Community engagement strategies to promote recruitment and participation in clinical research among rural communities: A narrative review

Brockman, Tabetha A.; Shaw, Olivia; Wiepert, Liana; Nguyen, Quang; Kelpin, Sydney S.; West, Ian; Albertie, Monica; Williams, Shantel; Abbenyi, Adeline; Stephenson, Noreen; Almader‐Douglas, Diana; Patten, Christi A.

doi:10.1017/cts.2023.16

Cited by 13 publications

(5 citation statements)

References 76 publications

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“…Recognizing the unique characteristics of a targeted population and addressing potential barriers to access are crucial steps in ensuring comprehensive and inclusive recruitment. In many settings, these factors are best addressed through community engagement 11,12,13,14 . By involving community leaders in the design and implementation of these outreach activities, our SMC team played a pivotal role in building local empowerment and fostering community trust in both the research and the study team.…”

Section: Discussionmentioning

confidence: 99%

Community Engagement and Local Collaboration: A Framework to Enhance Women’s Participation in a COVID-19 Vaccine Immunogenicity Study in Liberia

Wilson,

Dennis,

Nyuangar

et al. 2024

Preprint

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Background Morbidity and mortality from the COVID-19 pandemic has spurred urgent COVID-19 vaccination efforts worldwide. In April 2021, Liberia launched its COVID-19 vaccination campaign, achieving 63% vaccination coverage in Montserrado County by July 2022. In August 2021, the Partnership for Research on Vaccines and Infectious Diseases in Liberia initiated the International Study on COVID-19 Vaccines to Assess Immunogenicity, Reactogenicity, and Efficacy. This study was funded by the US National Institutes of Health and is an observational study to evaluate the immune response to COVID-19 vaccines over two years across multiple countries, including Liberia. However, health facility-based recruitment targeting vaccinated individuals revealed low enrollment of women in Liberia, underscoring the need to enhance women's participation in the study. Methods A mitigation plan was developed. Stakeholder mapping and advocacy meetings were conducted to garner community support and align the study with local health priorities. Media engagements were held to promote study recruitment. Mobile teams were deployed to local community centers to provide education, dispel rumors, and facilitate vaccination and study enrollment. Results Listening sessions identified barriers hindering women's vaccine acceptance and study enrollment, prompting the development of tailored strategies. Barriers to vaccinations included women's inability to access vaccination sites and rumors about vaccine effects on reproduction. Thirteen community meetings were held, resulting in an increase in the proportion of women in the study from 34% in September 2021 to 46% in April 2022. Conclusions Community-driven interventions facilitated vaccine uptake and increased participation in our study, emphasizing the significance of ongoing community engagement in clinical research.

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Section: Discussionmentioning

confidence: 99%

Community Engagement and Local Collaboration: A Framework to Enhance Women’s Participation in a COVID-19 Vaccine Immunogenicity Study in Liberia

Wilson,

Dennis,

Nyuangar

et al. 2024

Preprint

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“…The participants' comments also highlight the sporadic nature of access to community engagement opportunities, echoing the findings of Godonoga and Sporn (2023), who discuss the role of personal networks and chance in accessing community partnerships. Additionally, the bureaucratic processes and challenges in aligning research efforts with community needs resonate with the findings of Brockman et al (2023), who emphasise the barriers to effective community engagement in rural settings, including limited resources and communication channels. Overall, the participants' views underscore the importance of universities streamlining processes, enhancing communication, and building strong, collaborative relationships with local communities to maximise the impact of research on rural development.…”

Section: Sub-theme 3: Difficulty In Accessing Local Development Initi...mentioning

confidence: 95%

A model to reconstruct lecturer dilemma in balancing research and teaching responsibilities: A case of one rural university in South Africa

Tsotetsi,

Onaolapo

2024

IJRCS

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In this empirical study, we explore the challenges faced by lecturers at a rurally located university in South Africa as they try to balance the demands of research and teaching. Universities in rural areas play a crucial role in providing higher education access to underprivileged communities and promoting regional development. Our study is based on role theory, which emphasises the intended and unintended purposes of lecturer roles in society. Through a qualitative study of six lecturers, we examine the various issues they encounter when managing research and teaching commitments. We adopt a case study design within an interpretive paradigm. Semi-structured interviews were conducted with six new lecturers from the university to understand their personal experiences and perspectives on the tension between research and teaching, as well as the potential consequences for their research productivity. We use thematic analysis to analyse the collected data. The findings reveal that the participants at the university struggle to balance the demands of research and teaching, encountering various challenges in the process. These challenges include a lack of funding for research, limited research resources and facilities, and an overwhelming teaching workload. Based on the findings, the study suggests solutions and strategies to guide university administrators, policymakers, and lecturers in navigating this challenging landscape and fostering a supportive environment that values research and teaching contributions. This study contributes to the knowledge by proposing a model that lecturers can follow to balance their work roles.

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“…Culturally appropriate interventions: Community engagement allows for developing and implementing interventions sensitive to cultural beliefs, values, and practices. By incorporating community perspectives, interventions can be tailored to overcome cultural barriers and increase acceptance and uptake among diverse populations [ 16 ].…”

Section: Reviewmentioning

confidence: 99%

Addressing Cancer Disparities Through Community Engagement: Lessons and Best Practices

Kale¹,

Hirani²,

Vardhan³

et al. 2023

Cureus

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Cancer disparities continue to be a significant public health challenge, disproportionately affecting certain communities in terms of incidence, mortality, and access to quality care. Addressing these disparities requires a multifaceted approach that involves not only healthcare professionals and researchers but also the active participation and collaboration of the affected communities themselves. Community engagement has emerged as a promising strategy to reduce cancer disparities and promote health equity. This review article synthesizes the existing literature and examines the role of community engagement in addressing cancer disparities. It explores various approaches and best practices utilized in community engagement initiatives to empower and involve diverse populations in the fight against cancer. The review discusses key lessons learned from successful programs and identifies challenges faced in implementing such initiatives. The article highlights the importance of cultural competence, trust-building, and meaningful collaboration between stakeholders, including community leaders, healthcare providers, researchers, and policymakers. It emphasizes the significance of tailoring interventions to specific community needs, acknowledging cultural differences, and fostering a two-way exchange of knowledge and resources. Moreover, this review investigates the impact of community engagement on cancer prevention, early detection, treatment adherence, and survivorship outcomes. It sheds light on the role of community-based participatory research and other innovative strategies in generating evidence and facilitating the translation of research findings into real-world interventions. In conclusion, this review underlines the potential of community engagement in addressing cancer disparities and promoting health equity. By involving communities as active partners in cancer control efforts, healthcare systems can design more effective and sustainable interventions. This approach not only contributes to reducing cancer disparities but also fosters a sense of ownership and empowerment within the communities affected, paving the way for a more equitable and inclusive healthcare landscape.

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Community engagement strategies to promote recruitment and participation in clinical research among rural communities: A narrative review

Abstract: This version may be subject to change during the production process.

Cited by 13 publications

References 76 publications

Community Engagement and Local Collaboration: A Framework to Enhance Women’s Participation in a COVID-19 Vaccine Immunogenicity Study in Liberia

Community Engagement and Local Collaboration: A Framework to Enhance Women’s Participation in a COVID-19 Vaccine Immunogenicity Study in Liberia

A model to reconstruct lecturer dilemma in balancing research and teaching responsibilities: A case of one rural university in South Africa

Addressing Cancer Disparities Through Community Engagement: Lessons and Best Practices

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