Community lung health service design for COPD patients in China by the Breathe Well group

Pang, Hui; Pan, Zihan; Adams, Rachel; Duncan, Eleanor; Chi, Cheng; Kong, Xiangzhi; Adab, Peymané; Cheng, Kar Keung; Cooper, Brendan; Sousa, Jaime Correia de; Dickens, Andy; Enocson, Alexandra; Farley, Amanda; Gale, Nicola; Jolly, Kate; Jowett, Sue; Maglakelidze, Mariam; Maghlakelidze, Tamaz; Martins, Sonia Maria; Sitch, Alice; Stavric, Katarina; Stelmach, Rafaël; Turner, Alice; Williams, Siân; Jordan, Rachel

doi:10.1038/s41533-022-00286-8

Cited by 4 publications

(1 citation statement)

References 51 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Despite the high burden of people with undiagnosed COPD (estimated 90 million) [ 26 ] and the national priority [ 27 ] for early identification of this disease, primary care providers still lack the capacity, incentives and tools to diagnose and treat COPD [ 28 , 29 ]. Breathe Well researchers in China assessed cost-effective screening strategies for identifying undiagnosed COPD in primary care [ 30 ] and explored management among patients and general practitioners (GPs).…”

Section: Country Case Studiesmentioning

confidence: 99%

Engaging stakeholders to level up COPD care in LMICs: lessons learned from the “Breathe Well” programme in Brazil, China, Georgia, and North Macedonia

Fernandes,

Williams,

Adab

et al. 2024

BMC Health Serv Res

Self Cite

View full text Add to dashboard Cite

Background Effective stakeholder engagement in health research is increasingly being recognised and promoted as an important pathway to closing the gap between knowledge production and its use in health systems. However, little is known about its process and impacts, particularly in low-and middle-income countries. This opinion piece draws on the stakeholder engagement experiences from a global health research programme on Chronic Obstructive Pulmonary Disease (COPD) led by clinician researchers in Brazil, China, Georgia and North Macedonia, and presents the process, outcomes and lessons learned. Main body Each country team was supported with an overarching engagement protocol and mentored to develop a tailored plan. Patient involvement in research was previously limited in all countries, requiring intensive efforts through personal communication, meetings, advisory groups and social media. Accredited training programmes were effective incentives for participation from healthcare providers; and aligning research findings with competing policy priorities enabled interest and dialogue with decision-makers. The COVID-19 pandemic severely limited possibilities for planned engagement, although remote methods were used where possible. Planned and persistent engagement contributed to shared knowledge and commitment to change, including raised patient and public awareness about COPD, improved skills and practice of healthcare providers, increased interest and support from clinical leaders, and dialogue for integrating COPD services into national policy and practice. Conclusion Stakeholder engagement enabled relevant local actors to produce and utilise knowledge for small wins such as improving day-to-day practice and for long-term goals of equitable access to COPD care. For it to be successful and sustained, stakeholder engagement needs to be valued and integrated throughout the research and knowledge generation process, complete with dedicated resources, contextualised and flexible planning, and commitment.

show abstract

Section: Country Case Studiesmentioning

confidence: 99%

Engaging stakeholders to level up COPD care in LMICs: lessons learned from the “Breathe Well” programme in Brazil, China, Georgia, and North Macedonia

Fernandes,

Williams,

Adab

et al. 2024

BMC Health Serv Res

Self Cite

View full text Add to dashboard Cite

show abstract

Applying the consensus reporting items for studies in primary care checklist to improve reporting quality in primary care research in China

Yang,

Wang,

Chen

et al. 2024

Chinese General Practice Journal

View full text Add to dashboard Cite

Strengthening Clinician-Researchers’ Communication and Knowledge Translation Skills: An Innovative Game Model From the Breathe Well Group

Williams,

Fernandes,

Adab

et al. 2024

INQUIRY

View full text Add to dashboard Cite

Communication is a core component of a clinician’s role; however, when clinicians conduct research, communicating the emerging findings and recommendations to different types of stakeholders can be unfamiliar territory. Communicating research to advocate for change can be even more challenging. Clinician researchers seeking to be agents for change need to conceive and craft specific, evidence-based messages and communicate these effectively to different stakeholders to negotiate action. As part of a global health research program, we developed and tested a novel game-based model to strengthen the communication skills of clinician researchers, from 4 countries, for improving services for chronic obstructive pulmonary disease. This model focused on communication with 3 key stakeholder groups for knowledge translation: Patients/carers, healthcare providers and policy makers/healthcare managers. Delivered through a series of facilitated, online meetings, this model consisted of 2 parts: developing and rehearsing advocacy messages with coaching support, and then testing them with a panel of 3 representative stakeholders, and an audience of fellow researchers. All the country teams reported increased confidence in crafting advocacy messages for specific stakeholders and have applied lessons learned from the model. Delivering this model within a global health research program requires mentoring, time, commitment, resources and translation support to address language barriers. It offers an exemplar to build the communication skills of clinician and non-clinician researchers so that they can go beyond dissemination toward translation of evidence into policy and practice.

show abstract

Community lung health service design for COPD patients in China by the Breathe Well group

Cited by 4 publications

References 51 publications

Engaging stakeholders to level up COPD care in LMICs: lessons learned from the “Breathe Well” programme in Brazil, China, Georgia, and North Macedonia

Engaging stakeholders to level up COPD care in LMICs: lessons learned from the “Breathe Well” programme in Brazil, China, Georgia, and North Macedonia

Applying the consensus reporting items for studies in primary care checklist to improve reporting quality in primary care research in China

Strengthening Clinician-Researchers’ Communication and Knowledge Translation Skills: An Innovative Game Model From the Breathe Well Group

Contact Info

Product

Resources

About