‘Community control’ in CBPR: Challenges experienced and questions raised from the Trans PULSE project

Travers, Robb; Pyne, Jake; Bauer, Greta R.; Munro, Lauren; Giambrone, Brody; Hammond, Rebecca; Scanlon, Kyle

doi:10.1177/1476750313507093

Cited by 69 publications

(93 citation statements)

References 21 publications

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“…Our use of coding pairs for the analysis and the CCT for interpreting the themes through an iterative process illuminated four key lessons that strengthened our collaborative approach to data collection and analysis:

CBPR recognizes the value and expertise that all partners contribute, 2 but it is critical to build community capacity to facilitate equitable participation in research. 8 Similar to previous studies, 6,12 we found that some community partners considered the academic partners to be the “experts” in qualitative data analysis and therefore, better suited to lead and complete this step in the research process. Given this dynamic, it was important to develop a process to enable GHDC members with diverse perspectives, training, and experiences to work in tandem on data analysis and interpretation.

…”

Section: Lessons Learnedsupporting

confidence: 84%

“…8 Similar to previous studies, 6,12 we found that some community partners considered the academic partners to be the “experts” in qualitative data analysis and therefore, better suited to lead and complete this step in the research process. Given this dynamic, it was important to develop a process to enable GHDC members with diverse perspectives, training, and experiences to work in tandem on data analysis and interpretation.…”

Section: Lessons Learnedsupporting

confidence: 84%

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Community-Guided Focus Group Analysis to Examine Cancer Disparities

Schaal¹,

Lightfoot²,

Black³

et al. 2016

cpr

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Background Accountability for Cancer Care through Undoing Racism and Equity (ACCURE) is a systems-change intervention addressing disparities in treatment initiation and completion and outcomes for early stage Black and White breast and lung cancer patients. Using a community-based participatory research approach, ACCURE is guided by a diverse partnership involving academic researchers, a non-profit community-based organization, its affiliated broader-based community coalition, and providers and staff from two cancer centers. Objectives This paper describes the collaborative process our partnership used to conduct focus groups and to code and analyze the data to inform two components of the ACCURE intervention: 1) a “power analysis” of the cancer care system, and 2) the development of the intervention’s training component, Healthcare Equity Education and Trainings, for cancer center providers and staff. Methods Utilizing active involvement of community and academic partners at every stage in the process, we engaged Black and White breast and lung cancer survivors at two partner cancer centers in eight focus group discussions organized by race and cancer type. Participants were asked to describe “pressure point encounters” or critical incidents during their journey through the cancer system that facilitated or hindered their willingness to continue treatment. Community and academic members collaborated to plan and develop materials, conduct focus groups, and code and analyze data. Conclusions A collaborative qualitative data analysis process strengthened the capacity of our community-medical-academic partnership, enriched our research moving forward, and enhanced the transparency and accountability of our research approach.

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…”

Section: Lessons Learnedsupporting

confidence: 84%

Section: Lessons Learnedsupporting

confidence: 84%

Community-Guided Focus Group Analysis to Examine Cancer Disparities

Schaal¹,

Lightfoot²,

Black³

et al. 2016

cpr

View full text Add to dashboard Cite

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“…Using a participatory analysis approach enriched and contextualized the research findings, provided an opportunity to engage with research participants in the co-construction of knowledge, 27 and is guided by current guidelines on ethical research with trans people. 28 Two participants were excluded from the analysis because they reported never accessing women-specific housing (e.g., shelters) or health services (e.g., detoxification, drop-in centers). All 32 participants had been assigned male sex at birth; however, not all identified as women and many used more than one category to describe their gender.…”

Section: Methodsmentioning

confidence: 99%

Experiences of Trans Women and Two-Spirit Persons Accessing Women-Specific Health and Housing Services in a Downtown Neighborhood of Vancouver, Canada

et al. 2016

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Purpose: Little is known about trans womens' experiences accessing gender-segregated health and housing services, particularly services for marginalized individuals living in poverty. As such, we conducted a qualitative investigation into experiences of accessing women-specific health and housing services among trans women and two-spirit persons in a downtown neighborhood of Vancouver, Canada. Methods: Between June 2012 and May 2013 interviews were conducted with 32 trans women and two-spirit individuals who had accessed women-specific health and/or housing services. Participants were recruited from four open prospective cohorts of sex workers and individuals who use drugs. Interview data were analyzed using a participatory analysis approach with two participants who were hired as research assistants. Results: Participants were generally able to access women-specific services in the neighborhood. However, there were reports of discrimination related to gender identity, discrimination based on gender expression (e.g., requirement of a feminine gender expression), and lack of staff intervention in harassment from other service users. Conclusion: Trans women and two-spirit persons in our study relied upon services for their health and safety and, therefore, exclusion from women-specific services had potentially severe adverse consequences such as homelessness and sexual violence. Recommendations to improve accessibility, including policy development and procedural recommendations, are put forth.

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“…She ultimately finds both exclusionary and hopeful practices there. The TransPULSE network, committed to ‘building our communities through research’ is a community‐based research project that seeks to identify and respond to issues faced by trans communities particularly in terms of access to health and social services (TransPULSE, ; see also Travers et al ., ). The project has been led and implemented by Trans community members with allies.…”

mentioning

confidence: 97%

Critique as delight, theory as praxis, mucking in

Wright

2017

Geographical Research

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In this commentary, I call for a regenerative approach to critique, a ‘good judgment’ through which academics might nurture the capacity to name and undermine racist, patriarchal, colonising, and homophobic practices, while working relationally to create new worlds. Drawing from Eva Sedgwick's critique of ‘paranoid theory’ and taking inspiration from post‐colonial, feminist, and anti‐racist social movements and research collectives, I consider what it might mean to be an academic who ‘mucks in’, who is not afraid of putting her hands in the dung, and who moves reflexively towards, rather than away from, difficult questions and risky engagements.

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‘Community control’ in CBPR: Challenges experienced and questions raised from the Trans PULSE project

Cited by 69 publications

References 21 publications

Community-Guided Focus Group Analysis to Examine Cancer Disparities

Community-Guided Focus Group Analysis to Examine Cancer Disparities

Experiences of Trans Women and Two-Spirit Persons Accessing Women-Specific Health and Housing Services in a Downtown Neighborhood of Vancouver, Canada

Critique as delight, theory as praxis, mucking in

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