Community-engaged healthcare model for currently under-served individuals involved in the healthcare system

Maguire, Nick; Gearing, Robin E.; Cheung, Monit; Price, Daniel M.; Narendorf, Sarah C.; Buck, David

doi:10.1016/j.ssmph.2021.100905

Cited by 4 publications

(4 citation statements)

References 43 publications

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“…Community health partners can offer culturally specific resources accessible in the communities where patients live and work. Community health workers with cultural knowledge and experience can bridge patients’ understanding of medical and financial issues 103 …”

Section: Casementioning

confidence: 99%

Navigating financial toxicity in patients with cancer: A multidisciplinary management approach

Smith

Banegas

Acquati

et al. 2022

CA A Cancer J Clinicians

126

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Approximately one-half of individuals with cancer face personal economic burdens associated with the disease and its treatment, a problem known as financial toxicity (FT). FT more frequently affects socioeconomically vulnerable individuals and leads to subsequent adverse economic and health outcomes. Whereas multilevel systemic factors at the policy, payer, and provider levels drive FT, there are also accompanying intervenable patient-level factors that exacerbate FT in the setting of clinical care delivery. The primary strategy to intervene on FT at the patient level is financial navigation. Financial navigation uses comprehensive assessment of patients' risk factors for FT, guidance toward support resources, and referrals to assist patient financial needs during cancer care. Social workers or nurse navigators most frequently lead financial navigation. Oncologists and clinical provider teams are multidisciplinary partners who can support optimal FT management in the context of their clinical roles. Oncologists and clinical provider teams can proactively assess patient concerns about the financial hardship and employment effects of disease and treatment. They can respond by streamlining clinical treatment and care delivery planning and incorporating FT concerns into comprehensive goals of care discussions and coordinated symptom and psychosocial care. By understanding how age and life stage, socioeconomic, and cultural factors modify FT trajectory, oncologists and multidisciplinary health care teams can be engaged and informative in patient-centered, tailored FT management. The case presentations in this report provide a practical context to summarize authors' recommendations for patient-level FT management, supported by a review of key supporting evidence and a discussion of challenges to mitigating FT in oncology care.

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Section: Casementioning

confidence: 99%

Navigating financial toxicity in patients with cancer: A multidisciplinary management approach

Smith

Banegas

Acquati

et al. 2022

CA A Cancer J Clinicians

126

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“…40% ( n = 37) of the realist reviews cited use of an advisory group at some stage (as per the working definition for this study, notably other terminology was often reported) [14–17, 25–61]. 60% ( n = 56) did not mention the use of an advisory group [62–117]. Of those that did not mention an advisory group, seven reviews [62–64] did report participant involvement that did not fulfill the criteria of an advisory group, i.e., participants were used as data sources but did not advise on the review.…”

Section: Resultsmentioning

confidence: 99%

Advisory groups in realist reviews: Systematically mapping current research and recommendations for practice

Power,

Dada,

Booth

et al. 2024

Cochrane Evidence Synthesis and Methods

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IntroductionRealist reviews may involve groups or panels external to the research team who provide external and independent perspectives informing the review based on their experience of the topic area. These panels or groups are termed in this study as an “advisory group.” This study aims to map current practice of advisory groups in realist reviews and provide guidance for planning and reporting.MethodsA “best‐fit” framework synthesis methodology was used by first searching for a best‐fit framework and then conducting a systematic search to identify a sample of realist reviews and rapid realist reviews (RRRs) from the most recent year, 2021. Nine databases were searched: CINAHL Complete, Cochrane, Embase, ERIC, MEDLINE, PsycInfo, Social Services Abstracts, Sociological Abstracts, and Web of Science Core Collection. Screening and data extraction was conducted by two researchers. The chosen best‐fit framework (ACTIVE framework) informed the data extraction tool.ResultsOne hundred and seven reviews (93 realist reviews, 14 RRRs) were identified for inclusion. Of these, 40% (n = 37) of realist reviews and 71.5% (n = 10) of RRRs mentioned use of an advisory group, though there was considerable variation in terminology used. Individuals in advisory groups were involved at varying stages of the review and tended to bring experience in the topic area from the perspective of (i) a lived experience, i.e., patients, carers, family members (n = 15 realist reviews; n = 4 RRRs); (ii) professional experience, such as healthcare professionals (n = 20 realist reviews; n = 6 RRRs); or (iii) policy or research experience in the topic area (n = 19 realist reviews; n = 7 RRRs).ConclusionsThis study proposes a definition of advisory groups, considerations for advisory group use, and suggested items for reporting. The purpose of the advisory group should be carefully considered when deciding on their use in a realist review.

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“…In addition, given Singapore's diverse ethnic makeup, it is imperative to continue developing tailored outreach and education initiatives that incorporate culturally sensitive materials and multilingual resources, to further enhance accessibility and health literacy among different ethnic groups 52 . Lastly, effective policies should be formulated to facilitate collaboration and partnerships with local community organizations, recognizing their pivotal role in reaching out to residents and potentially serving as key facilitators in ensuring ongoing follow-up after health screenings 53,54 .…”

Section: Discussionmentioning

confidence: 99%

Socioeconomic and behavioral determinants of non-compliance with physician referrals following community screening for diabetes, hypertension and hyperlipidemia: a mixed-methods study

Yoon,

Goh,

Phang

et al. 2023

Sci Rep

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Early detection of undiagnosed diabetes, hypertension or hyperlipidemia through screening could reduce healthcare costs resulting from disease complications. To date, despite ample research on the factors linked to the uptake of community health screening programs, little attention has been directed at delayed or incomplete follow-up after positive outcomes are identified in community screening tests. This study aimed to investigate the socioeconomic and behavioral factors that influence non-compliance with recommendations for primary care physician referrals, following community-based screening for diabetes, hypertension and hyperlipidemia. A parallel mixed-methods study was conducted. For quantitative data, we performed multivariable analysis on community-based chronic disease screening data. The qualitative component involved semi-structured interviews with individuals with both non-compliance and compliance with referral recommendations. Thematic data analysis was undertaken using the Theoretical Domains Framework (TDF). The quantitative analysis showed that older age (OR = 0.92, 95%CI [0.89–0.96]), non-Chinese ethnicity (OR = 0.24; 95% CI [0.08–0.44]) and residing in 5-room public/ private housing (OR = 0.40; 95% CI [0.14–0.74]) were associated with lower odds of non-compliance with referral recommendations. Thematic analysis identified multiple behavioral-level determinants acting as enablers or barriers within 7 TDF domains: awareness of health risks after receiving screening results, self-management orientation and behavioral control, fear of formal diagnosis and concerns about healthcare cost, optimistic belief driven by the lack of symptoms, interpersonal relationship and social obligations, aversion to medication, communication at the result collection and sense of uncertainty regarding self-scheduling of appointment. Findings provide valuable implications for the development of interventions aimed at improving adherence to referral recommendation. Future endeavors should include culturally sensitive outreach, evidence-based information dissemination, family-centered education, positive public health messaging, brief counseling during result collection and an opt-out appointment system to enhance follow-up care.

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Community-engaged healthcare model for currently under-served individuals involved in the healthcare system

Cited by 4 publications

References 43 publications

Navigating financial toxicity in patients with cancer: A multidisciplinary management approach

Navigating financial toxicity in patients with cancer: A multidisciplinary management approach

Advisory groups in realist reviews: Systematically mapping current research and recommendations for practice

Socioeconomic and behavioral determinants of non-compliance with physician referrals following community screening for diabetes, hypertension and hyperlipidemia: a mixed-methods study

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