Community-based participatory research to promote healthy lifestyles among Latino immigrant families with youth with disabilities

Suárez-Balcázar, Yolanda; Early, Amy; Maldonado, Ashley; García, Claudia; Arias, Dalmina; Zeidman, Amalia; Orozco, Alexander Agudelo

doi:10.1080/11038128.2018.1502348

Cited by 29 publications

(35 citation statements)

References 27 publications

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“…CbPAR has proven to be a suitable methodology in addressing health inequities of ethnic minorities. It has shown its capacity to identify and address problems related to human immunodeficiency virus (HIV) infections, nutrition, obesity and diabetes, gender violence, mental health conditions, drug abuse, cardiovascular diseases, families with children with disabilities, as well as health promotion among ethnic-based groups [58,61,62,63,64,65].…”

Section: Introductionmentioning

confidence: 99%

A Community-Based Participatory Action Research for Roma Health Justice in a Deprived District in Spain

Miranda

Ramı́rez

Balcázar

et al. 2019

IJERPH

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Addressing health disparities and promoting health equity for Roma has been a challenge. The Roma are the largest disadvantaged ethnic minority population in Europe and have been the victims of deep social and economic injustices, institutional discrimination, and structural antigypsyism over many centuries. This has resulted in a much worse health status than their non-Roma counterparts. Current strategies based on ameliorative and top-down approaches to service delivery have resulted in paradoxical effects that solidify health disparities, since they do not effectively address the problems of vulnerable Roma groups. Following a health justice approach, we present a community-based participatory action research case study generated by a community and university partnership intended to address power imbalances and build collaboration among local stakeholders. This case study involved a group of health providers, Roma residents, researchers, Roma community organizations, and other stakeholders in the Poligono Sur, a neighborhood of Seville, Spain. The case study comprises four phases: (1) identifying Roma health assets, (2) empowering Roma community through sociopolitical awareness, (3) promoting alliances between Roma and community resources/institutions, and (4) building a common agenda for promoting Roma health justice. We highlighted best practices for developing processes to influence Roma health equity in local health policy agendas.

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Section: Introductionmentioning

confidence: 99%

A Community-Based Participatory Action Research for Roma Health Justice in a Deprived District in Spain

Miranda

Ramı́rez

Balcázar

et al. 2019

IJERPH

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“…45 That said, there are many examples of high-quality CBPR studies in diabetes prevention and health promotion. [9][10][11][12] However, when it comes to studies on diabetes treatment or management, these approaches are used, [13][14][15] but are much less common. 16 Our reflections on the process of conducting a participatory research project document the impact of the participatory process on the researchers and the research.…”

Section: Discussionmentioning

confidence: 99%

“…8 Participatory research approaches have been used robustly in the field of diabetes prevention/health promotion. [9][10][11][12] They have also been used occasionally in research on diabetes management, [13][14][15] however a recent realist review found a total of only 29 diabetes-related studies in which patients or community members actively contributed to research projects in more involved ways than being traditional informants. 16 CBPR and patient-engagement research may have a particularly important role in areas of health research focused on equity and the social determinants of health.…”

Section: Significance Of This Studymentioning

confidence: 99%

Using a community-based participatory research approach to meaningfully engage those with lived experience of diabetes and homelessness

Campbell

DiGiandomenico³

et al. 2021

BMJ Open Diab Res Care

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IntroductionParticipatory research is a study method that engages patients in research programs, ideally from study design through to dissemination. It is not commonly used in diabetes health services research. Our objectives were to describe the process and challenges of conducting a participatory research project and to highlight the experiences of both patient co-researchers and academic researchers.Research design and methodsWe recruited people with lived experience of homelessness (PWLEH) and diabetes in Toronto, Canada to become patient co-researchers. They were asked to commit to attending biweekly meetings. We undertook two major research projects: concept mapping to choose a research focus; and photovoice to explore accessing healthy food while homeless. We used a convergent mixed-methods design to evaluate their experience.ResultsA diverse group of eight PWLEH had an average attendance of 82% over 21 meetings—despite this success, we encountered a number of challenges of conducting this research: funding, ethics approval and recruitment were particularly difficult. Group members reported that participation improved their ability to self-advocate in their diabetes care and provided them with tangible skills and social benefits. Group members stated that they valued being involved in all aspects of the research, in particular knowledge translation activities, including advocating for nutritious food at shelters; presenting to stakeholders; and meeting with policymakers.ConclusionsThe use of participatory research methods enables academic researchers to support community members in pursuing research that is pertinent to them and which has a positive impact. In our study, co-researchers contributed in meaningful ways and also valued the experience.

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“…This might be related to feelings of familismo. Previous studies developing culturally tailored programs for Latinos have affirmed the importance of honoring this value by including all members of the family in the program or inviting main caregivers to attend along with less-involved family members (Coon et al, 2003;Suarez-Balcazar et al, 2018). Therefore, we should be aware of this aspect when developing public health messages to Latinos.…”

Section: Discussionmentioning

confidence: 99%

Evaluation of Public Health Messages Promoting Early Detection of Dementia Among Adult Latinos With a Living Older Adult Parental Figure

Balbim

Maldonado

Early

et al. 2020

Hisp Health Care Int

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Introduction We aimed to evaluate the resonance of public health messages promoting early detection of dementia in adult Latinos with a living older adult loved one. Method We conducted a mixed-methods study with focus groups and surveys to evaluate eight messages encouraging Latino adults to accompany their older loved one for cognitive assessment. Qualitative data were transcribed and coded, and thematic analysis was conducted. We used descriptive statistics for quantitative data. Results Participants suggested that messages need to be translated into Spanish and images need to be more natural, present balance between positive and serious facial expressions, show more ethnic/racial diversity, and show family members other than the parents. Five major sociocultural themes affected how the messages were received: stigma, gender roles, the importance of the mother figure, guilt, and family togetherness. Conclusion Public health messages targeting cultural values are needed to effectively encourage early dementia detection in Latinos. Findings can be used to adapt culturally appropriate public health messages encouraging early dementia detection in Latinos.

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Community-based participatory research to promote healthy lifestyles among Latino immigrant families with youth with disabilities

Cited by 29 publications

References 27 publications

A Community-Based Participatory Action Research for Roma Health Justice in a Deprived District in Spain

A Community-Based Participatory Action Research for Roma Health Justice in a Deprived District in Spain

Using a community-based participatory research approach to meaningfully engage those with lived experience of diabetes and homelessness

Evaluation of Public Health Messages Promoting Early Detection of Dementia Among Adult Latinos With a Living Older Adult Parental Figure

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