Community Exercise: A New Tool for Personalized Parkinson’s Care or Just an Addition to Formal Care?

Domingos, Josefa; Dean, John Mark; Fernandes, Júlio Belo; Massano, João; Godinho, Catarina

doi:10.3389/fnsys.2022.916237

Cited by 7 publications

(6 citation statements)

References 36 publications

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“…At an institutional level, healthcare systems that offer this type of treatment are encouraged to increase the availability of community programs that allow individuals to benefit from these interventions (4).…”

Section: Discussionmentioning

confidence: 99%

“…From a financial perspective, it is suggested that evidence-based practices, including DTT, should be covered as a health insurance benefit. This ensures that DTT is recognized as a viable treatment option and included in the insurance coverage (4,48).…”

Section: Discussionmentioning

confidence: 99%

“…This trend underscores the urgent need for enhanced awareness, research, and interventions to address the multifaceted challenges posed by PD. As the global population continues to age, the burden of PD is expected to escalate, emphasizing the importance of proactive measures to improve diagnosis, treatment, and support for individuals affected by this debilitating condition (4). Pharmacological treatment for PD has proven beneficial, but patients still experience motor and non-motor symptoms that pose challenges for both patients and health professionals (1,5).…”

Section: Introductionmentioning

confidence: 99%

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Exploring barriers and educational needs in implementing dual-task training for Parkinson’s disease: insights from professionals

Domingos,

Dean,

Fernandes

et al. 2024

Front. Med.

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IntroductionThere is growing evidence suggesting that dual-task training benefits people with Parkinson’s disease (PD) on both physical and cognitive outcomes. However, there is no known data regarding professionals’ educational needs and barriers to its implementation. This study aimed to explore the barriers and educational needs of healthcare and exercise professionals to integrate dual-task training into their practice with people with PD.MethodsWe conducted a study based on a web survey. Social media channels were used to recruit a convenience sample of exercise and healthcare professionals working with people with PD.ResultsOf the 185 eligible responses, the majority were physiotherapists (68.1%) followed by occupational therapists (10.8%). Most participants attended Parkinson specific training (88.6%) and employed the treatments set up in individual one on-one sessions (58.9%). We identified several barriers to dual-task training implementation, with lack of time (to prepare materials), staying creative and/ or accessing new ideas, unreliable tools for measuring gains, and insufficient expertise as the most referred by participants. The educational needs most referred included accessing examples of interventions in general, knowing what strategies to apply and their application for people with different symptoms.DiscussionOur results highlight that professionals remain challenged to integrate dualtask training into PD clinical care mainly due to knowledge gaps, difficulties in accessing new ideas, and lack of time.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Exploring barriers and educational needs in implementing dual-task training for Parkinson’s disease: insights from professionals

Domingos,

Dean,

Fernandes

et al. 2024

Front. Med.

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“…Qualitative research involving participants and those supporting participation (e.g., spouses) can provide critical insights into the factors that support initiating and maintaining regular exercise. While previous studies have used such methods [26,33,34], there is limited understanding of the perceptions and experiences of PwP and their partners in exercise programmes delivered through a community-university partnership approach [26,35]. Insights generated from these discussions can support the planning, feasibility, and long-term sustainability of exercise programmes for PwP.…”

Section: Introductionmentioning

confidence: 99%

Group-based exercise for Parkinson’s: a qualitative study of participants and partners’ perceptions of an exercise class delivered through a community-university collaboration

Ferrusola-Pastrana,

Fullerton,

Meadows

2024

BMC Geriatr

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Background Community-based exercise programmes (CBEPs) offer a practical and viable approach to providing people with Parkinson’s disease (PwP) the opportunity to exercise as an ancillary therapeutic benefit to pharmacological management. This study explores the perceptions of exercising participants (PwP) and non-participating partners involved in an exercise class delivered through a community-university partnership. Methods Two separate focus group discussions were conducted: one with class participants (PwP: n = 7, H&Y scale I to III), and the other with non-participating partners of PwP (n = 4). Results Thematic analysis of the data identified that a range of physical, psychological and social factors were perceived to influence engagement: (1) actively taking control, (2) exercise is medicine for the mind and body, and (3) a community working together to promote exercise for parkinson’s. Participants and partners felt that the support from the group, including the instructors and student volunteers, empowered and supported PwP to proactively self-manage their health, enjoy exercise in an inclusive group setting, and develop strong social connections with others in the local Parkinson’s community. Support to exercise from healthcare professionals was identified as both an enabler and barrier to participation. Conclusions This study underscores the significance of a community-university partnership as a complementary therapeutic approach for PwP. It also provides critical reflections on its sustainability, including implications for how exercise is considered as medicine for PwP. Additionally, it offers practical recommendations to galvanise community participation and provide inclusive and viable exercise opportunities for PwP.

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“…It is vital to develop novel therapeutic approaches that are technically feasible, economically valuable, and culturally, ethically, and socially accepted for addressing fall risk and the FOF among this population ( 14–16 ).…”

Section: Introductionmentioning

confidence: 99%

Landing wise program: feasibility study protocol for Parkinson’s disease

Fernandes,

Domingos,

Família

et al. 2023

Front. Med.

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Regardless of the benefits of fall prevention programs, people with Parkinson’s disease (PD) will still fall. Therefore, it is crucial to explore novel therapeutic approaches that are well-accepted and effective for addressing fall risk and the fear of falls among this population. The present study aims to assess the feasibility of the Landing Wise program as a therapeutic intervention for reducing the fear of falling in people with PD. A mixed-methods study will be conducted using convenience sampling to recruit 20 people with PD with a moderate concern of falling from a Parkinson’s Patients Association. In addition to usual care, participants will attend 2 days per week, 90 min group sessions for 8 weeks. The intervention combines group cognitive behavioral intervention with the training of safe landing strategies. Feasibility will be assessed by six key domains (recruitment strategy and rates, enrollment, retention, acceptability, reasons for decline/withdrawal, and adverse events). Quantitative data will be analyzed using descriptive statistics to characterize the sample, followed by inferential statistics to evaluate differences in the Short Falls Efficacy Scale-International Scale, Movement Disorder Society Unified Parkinson’s Disease Rating Scale, Timed Up Go, 6-Minutes Walking Distance, and fall frequency and severity scores between baseline and final assessment. Qualitative data will be analyzed using an inductive thematic analysis process. There is a growing interest in developing new effective therapeutic approaches for people with PD. If proven program feasibility, this study precedes a randomized controlled trial to establish the effectiveness of the Landing Wise program.

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Community Exercise: A New Tool for Personalized Parkinson’s Care or Just an Addition to Formal Care?

Cited by 7 publications

References 36 publications

Exploring barriers and educational needs in implementing dual-task training for Parkinson’s disease: insights from professionals

Exploring barriers and educational needs in implementing dual-task training for Parkinson’s disease: insights from professionals

Group-based exercise for Parkinson’s: a qualitative study of participants and partners’ perceptions of an exercise class delivered through a community-university collaboration

Landing wise program: feasibility study protocol for Parkinson’s disease

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