neighborhood were included in the study. INTERVENTIONS: Intervention participants were enrolled in a church-based diabetes self-management program that included eight weekly group classes led by trained lay leaders. Enhanced usual care participants attended one 90-minute lecture on diabetes selfmanagement at a local church. OUTCOME MEASURES: The primary outcome was change in glycosylated hemoglobin (A1C). Secondary outcomes included changes in low-density lipoproteins (LDL), blood pressure, weight, and diabetes self-care practices. KEY RESULTS: Participants' mean age was 54±12 years, 81 % were female, 98 % were Latino, and 51 % were uninsured. At 3 months, study participants in both arms decreased their A1C from baseline (−0.32 %, 95 % confidence interval [CI]: -0.62, -0.02 %). The difference in change in A1C, LDL, blood pressure and weight from baseline to 3-month and 6-month follow-up was not statistically significant between the intervention and enhanced usual care groups. Intervention participants

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Section: Methodsmentioning

confidence: 99%

Section: Intervention: Picture Good Healthmentioning

confidence: 99%

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confidence: 99%

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Picture Good Health: A Church-Based Self-Management Intervention Among Latino Adults with Diabetes

et al. 2015

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“…Most importantly we locate ourselves firmly within the tradition of community-based action research (Israel, Eng, Schultz et al, 2005;Minkler and Wallerstein 2003). All our work is conducted in partnership with research communities, with the explicit aims of working collaboratively with local people to identify possibilities for action towards improved health and well-being, and strategies for implementing such action.…”

Section: The Aids-competent Communitymentioning

confidence: 99%

Building contexts that support effective community responses to HIV/AIDS: a South African case study

Campbell

Nair

Maimane

2007

American J of Comm Psychol

188

156

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In this paper we discuss our conceptualisation of a 'health-enabling social environment', and some of the strategies we are currently using to build social contexts most likely to support effective HIV/AIDS management in southern Africa. In developing these ideas, we draw on our on-going collaboration with residents of Entabeni, a remote rural community in South Africa where 43% of pregnant women are HIV positive. The aim of this collaboration is to facilitate contextual changes that will enable more effective community-led HIV/AIDS management in an isolated area where people have little or no access to formal health or welfare support, and where HIV/AIDS is heavily stigmatised. We give an account of the three phases of collaboration to date. These include research; the dissemination of findings and community consultation about the way forward; preliminary project activities (skills training for volunteer health workers; partnership building and a youth rally) as a way of illustrating what we believe are six key strategies for facilitating the development of 'HIV-competent' communities: building knowledge and basic skills; creating social spaces for dialogue and critical thinking; promoting a sense of local ownership of the problem and incentives for action; emphasising community strengths and resources; mobilising existing formal and informal local networks; and building partnerships between marginalized communities and more powerful outside actors and agencies, locally, nationally and internationally. We discuss some of the triumphs and trials of this work, concluding with a discussion of the need to set realistic goals when working at the community level in highly conservative patriarchal communities to tackle problems which may be shaped by economic and political processes over which local people have little control.

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“…Partnering with community members to conduct research via community-based participatory research (CBPR) could move the ethical processes one stage further to allow equal power sharing between researchers and community members throughout the research steps, from conceptualizing the study, to collecting and analyzing the data, and finally to communicating the results back to the community (Israel 2005;Israel et al 1998). An interwoven CBPR partnership has the potential to identify and then address the social, cultural, logistical, and ethical issues that arise in conducting research focused on actionable outcomes (Chen et al 2006;De las Nueces et al 2012;George et al 2014;Skinner et al 2015).…”

Section: Introductionmentioning

confidence: 99%

Engaging Hmong adults in genomic and pharmacogenomic research: Toward reducing health disparities in genomic knowledge using a community-based participatory research approach

Culhane‐Pera¹,

Straka

Moua³

et al. 2017

J Community Genet

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Advancing precision medicine relies in part on examining populations that may exhibit unique genetic variants that impact clinical outcomes. Failure to include diverse populations in genomic-based research represents a health disparity. We implemented a community-based participatory research (CBPR) process with the Hmong community in Minnesota, who were refugees from Laos, in order to assess the feasibility of conducting genomic and pharmacogenomicbased research for genetic variants that are relevant to the Hmong community. Our Hmong Genomics Board, consisting of Hmong and non-Hmong professionals, used CBPR principles and built on previous formative research to create and implement culturally and linguistically appropriate informed consent processes for Hmong people at six community venues. The Board chose genetic variants for diabetes risk and warfarin response as relevant to the community. The Institutional Review Board approved aggregate but not individual return of results. Two hundred thirty-seven Hmong participants with mean (range) age of 30.2 (18-81) years and diverse levels of education (22% without and 75% with high-school education) provided saliva for genetic (DNA) analyses. Eighty-five percent of participants agreed to store DNA for future analyses, 82% agreed to share DNA with other researchers, and 78% agreed to be contacted for future studies. Twenty-five elders refused to participate because they wanted individual results. Aggregate results were shared with all participants. This CBPR approach proved highly successful to obtain informed consent and recruit a sample from the Hmong community for a genomic and pharmacogenomic study. Investment in the CBPR process may prove successful to address the gap of genomic information in under-represented communities.

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Community-Based Participatory Research

Cited by 563 publications

References 0 publications

Picture Good Health: A Church-Based Self-Management Intervention Among Latino Adults with Diabetes

Picture Good Health: A Church-Based Self-Management Intervention Among Latino Adults with Diabetes

Building contexts that support effective community responses to HIV/AIDS: a South African case study

Engaging Hmong adults in genomic and pharmacogenomic research: Toward reducing health disparities in genomic knowledge using a community-based participatory research approach

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