Comparative Legal Frameworks for Pre-Implantation Embryonic Genetic Interventions

Abstract

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Addressing Cognitive Vulnerabilities through Genome and Epigenome Editing: Techno-Legal Adaptations for Persons with Intellectual Disabilities

“…Additionally, Article 3 of the Oviedo Convention is also consistent with the premise upon which this chapter is based -that is, equitable access to health care for all persons. 77 Genome editing is also addressed in the international soft law instruments, continuing the theme of a human rights paradigm. In the 1997 UNESCO Universal Declaration on the Human Genome and Human Rights, the emphasis is on "internationally agreed standards and good practices concerning genetic interventions, which were supported by a broad international consensus at the time of its adoption.…”

Handling Ethics Dumping and Neo-Colonial Research: From the Laboratory to the Academic Literature

“…From among 106 surveyed countries, 96 had policies or regulations pertaining to the genome editing of early-stage human embryos, gametes, or their precursor cells with the purpose of genetic modification, but regulations varied considerably among those nations for in vitro embryo research (Baylis et al 2020 ). Pre-implantation embryonic genetic interventions have complex ethical and legal parameters that must also be considered (Lau 2019 ). To avoid biopiracy by HICs and to iron out possible inequalities in data sets, one way is to allow data sharing and open data policies, such as those established by the Nagoya Protocol (Ambler et al 2021 ).…”

Addressing Cognitive Vulnerabilities through Genome and Epigenome Editing: Techno-Legal Adaptations for Persons with Intellectual Disabilities

“…Additionally, Article 3 of the Oviedo Convention is also consistent with the premise upon which this paper is based -that is, equitable access to health care for all persons. 77 Genome editing is also addressed in the international soft law instruments, continuing the theme of a human rights paradigm. In the 1997 UNESCO Universal Declaration on the Human Genome and Human Rights, the emphasis is on "internationally agreed standards and good practices concerning genetic interventions, which were supported by a broad international consensus at the time of its adoption.…”