Comparative Evaluation of Bladder-specific Health-related Quality of Life Instruments for Bladder Cancer

Moncrief, Travis; Balaji, Priya; Lindgren, Bruce; Weight, Christopher J.; Konety, Badrinath R.

doi:10.1016/j.urology.2017.06.032

Cited by 13 publications

(11 citation statements)

References 15 publications

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“…Overall, 23 studies, reporting PROMs in 3568 patients, were evaluated using the COSMIN checklist. An overview of studies and PROMs are presented in Table and Table , respectively.…”

Section: Resultsmentioning

confidence: 99%

Evaluating patient‐reported outcome measures (PROMs) for bladder cancer: a systematic review using the COnsensus‐based Standards for the selection of health Measurement INstruments (COSMIN) checklist

et al. 2018

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Patient‐reported outcome measures (PROMs) are important tools used to understand patient‐focused outcomes from care. Various PROMs have been developed for patients with bladder cancer (BC), although the disease's heterogeneity makes selection difficult. Accurate measurement of health‐related quality of life (HRQL) can only be achieved if the PROM chosen is ‘fit for purpose’ (i.e. psychometrically sound). Systematic reviews of psychometric properties are useful for selecting the best PROM for a specific purpose. The COnsensus‐based Standards for the selection of health Measurement INstruments (COSMIN) developed a checklist to improve the selection of health measurement instruments as part of a review process. Our aims were to undertake a systematic review, using the COSMIN criteria, to assess the quality of studies that report the psychometric properties of PROMs used with people with BC and determine the psychometric quality of these PROMs. An electronic search of seven databases including PubMed, MEDLINE and EMBASE (PROSPERO reference CRD42016051974) was undertaken to identify English language publications, published between January 1990 and September 2017 that evaluated psychometric properties of PROMs used in BC research. Two researchers independently screened abstracts and selected full‐text papers. Studies were rated on methodological quality using the COSMIN checklist. Overall, 4663 records were screened and 23 studies, reporting outcomes in 3568 patients, were evaluated using the COSMIN checklist. Most PROMs had limited information reported about their psychometric properties. Studies reporting on the Bladder Cancer Index (BCI) and Functional Assessment of Cancer Therapy Vanderbilt Cystectomy Index (FACT‐VCI) provided the most detail and these PROMs could be evaluated on the most COSMIN properties. Based on the available evidence, no existing PROM stands out as the most appropriate to measure HRQL in BC populations. This is due to two factors; (i) the heterogeneity of BC and its treatments (ii) no PROM was evaluated on all COSMIN measurement properties due to a lack of validation studies. We suggest future evaluation of generic, cancer generic and BC‐specific PROMs to better understand their application with BC populations and propose strategies to help clinicians and researchers.

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“…Overall, 23 studies, reporting PROMs in 3568 patients, were evaluated using the COSMIN checklist. An overview of studies and PROMs are presented in Table and Table , respectively.…”

Section: Resultsmentioning

confidence: 99%

Evaluating patient‐reported outcome measures (PROMs) for bladder cancer: a systematic review using the COnsensus‐based Standards for the selection of health Measurement INstruments (COSMIN) checklist

et al. 2018

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“…Bei dem Blasenkrebs-spezifischen Anteil des FACT-Bl-Cys zeigten beide Tools eine gute Übereinstimmung (SKK = 0,74; p < 0,001). Qualitativ ergaben sich jedoch unterschiedliche Outcomes in der Harnableitung (urinary)-assoziierten HRQOL, sodass bei der Auswahl der PROMs zu beachten ist, dass Unterschiede in der Abfrage einzelner Aspekte zwischen den Fragebögen bestehen [12].…”

Section: Erfassung Der Lebensqualität Mittels ‚Patient Reported Outcounclassified

Einfluss der radikalen Zystektomie auf die Lebensqualität und Strategien für deren Erhalt

2020

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ZusammenfassungDie radikale Zystektomie stellt einen wesentlichen Einschnitt in das Leben betroffener Patienten dar. Insbesondere ältere Patienten weisen nach radikaler Zystektomie oft eine begrenzte Lebenserwartung auf. Daher treten neben der reinen Tumortherapie insbesondere Aspekte der Lebensqualität in den Vordergrund.In dieser narrativen Übersichtsarbeit wurden durch selektive Literaturrecherche Faktoren identifiziert, die einen Einfluss auf die Lebensqualität der betroffenen Patienten haben können. Dazu gehören neben Strategien zur Minimierung der perioperativen Morbidität eine optimale, individualisierte Therapieplanung. Diese sollte neben Faktoren wie Alter, Komorbiditäten, Wahl der Harnableitung auch altersspezifische, physiologische Gegebenheiten des Patienten wie die Gebrechlichkeit (Frailty) berücksichtigen. Patient-reported outcome measures (PROMs) sind essenzielle Instrumente, um die Lebensqualität standardisiert zu erfassen und sollten im klinischen Ablauf weiter etabliert werden.

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“…The BCI has been translated and validated into French, Spanish, Arabian and Hungarian languages . Furthermore, the BCI was recently used to evaluate function HRQOL among patients treated for bladder cancer in a comparative study …”

Section: Domain‐specific Characteristics Of the Japanese Version Of Tmentioning

confidence: 99%

“…4 Furthermore, the BCI was recently used to evaluate function HRQOL among patients treated for bladder cancer in a comparative study. 5 According to the previously reported method for cross-cultural translation of HRQOL, we carried out a multistage procedure to develop a preliminary Japanese version after permission from the original developer (JT Wei) to translate and use the BCI. 6 Two Japanese translations of the BCI were carried out independently by two native Japanese physicians who had English as a second language.…”

mentioning

confidence: 99%

Development of the Japanese version of the health‐related quality of life questionnaire for bladder cancer patients using the Bladder Cancer Index: A pilot study

et al. 2019

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Comparative Evaluation of Bladder-specific Health-related Quality of Life Instruments for Bladder Cancer

Cited by 13 publications

References 15 publications

Evaluating patient‐reported outcome measures (PROMs) for bladder cancer: a systematic review using the COnsensus‐based Standards for the selection of health Measurement INstruments (COSMIN) checklist

Evaluating patient‐reported outcome measures (PROMs) for bladder cancer: a systematic review using the COnsensus‐based Standards for the selection of health Measurement INstruments (COSMIN) checklist

Einfluss der radikalen Zystektomie auf die Lebensqualität und Strategien für deren Erhalt

Development of the Japanese version of the health‐related quality of life questionnaire for bladder cancer patients using the Bladder Cancer Index: A pilot study

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