Comparing the Impact of Symptoms and Health Care Experiences of People Who Have and Have Not Received a Diagnosis of Fibromyalgia: A <scp>Cross‐Sectional</scp> Survey Within the <scp>PACFiND</scp> Study

Doebl, Stefanie; Hollick, Rosemary J; Beasley, Marcus; Choy, Ernest; Macfarlane, Gary J.; investigators, PACFiND study

doi:10.1002/acr.24723

Cited by 12 publications

(8 citation statements)

References 28 publications

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“…In comparison to patients with generalized pain, patients with fibromyalgia evidenced more impaired pain characteristics, corroborating previous studies 13,16,43 . In the same way, patients with fibromyalgia diagnosis or people whose symptoms met criteria for fibromyalgia had a greater symptom impact than people with chronic pain 44 . The present results showed that pain intensity was higher in patients with fibromyalgia compared to generalized pain.…”

Section: Discussionmentioning

confidence: 92%

“…The optimal cut-off point was established at 40/100 in patients with central sensitivity syndrome 31,32 . The severity of symptoms related to central sensitization has been classified into sub-clinical (0-29), mild (30)(31)(32)(33)(34)(35)(36)(37)(38)(39), moderate (40)(41)(42)(43)(44)(45)(46)(47)(48)(49), severe (50-59) and extreme (60-100) 31,33 , where higher scores indicate an increase in the severity of symptoms 34 . The Brazilian version of the CSI demonstrated strong psychometric properties 35 .…”

Section: Pain Characteristicsmentioning

confidence: 99%

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Patients with fibromyalgia present different pain phenotypes compared to patients with generalized pain

Bittencourt¹,

Corrêa²,

Bezerra³

et al. 2022

BrJP

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BACKGROUND AND OBJECTIVES: Fibromyalgia and generalized pain represent a global health problem and are distinct musculoskeletal disorders, but there is an overlap in the clinical presentation between these conditions. However, no study has compared pain characteristics between patients with fibromyalgia and patients with generalized pain. Therefore, the present study aimed to compare pain characteristics and functional limitation of patients with fibromyalgia and patients with generalized pain. METHODS: A pre-planned secondary analysis of data collected from 311 patients with musculoskeletal pain was performed. Pain characteristics included pain intensity, pain duration, pain area, symptoms of central sensitization, presence of neuropathic-like symptoms, and the conditioned pain modulation. The Patient-Specific Functional Scale assessed functional limitation. RESULTS: 98 patients with generalized pain were identified, being 58 (59.18%) classified in the fibromyalgia group and 40 (40.82%) classified in the generalized pain group. Significant differences were found between groups for Widespread Pain Index, Symptom Severity Scale, and Polysymptomatic Distress Scale. Participants with fibromyalgia presented higher values of pain intensity (fibromyalgia = 7.29±2.07, generalized pain = Patients with fibromyalgia present different pain phenotypes compared to patients with generalized painPacientes com fibromialgia apresentam fenótipos de dor diferentes em comparação com pacientes com dor generalizada

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Section: Discussionmentioning

confidence: 92%

Section: Pain Characteristicsmentioning

confidence: 99%

Patients with fibromyalgia present different pain phenotypes compared to patients with generalized pain

Bittencourt¹,

Corrêa²,

Bezerra³

et al. 2022

BrJP

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“…Luckily, I was able to find one I considered a perfect match to my interests and experiences. I undertook my PhD as part of a larger programme of work called "Patient-centred Care for Fibromyalgia: New pathway Design" (PACFiND) (Doebl et al, 2020;Doebl et al, 2021). The project gave me the opportunity to use my (health) social work experiences to move forward thinking around community-based healthcare provision for a common, but often stigmatised, long-term pain condition.…”

Section: Misconception 6: Social Workers Need To Have Their Own Resea...mentioning

confidence: 99%

Stepping into the unknown: Reflections and learnings from the journey from social worker to researcher

Doebl¹

2022

ANZSWJ

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Whilst social workers have skills and experiences that could be well suited to a research environment, moving from frontline social work to research can be daunting. Drawing from my own journey, I reflect on initial misconceptions and provide potential reflection points for others interested in undertaking research. I also suggest a selection of resources which may be relevant to social workers. By sharing my experiences, I offer an example of a journey from social worker to researcher. Future opportunities to expand this conversation are necessary and could be pursued by the Aotearoa New Zealand Association of Social Workers.

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“…A broader snapshot would include the many specialists these patients are routinely referred to including but not limited to rheumatologists, psychiatrists, and sleep medicine doctors. Primary care physicians are expected to juggle this complex landscape, with one study reporting that it took approximately 3 years for a patient to receive a diagnosis of fibromyalgia, and over half of the patients studied received this diagnosis in a secondary specialty clinic [ 7 ]. The annual direct cost of a patient with fibromyalgia is approximately over $7000 in the United States.…”

Section: Introductionmentioning

confidence: 99%

Correlation of Psychological Factors, Obesity, Serum Cortisol, and C-Reactive Protein in Patients with Fibromyalgia Diagnosed with Obstructive Sleep Apnea and Other Comorbidities

Meresh,

Khieu,

Krupa

et al. 2024

Biomedicines

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Background: Fibromyalgia (FM) is a chronic pain disorder and is associated with disability, and high levels of pain and suffering. FM is known to co-occur with obesity and obstructive sleep apnea (OSA). Individuals with FM often experience symptoms of pain, depression and anxiety, sleep disturbances, and fatigue. These symptoms may be exacerbated by OSA and contribute to the symptoms’ severity in FM. Obesity is a common comorbidity in OSA patients, and as FM and OSA are related in some patients, obesity also may contribute to FM symptom severity. For healthcare providers to effectively manage FM patients, a better understanding of the co-occurrence between these FM comorbidities and psychological factors is needed. Methods: This study was approved by IRB and conducted using a retrospective EPIC chart review. To identify FM, the following ICD-9 codes were used: (729.1) and ICD-10 (M79.7) codes. To identify patients with OSA, the following ICD-9 codes were used: (327.23) and ICD-10 (G47.33). Body Mass Index (BMI), the total number of medical diagnoses, and psychiatric conditions were documented for each patient. The prevalence of psychiatric conditions including depression and anxiety was compared between patients with and without obesity (BMI > 30), and patients with fewer than 25 medical diagnoses and those with 25 or more diagnoses. A chart review was conducted to identify patients with fibromyalgia with prior serum cortisol testing within the last ten years. Cortisol levels were compared and patients were divided into six groups: 1. FM without identified psychiatric conditions; 2. FM with psychiatric diagnosis of adjustment disorders and insomnia; 3. FM with psychiatric diagnosis of depressive disorders; 4. FM with psychiatric diagnosis of bipolar disorders; 5. FM with psychiatric diagnosis of mixed anxiety and depression; 6. FM with psychiatric diagnosis of anxiety disorders. Available C-reactive protein (CRP) values were gathered. Results: The total FM and OSA population was N = 331. The mean age of the patient population was 63.49 years old, with 297 being female. The diagnoses mean was 31.79 ± 17.25 and the mean total psychiatric diagnoses was 2.80 ± 1.66. The mean BMI was 36.69 ± 8.86, with obesity present in 77.95% of the patients. A total of 66.99% of patients had comorbid anxiety and depression with 25 or more medical problems vs. 33.01% of patients who had fewer than 25 medical problems (odds ratio = 1.50). Patients with a BMI < 30 (N = 71) had rates of anxiety and depression at 64.79% and a mean total of 2.79 ± 1.66 psychiatric diagnoses, whereas patients with a BMI > 30 (N = 258) had rates of anxiety and depression at 61.63% (odds ratio = 1.28) and a mean total of 2.80 ± 1.66 psychiatric diagnoses. The most common other psychiatric conditions among FM/OSA patients included hypersomnia and substance use disorders. Cortisol data: Available cortisol results: FM n = 64, female: 59, male: 5, mean age: 63, average BMI: 38.8. The averages for serum cortisol alone for groups 1–6, respectively, are 9.06, 5.49, 13.00, 14.17, 12.25, and 16.03 μg/dL. These results indicate a relatively upward cortisol serum value by the addition of several psychiatric conditions, with the most notable being anxiety for patients with FM. CRP values were available for 53 patients with an average CRP of 4.14. Discussion: Higher rates of anxiety and depression were present in FM patients with 25 or more diagnoses. The odds ratios indicate that a patient with 25 or more medical problems was 1.5 times more likely to have anxiety and depression than those with fewer diagnoses. Additionally, those with a BMI > 30 were 1.3 times more likely to have anxiety and depression than those with a normal BMI. Conclusion: addressing psychological factors in FM and OSA is important as high healthcare utilization is common in patients with FM and OSA.

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Comparing the Impact of Symptoms and Health Care Experiences of People Who Have and Have Not Received a Diagnosis of Fibromyalgia: A Cross‐Sectional Survey Within the PACFiND Study

Cited by 12 publications

References 28 publications

Patients with fibromyalgia present different pain phenotypes compared to patients with generalized pain

Patients with fibromyalgia present different pain phenotypes compared to patients with generalized pain

Stepping into the unknown: Reflections and learnings from the journey from social worker to researcher

Correlation of Psychological Factors, Obesity, Serum Cortisol, and C-Reactive Protein in Patients with Fibromyalgia Diagnosed with Obstructive Sleep Apnea and Other Comorbidities

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