Community Data Collection with Children of Mothers Living with<scp>HIV</scp>: Boundaries of the Researcher Role

LeCroix, Rebecca H.; Goodrum, Nada M.; Hufstetler, Schell; Armistead, Lisa

doi:10.1002/ajcp.12193

Cited by 6 publications

(4 citation statements)

References 12 publications

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“…They outline the careful, step‐by‐step decision‐making process through which they created a system of proactive outreach to students that protected their privacy and respected their autonomy. Similarly, in LeCroix, Goodrum, Hufstetler, and Armistead's (2017*) randomized‐control evaluation of a community intervention for mothers living with HIV, many of the mothers and children disclosed significant depression and/or suicidal ideation. LeCroix and colleagues worked with their local IRB to develop a safety protocol that would connect participants to community resources, but they worried whether such efforts were sufficient.…”

Section: Beneficencementioning

confidence: 97%

Complicating Narratives: Defining and Deconstructing Ethical Challenges in Community Psychology

Campbell

Morris

2017

American J of Comm Psychol

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In this concluding essay, we review the case studies presented in this Special Issue and examine whether community psychology has a distinctive approach to defining and resolving the core ethical canons of the Belmont Report (1979): Respect for Persons, Beneficence, and Justice. For two of these Principles-Respect for Persons and Beneficence-community psychologists elaborate upon and extend their definitions to consider their meaning in community-based, social justice-oriented research. The field's approach to Respect for Persons is multilevel in nature; in addition to respecting individuals and their diverse identities, we also have obligations to respect our community partnerships, the communities with whom we work, and the populations and cultures represented in our work. Similarly, for community psychologists, Beneficence is a multilevel construct that considers risks and benefits at the group, community, and cultural levels of analysis. With respect to Justice, community psychologists' views of our ethical responsibilities are qualitatively different in meaning from the original Belmont Report and from disciplinary-specific interpretations of this principle in ethical guidance documents from psychology, sociology, and evaluation. Our valuing of social change demands that we contribute to individual and group empowerment and liberation, and in so doing, that we avoid collusion with oppressive systems. Thus, we define our ethical responsibilities for promoting Justice as more action-oriented than do other disciplines. The essay closes with an exploration of future directions for developing a comprehensive ethical framework for community psychology.

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Section: Beneficencementioning

confidence: 97%

Complicating Narratives: Defining and Deconstructing Ethical Challenges in Community Psychology

Campbell

Morris

2017

American J of Comm Psychol

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“…Scholars disagree about the appropriate boundaries of the researcher–participant relationship and what they can and cannot provide for participants who demonstrate significant need for supports and services (Kendall & Halliday, 2014). For example, in their study of mothers living with HIV and their children, LeCroix, Goodrum, Hufstetler, and Armistead (2017) struggled with this issue when they found that child participants endorsed suicidal ideation at higher rates than anticipated. Although researchers involved in the study were clinically trained to respond to these mental health needs, the research team determined that such interventions were outside their roles as researchers.…”

Section: A Trauma-informed Approach To Data Collectionmentioning

confidence: 99%

A Trauma-Informed Approach to Sexual Violence Research Ethics and Open Science

Campbell

Goodman‐Williams

Javorka

2019

J Interpers Violence

102

121

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The practice of ethics in social science research is a reflexive process of self-review to define a profession’s collective responsibility in the face of changing norms and expectations. In recent years, we have seen transformative changes in how society thinks about supporting sexual assault survivors, and how the scientific community thinks about our obligations to society. Decades of research on trauma and its impact has raised awareness about the needs of victimized individuals, giving rise to the trauma-informed practice movement, which emphasizes that service providers must center survivors’ well-being in all interactions, decisions, and program practices. The field of sexual assault research helped give rise to this movement and provides empirical support for its guiding tenets, and in this article, we explore how to bring these ideas full circle to begin articulating trauma-informed principles for research. A trauma-informed perspective on research challenges scientists to go beyond the requirements of the Belmont Report (1979) and institutional review boards' (IRB) regulations to develop research procedures that fully support survivors’ choice, control, and empowerment. Such reflection on participants’ rights is particularly important given the open science movement sweeping academia, which calls on scientists to share their data publicly to promote transparency, replication, and new discoveries. Disseminating data could pose significant safety, privacy, and confidentiality risks for victims of sexual assault, so we need to evaluate what open science means within a trauma-informed framework. In this article, we examine three key stages of the research process—participant recruitment, data collection, and dissemination—and consider how trauma-informed principles could help, but also could complicate, research practices. We explore these tensions and offer potential solutions so that research on sexual trauma embodies trauma-informed practice.

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“…For example, the researchers may be surprised by unexpectedly high levels of suicidal behaviors in their samples. LeCroix et al (2017) found in a study about mothers living with HIV and their children, that the latter endorsed suicidal ideation at higher rates than anticipated by the research team. Although the study team was trained to respond to these mental health needs, the researchers determined that such interventions were outside their research roles.…”

Section: Infusing the Ti Model Into Suicide Researchmentioning

confidence: 78%

Infusing the trauma-informed approach in youth suicide research: Lessons from the field.

Quijada¹,

Inostroza²,

Vaccari³

et al. 2021

American Journal of Orthopsychiatry

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Adolescent suicide is a serious public health problem in Chile. Given the high prevalence of suicidal behaviors and suicide, youth suicide researchers must approach participants, families, and communities with care. Special attention must be given to suicide-related trauma among survivors of suicidal behaviors and of suicide. In this article, we discuss how investigators can infuse the trauma-informed model in their work. Our discussion is organized around research stages and tasks: study design, recruitment, data collection and analysis, and care for the research team. We illustrate the integration of the trauma-informed (TI) model key elements and principles with examples from our work in youth suicide research. We posit that infusing the TI model in research aligns with the ethical mandate of beneficence. Our goal is to help other researchers reflect on how to design and implement TI informed research that is attuned to participants, staff, and communities. Public Policy Relevance StatementSuicide is the leading cause of death among Chilean adolescents. This manuscript highlights lessons learned from the design and implementation of public funded trauma-informed school-based suicidal behaviors study in Chile. Our findings support the need to implement trauma-informed suicide research in communities affected by high rates of suicidal behaviors and suicide.A dolescent suicide and suicidal behaviors are a serious public health concern in Chile. Suicide is the leading cause of death among youth between the ages of 15 and 24 years (Araya, 2019). Chile's youth suicide prevalence of 10.3 suicides per 100,000 youth is among the highest in the world (UNICEF Office of Research, 2017). The suicide rate for people ages 15-19 years increased from 8.6 to 12.9 for every 100,000 people between 2000 and 2010 (Araya, 2019). The findings of international studies describe a similar pattern. For example, the Organisation for Economic Co-Operation and Development ( 2015) reported that the deaths by suicide among Chilean teens increased from 4.9 to 10.8 between 2000 and 2011. With variations by geographic area and year of data collection, between 15% and 57% of teens surveyed reported suicidal ideation, and between 5% and 25% reported life time prevalence of suicide attempts (

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Community Data Collection with Children of Mothers Living withHIV: Boundaries of the Researcher Role

Cited by 6 publications

References 12 publications

Complicating Narratives: Defining and Deconstructing Ethical Challenges in Community Psychology

Complicating Narratives: Defining and Deconstructing Ethical Challenges in Community Psychology

A Trauma-Informed Approach to Sexual Violence Research Ethics and Open Science

Infusing the trauma-informed approach in youth suicide research: Lessons from the field.

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