Community-engaged research in translational science: Innovations to improve health in Appalachia

Abstract

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How is who: evidence as clues for action in participatory sustainability science and public health research

“…CBPR equitably engages communities as co-creators (e.g., community members, organization representatives) in all aspects of the research process (from design to implementation and evaluation) (Wallerstein & Duran, 2010 ). CBPR has been applied to numerous participatory and collaborative projects and programs, in relation to multiple health issues (e.g., preventive medicine and sexually transmitted diseases) and a wide variety of communities (e.g., women in difficult situations and sexual or gender minorities) (Frahsa et al, 2011 ; Rhodes et al, 2021a ) (see Sect. 7 ) Collaboration and co-creation : CBPR proposes that context (e.g., social determinants of health or historical legacies of injustice) grounds collaborative dynamics between researchers and communities (e.g., from structural to individual and relational), which can impact and change the design of research and interventions contributing to specific outcomes (e.g., improved community capacities and health outcomes) (Belone et al, 2016 ) .…”

“…CBPR equitably engages communities as co-creators (e.g., community members, organization representatives) in all aspects of the research process (from design to implementation and evaluation) (Wallerstein & Duran, 2010 ). CBPR has been applied to numerous participatory and collaborative projects and programs, in relation to multiple health issues (e.g., preventive medicine and sexually transmitted diseases) and a wide variety of communities (e.g., women in difficult situations and sexual or gender minorities) (Frahsa et al, 2011 ; Rhodes et al, 2021a ) (see Sect. 7 )…”

“…In another example, CBPR was used to address the disproportionally high rates of Sexually Transmitted Infections (STIs) and HIV among LGBTQI + people (especially men who have sex with men and transgender women of color) in North Carolina (United States) (Rhodes et al, 2012 ; 2021a ). A series of studies aimed to identify needs, priorities and assets related to STI/HIV prevention, screening and treatment as well as to social determinants of health among LGBTQI + in North Carolina (Mann-Jackson et al, 2021 ).…”