Compassionate communities and end-of-life care

Abel, Julian

doi:10.7861/clinmedicine.18-1-6

Cited by 66 publications

(56 citation statements)

References 7 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…This may reflect both the lack of availability that people have to care in an increasingly economically driven society as well as the emotional and knowledge preparedness to provide care for someone who is dying. Part of the ‘Compassionate Communities’ movement also looks to address the unmet social needs of family carers via ‘resilient caring networks of support’ (Abel, ).…”

Section: Introductionmentioning

confidence: 99%

The voices of death doulas about their role in end‐of‐life care

Rawlings

Litster

Miller-Lewis

et al. 2019

Health Soc Care Community

View full text Add to dashboard Cite

‘Death Doulas’ have emerged as a relatively new role supporting dying people and their family members; however there is a lack of clarity around how the role is enacted, and around the death doula role within health and social care systems. This study aimed to explore the ambiguity of the role of death doulas in end‐of‐life care including the skills, training and experience of death doulas; how the role is communicated to the community; and the relationships to palliative care providers and other health professionals. People identifying as death doulas were invited to participate in an online survey between April and June 2018. Ethical approval was obtained. A descriptive cross‐sectional study was conducted, and purposive sampling was used to survey death doulas registered with death doula training organisations, newsletters and email distribution lists. Questions were based on the researchers’ previous findings about the role. One hundred and ninety completed or partially completed surveys were received. Results showed diversity within, and some commonalities across the sample in terms of: training, experience and skills; Death doulas have emerged not only as a response to the overwhelming demands on families and carers, but also demands placed on health care professionals (including palliative care) at the end‐of‐life. They have identified gaps in health and social care provision, perhaps taking on tasks that health professionals don't have responsibility for. However, the roles and scope of practice of death doulas is not clear‐cut even within their cohort, which can then make it hard for patients and families when choosing a death doula, especially as a lack of regulation and standardised training means that doulas are working without oversight, and often in isolation.

show abstract

Section: Introductionmentioning

confidence: 99%

The voices of death doulas about their role in end‐of‐life care

Rawlings

Litster

Miller-Lewis

et al. 2019

Health Soc Care Community

View full text Add to dashboard Cite

show abstract

“…In these circumstances of chronicity, dependence, and end-of-life care, patients’ needs cover multiple domains of symptom control, social environment, psychological and emotional distress, and spiritual care [ 9 , 10 , 11 ]. Therefore, it is necessary to develop care models centered on the patient and on the fight against inequality while also providing holistic care, including the spiritual approach [ 12 ]. In this framework, the compassionate communities movement has emerged to respond to the needs of these patients and to a greater humanization of health care, building community networks [ 7 , 11 , 13 , 14 , 15 , 16 , 17 ].…”

Section: Introductionmentioning

confidence: 99%

Compassionate Engagement and Action in the Education for Health Care Professions: A Cross-Sectional Study at an Ecuadorian University

Davalos-Batallas

Vargas-Martínez

Sierra

et al. 2020

IJERPH

View full text Add to dashboard Cite

Objective: This study aimed at exploring the compassion attitudes and needs for awareness and training related to a compassionate approach for Medicine, Nursing, and Psychology students, as well as for the academic and administration personnel from the Universidad Técnica Particular de Loja (UTPL, Ecuador) Health Sciences area. Methods: A cross-sectional observational study, based on a self-administered questionnaire through a sample of 788 UPTL students. STROBE guidelines were followed and applied. Results: A positive correlation was found between life engagement and compassion for others, from others, and self-compassion. The Nursing students were those who reported having previous experiences of contact with people with an advanced disease or in an end-of-life situation and having received some type of training compared to Medicine and Psychology students and lecturers (faculty members). Differences were found on the “self-compassion” and “compassion for others” subscales, noting a higher level of compassion among Psychology students. Conclusions: To implement the philosophy of compassionate universities it is necessary to design trainings that include the students, the faculty members, and the administrative staff, centered on sensitization and training about assistance, care, and accompaniment at the end of life, as well as cultivating compassion in the workplace.

show abstract

“…Community members help to create a safety net and support network around patients and families dealing with a disease with a limited prognosis from the time of diagnosis. 15,24 Apart from seeking to avoid discrimination based on diagnosis by providing support and PC to people who are aging, have degenerative diseases or chronic conditions, the CC approach broadens the circle of support to the vulnerable, those who are alone, the bereaved, and caregivers, among others. 23…”

Section: A Tempting Paradigm Shift In Palliative Carementioning

confidence: 99%

Palliative Care: Changing Paradigms to Face New Challenges

Roy

Vachon

2020

MRAJ

View full text Add to dashboard Cite

Recent studies conducted in the world"s most industrialized nations reveal that access to palliative care is both inadequate and unequal. The problem is exacerbated by the exponentially growing need for this type of care due to the world"s rapidly aging population. These findings have prompted governments to address the problem, most often with new legislation and the allocation of more resources. Despite these efforts and a definite improvement in access to palliative care, important inadequacies and inequalities in access to these services persist. A paradigm shift in the way palliative care is seen and implemented, inspired by new research and pioneered by the work of Allan Kellehear, could better serve the world"s aging and vulnerable populations: rather than continue to separate the sick and the dying from their communities in order to treat them in costly, depersonalizing institutions, these patients would become a central component around which community services and professional care services would be organically interwoven. This new model, called the "Compassionate Community" model, is inspired by public health approaches of health promotion. Initial experimentation with such communities has yielded promising results, suggesting that the Compassionate Communities model could prove to be a viable alternative to the current approach to palliative care and to the overstrained system borne from it.

show abstract

Compassionate communities and end-of-life care

Cited by 66 publications

References 7 publications

The voices of death doulas about their role in end‐of‐life care

The voices of death doulas about their role in end‐of‐life care

Compassionate Engagement and Action in the Education for Health Care Professions: A Cross-Sectional Study at an Ecuadorian University

Palliative Care: Changing Paradigms to Face New Challenges

Contact Info

Product

Resources

About