Comparison of quality-of-life instruments for assessing the participation after stroke based on the International Classification of Functioning, Disability and Health (ICF)

Abstract

| Background: According to the International Classification of Functioning, Disability and Health (ICF), the participation component is considered to be the most complex component characterized in existing instruments that assess quality of life related to health (HRQoL). Questionnaires such as the Nottingham Health Profile (NHP) and the Stroke-Specific Quality of Life (SS-QOL) are currently used to evaluate the participation of individuals in life activities after stroke. However, because participation and HRQoL are different constructs, it is unclear whether these instruments are best suited to this evaluation. Objective: To investigate whether the NHP and SS-QOL are suitable instruments for assessing the participation component of ICF. Method: A cross-sectional study was conducted in which a sample of 35 individuals completed the SS-QOL and NHP. The study correlated the total score on the questionnaires with the scores on items that evaluate the participation component of the ICF. Both analyses used the Spearman correlation coefficient (r). Results: There was a statistically significant, positive and strong correlation between total score on the SS-QOL and NHP and the score on specific components related to participation (r=0.8, p=0.001 and r=0.9, p=0.001, respectively). Conclusions: Both the NHP and the SS-QOL show strong correlations between the total score and the score on items that assess the participation categories of the ICF. However, the SS-QOL questionnaire appeared to be the most complete for this assessment because it evaluates more distinct domains and contains the largest number of items related to participation.

Psychometric properties of the stroke specific quality of life scale for the assessment of participation in stroke survivors using the rasch model: a preliminary study

“…Identification of the items of the SS-QOL that address the ICF participation component was based on a study by Silva et al 11 ) , who found that 26 of the 49 SS-QOL items evaluated participation, spanning eight subscales (family roles, language, mobility, self-care, social roles, thinking, upper extremity function, and work/productivity). Five response options are offered for each item, with item scores ranging from 1 to 5.…”

“…Five response options are offered for each item, with item scores ranging from 1 to 5. Thus, the minimum overall score for the questionnaire is 26 (lowest social participation), and the maximum score is 130 (highest social participation) 11 ) .…”

“…Based on the conceptual framework of the ICF 7 ) , participation is considered the most complex component to evaluate using existing assessment tools 8 , 9 ) . Recently, our research group 10 , 11 ) demonstrated that the Stroke Specific Quality of Life (SS-QOL) Scale appears to be the most complete measure for assessing social participation among stroke survivors. However, only 26 of the 49 items on the scale address participation capacity 10 ) .…”

Funcionalidade e qualidade de vida na alta hospitalar de pacientes com insuficiência cardíaca: Classificação Internacional de Funcionalidade

“…Estudos apresentam ferramentas similares de codificação através da CIF com escalas e questionários já validados, como é o caso do índice de Barthel 23 a MIF 24 e do questionário de qualidade de vida 25 , entretanto ainda não foram propostas essas associações para caracterização da funcionalidade de paciente 26 .…”

The relationship between stroke and quality of life in Korean adults: based on the 2010 Korean community health survey

“…In recent years, knowledge of the recovery phase of stroke has expanded rapidly, and the number of stroke survivors has grown due to advances in acute-phase treatments 4 ) . One report projects that survival after the onset of stroke will increase gradually throughout the world, and almost 90% of those survivors will have a disability 5 ) .The Republic of Korea is no exception to these trends. A number of studies have focused on the causes of stroke, first aid, and intervention methods, but despite these projections, epidemiologic surveys on stroke have been limited 6 , 7 ) .…”