Competence training in evidence-based medicine for patients, patient counsellors, consumer representatives and health care professionals in Austria: a feasibility study

Berger, Bettina; Gerlach, Anja; Groth, Sylvia L.; Sladek, Ulla; Ebner, Katharina; Mühlhauser, Ingrid; Steckelberg, Anke

doi:10.1016/j.zefq.2012.11.013

Cited by 17 publications

(18 citation statements)

References 14 publications

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“…Similarly, with regard to cancer, the National Coalition for Cancer Survivorship has developed the Cancer Survival Toolbox for teaching self‐advocacy skills to cancer survivors, defined as the ability to obtain and understand information, to find appropriate resources and treatment modes, to get different medical opinions and to make informed choices about treatment, including the right to no treatment . On the meso‐ and macro‐level, institutions in collaboration with patient organizations have developed and delivered various training programmes on methods of evidence‐based medicine, advocacy and health‐care policy . On the realm of cancer, for several years EUROPA DONNA has provided advocacy training for its members, while the European Cancer Patient Coalition organizes every year a Masterclass in Advocacy .…”

Section: Discussionmentioning

confidence: 99%

Health democracy in Europe: Cancer patient organization participation in health policy

Souliotis

Peppou

Agapidaki

et al. 2017

Health Expectations

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BackgroundPatient organization participation in health policy decision making is an understudied area of inquiry. A handful of qualitative studies have suggested that the growing number of patient organizations in Europe and their increasing involvement in policy issues do not result in high political effectiveness. However, existing research is largely country‐specific.ObjectiveTo examine the degree and impact of cancer patient organization (CPO) participation in health policy decision making in EU‐28 and to identify their correlates.MethodsA total of 1266 members of CPOs participated in this study, recruited from a diversity of sources. CPO participation in health policy was assessed with the Health Democracy Index, a previously developed instrument measuring the degree and impact of patient organization participation in various realms of health policy. Additional questions collected information about participants' and the CPO's characteristics. Data were gleaned in the form of an online self‐reported instrument.ResultsThe highest degree of CPO participation was observed with respect to hospital boards, reforms in health policy and ethics committees for clinical trials. On the contrary, the lowest was discerned with regard to panels in other important health‐related organizations and in the Ministry of Health. The reverse pattern of results was observed concerning the Impact subscale. As regards the correlates of CPO participation, legislation bore the strongest association with the Degree subscale, while organizational factors emerged as the most important variables with regard to the Impact subscale.ConclusionsResearch findings indicate that a high degree of CPO participation does not necessarily ensure a high impact. Efforts to promote high and effective CPO participation should be geared towards the establishment of a health‐care law based on patient rights as well as to the formation of coalitions among CPOs and the provision of training to its members.

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Section: Discussionmentioning

confidence: 99%

Health democracy in Europe: Cancer patient organization participation in health policy

Souliotis

Peppou

Agapidaki

et al. 2017

Health Expectations

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“…Die gezielte Förderung von Gesundheitskompetenz kann ein Weg sein, der Ausbildung solcher Verhaltensweisen in dieser Altersgruppe entgegenzuwirken. Projekte zur Förderung von Gesundheitskompetenz im Sinne des kompetenten Umgangs mit Gesundheitsinformationen beziehen sich jedoch meist auf Erwachsene [2,3], direkt an Jugendliche adressierte Programme sind sowohl international als auchim deutschenSprachraum rar [14]. Dies liegt nicht zuletzt darin begründet, dass Gesundheitskompetenz so viele Teilbereiche umfasst.…”

Section: Hintergrundunclassified

Konzeption und Durchführung von Workshops zur Förderung der Gesundheitskompetenz von SchülerInnen der Sekundarstufe I

Maitz

Gasteiger‐Klicpera

2020

Präv Gesundheitsf

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Die Förderung von Gesundheitskompetenz stellt eine wichtigeVoraussetzung für die Unterstützung der Gesundheit von Kindern und Jugendlichen dar. Gesundheitskompetenz hängt eng mit kritischer Informationskompetenz sowie mit Lesekompetenz zusammen. Auch digitale Kompetenzen sind wichtig, da Gesundheitsinformationen verstärkt aus dem Internet bezogen werden. Im vorliegenden Artikel wird ein Konzept für partizipative Workshops mit Jugendlichen präsentiert, im Rahmen derer der kompetente Umgang mit gesundheitsbezogenen Informationen aus dem Internet gefördert wurde.

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“…Barriers for the implementation are mainly related to a lack of health literacy among patients, a lack of health care professionals' belief in their patients' abilities, as well as a lack of training during medical education [2,11]. Therefore, basic, interactive, and critical health literacy is regarded as one important endpoint to improve patients' SM abilities [12].…”

Section: Current Relevance Of Self-management In Health Carementioning

confidence: 99%

How to Become an Agent of One's Own Healing Processes: Self-Management for Chronically Ill Patients in Integrative Health Care

Berger

Heusser

2017

Complement Med Res

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Competence training in evidence-based medicine for patients, patient counsellors, consumer representatives and health care professionals in Austria: a feasibility study

Cited by 17 publications

References 14 publications

Health democracy in Europe: Cancer patient organization participation in health policy

Health democracy in Europe: Cancer patient organization participation in health policy

Konzeption und Durchführung von Workshops zur Förderung der Gesundheitskompetenz von SchülerInnen der Sekundarstufe I

How to Become an Agent of One's Own Healing Processes: Self-Management for Chronically Ill Patients in Integrative Health Care

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