Community voices: barriers and opportunities for programmes to successfully prevent vertical transmission of HIV identified through consultations among people living with HIV

Anderson, Ginna; Caswell, Georgina; Edwards, Olive; Hsieh, Amy; Hull, Beri; Mallouris, Christoforos; Mason, Naisiadet; Nöstlinger, Christiana

doi:10.7448/ias.15.4.17991

Cited by 8 publications

(5 citation statements)

References 1 publication

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“…All the participants said that the counselling was mainly provided during pregnancy period when women were attending the ANC visits. The finding of this study is consistent with the results from other studies conducted in developing countries [30] [31], including South Africa [32]. For example, Anderson et al's findings reported existence of postnatal counselling gaps in Jamaica [31].…”

Section: Health Service Perception Barrierssupporting

confidence: 92%

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Postnatal PMTCT: Women’s Perception Barriers at a Johannesburg Health Centre, South Africa

Ngyende¹,

Bucyubaruta²,

Mugero³

2020

Health

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Background: Maximising women's participation and ensuring optimal outcomes will require that the women's perception barriers to postnatal prevention of Mother-to-Child Transmission (PMTCT) programme of HIV be addressed. However, little is known about women's perception barriers to postnatal PMTCT programme of HIV and how these barriers affect the women's health seeking behavior and uptake. Objective: This study sought to explore the women's perception barriers to postnatal PMTCT programme at a Johannesburg Community Health Centre during April-May, 2016. Methods: A qualitative study on 30 women (aged 20-39 years) was conducted at a Johannesburg community health (CHC), South Africa, during May-June 2016, after obtaining their consent. The data was analysed thematically to understand women's perception barriers to postnatal PMTCT programme. Results: The study found that inadequate counselling was perceived to be the single key health service barrier to PMTCT programme. At the individual level, adherence to ART was considered the leading women's barriers to the postnatal PMTCT. Exclusive breastfeeding was, however, perceived as important women's barriers to the postnatal PMTCT. Inadequate emotional support from families and community was a noteworthy women's perception barrier to the programme. Conclusion: The study makes two recommendations: firstly, the staff, programme managers and health policy makers need to be aware of the women's perception barriers to the postnatal PMTCT programme. Secondly, the programme should be strengthened by addressing perception barriers to the programme to enhance women participation to ensure optimal outcomes for women and their infants.

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Section: Health Service Perception Barrierssupporting

confidence: 92%

“…For example, Anderson et al's findings reported existence of postnatal counselling gaps in Jamaica [31]. In Uganda, Larsson et al's study found inadequate postnatal PMTCT counseling [30]. Similarly, Chopra et al's study reported the poor quality of the postnatal PMTCT counselling in South Africa [32].…”

Section: Health Service Perception Barriersmentioning

confidence: 99%

Postnatal PMTCT: Women’s Perception Barriers at a Johannesburg Health Centre, South Africa

Ngyende¹,

Bucyubaruta²,

Mugero³

2020

Health

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“…Similar to this study, a review conducted in Africa found that patients want a better understanding of their medications and that stigma may prevent access to information (Patel & Dowse, 2013). Other studies pertaining to HIV also found that information regarding healthy lifestyles, emotional health, or general wellness issues would be useful to patients (Anderson et al, 2012; Huber & Cruz, 2000; Julien & Fourie, 2015). Across the international literature, patients identified different sources of information but generally indicated that providers are either the best sources or one of the biggest barriers to effective information exchange.…”

Section: Discussionmentioning

confidence: 99%

Health-information needs of HIV-positive adults in Latin America and the Caribbean: an integrative review of the literature

Stonbraker

Larson

2016

AIDS Care

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An assessment of information needs is essential for care planning for patients living with chronic diseases such as human immunodeficiency virus (HIV). The extent to which these assessments have been conducted in Latin America and the Caribbean (LAC) is unknown. The purpose of this study was, therefore, to identify, evaluate, and summarize what research has been conducted to examine patient perceptions of their health-information needs among adults living with HIV in LAC. Using an integrative review methodology, a literature search of six databases was conducted in April and May 2015. Inclusion criteria were peer-reviewed articles published in English or Spanish that assessed the information needs of HIV-positive patients living in LAC. The quality of included articles was assessed and relevant characteristics of each article were extracted, compared, and presented. Searches returned 1885 citations, 11 of which met inclusion criteria. Studies included were conducted in 8 of 33 countries, used multiple research designs, demonstrated varying needs between populations, and found numerous unmet information needs. Information about HIV in general, methods of infection transmission, antiretroviral medications, other sexually transmitted diseases, and effective coping mechanisms were the most commonly mentioned needs. Healthcare providers were the largest and most reliable source of health information for many participants and it was emphasized that in order for health education to be effective, programs should include both individual and group components. Patients indicated that they may have difficulty processing and using information through an incorrect understanding of medications, not changing risk behaviors, and by stating that information can be overwhelming or poorly communicated. Further research on information needs is warranted so that healthcare providers and organizations may provide the information patients need to appropriately manage their health.

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“…Segregated health care can feel jarring to the HIVaffected couple (Anderson et al, 2012;Beckerman, 2002;Davis & Flowers, 2011;Gamarel et al, 2014;Persson, 2008Persson, , 2013Remien, Carballo-Dieguez, & Wagner, 1995). In Perrson's qualitative study of 20 couples, HIV-negative partners described their experience with health care as problematic.…”

Section: Introductionmentioning

confidence: 93%

“I have it just like you do”: voices of HIV-negative partners in serodifferent relationships receiving primary care at a public clinic in San Francisco

et al. 2014

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HIV transmission among serodifferent couples has a significant impact on incidence of HIV worldwide. Antiretroviral interventions (i.e., preexposure prophylaxis, post-exposure prophylaxis, and treatment as prevention) are important aspects of comprehensive prevention and care for serodifferent couples. In this study, HIV-negative members of serodifferent couples were interviewed using open-ended questions to explore their health-care needs, perceptions of clinic-based prevention services, and experience of having an HIV-infected partner. Analysis of interviews with 10 HIV-negative partners revealed the following themes: (1) health needs during joint medical visits; (2) sexual risk reduction strategies; (3) relationship dynamics; and (4) strategies for coping. This study elucidated relationship, health and health care factors that might affect development and implementation of clinic-based prevention interventions for HIV serodifferent couples. The findings point to possible relationship-centered recommendations for health-care providers who serve HIV-affected couples in clinical settings.

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Community voices: barriers and opportunities for programmes to successfully prevent vertical transmission of HIV identified through consultations among people living with HIV

Cited by 8 publications

References 1 publication

Postnatal PMTCT: Women’s Perception Barriers at a Johannesburg Health Centre, South Africa

Postnatal PMTCT: Women’s Perception Barriers at a Johannesburg Health Centre, South Africa

Health-information needs of HIV-positive adults in Latin America and the Caribbean: an integrative review of the literature

“I have it just like you do”: voices of HIV-negative partners in serodifferent relationships receiving primary care at a public clinic in San Francisco

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