Completeness of Cancer Registration in Limburg, the Netherlands

Schouten, Leo J.; Höppener, Pierre; Brandt, Piet A. van den; Knottnerus, J. André; Jager, J.J.

doi:10.1093/ije/22.3.369

Cited by 342 publications

(198 citation statements)

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“…[27] Quality of the data is high [28] and completeness is estimated to be at least 95%. [29] Patients All patients with an invasive colon carcinoma, diagnosed in the period 2001-2006 were selected from the NCR. Diagnoses without histological confirmation, diagnoses based only on autopsy findings, patients living abroad and incomplete records were excluded from analyses.…”

Section: Netherlands Cancer Registrymentioning

confidence: 99%

Disparities in quality of care for colon cancer between hospitals in the Netherlands

Elferink

Wouters

Krijnen

et al. 2010

European Journal of Surgical Oncology (EJSO)

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Section: Netherlands Cancer Registrymentioning

confidence: 99%

Disparities in quality of care for colon cancer between hospitals in the Netherlands

Elferink

Wouters

Krijnen

et al. 2010

European Journal of Surgical Oncology (EJSO)

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“…Additional information could be collected from medical specialists, GPs and registration of the Comprehensive Cancer Centre North Netherlands, which records about 96% of all cancer incidences in the Netherlands [38]. Table 1 gives the premorbid characteristics of the cancer patients.…”

Section: Patientsmentioning

confidence: 99%

A prospective study on educational level and adaptation to cancer, within one year after the diagnosis, in an older population

Barbareschi¹,

Sanderman²,

Tuinstra³

et al. 2007

Psycho-Oncology

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Socio‐economic status (SES) has often been associated with health disparities and mortality in cancer patients, yet systematic research into the role of SES in the course of the disease is lacking. This prospective study intends to examine the role of SES (i.e. educational level in this study) in psychological and physical adaptation to cancer. Ninety‐nine cancer patients were followed from a community‐based survey. Pre‐ and post‐morbid data on patients' quality of life (QoL) were available. Adaptation was defined by looking at the level and pattern of scores on QoL scales from pre‐ to post‐disease assessments. Results show some non‐significant trends that more high‐educated patients managed to adapt completely to cancer in relation to role and physical functioning when compared with low‐educated participants. Furthermore, the greater part of high‐educated patients who completely adapted in physical functioning achieved this result more rapidly without an initial deterioration. Unexpectedly, these differences were not significant when tested in a regression model. Hence, although there are some indications for differences in adaptation to role and physical functioning between educational groups, we did not find any evidence that proved such a relation. For the group as a whole, it is very interesting to see that based on our operationalization of adaptation, only a small percentage of patients deteriorated from pre‐ to post‐disease assessments. Copyright © 2007 John Wiley & Sons, Ltd.

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“…The conceptually simplest and most definitive method to check completeness of cancer registration is to identify a series of cases from an independent source, e.g. lists of probands in clinical trials or other research studies, and to assess how many have been registered (Goldberg et al, 1980;Nwene and Smith, 1982;Mattson et al, 1985;Hunt and Coleman, 1987;Villard-Mackintosh et al, 1988;Swerdlow et al, 1993;Schouten et al, 1993). Such independent lists are often unavailable, however.…”

mentioning

confidence: 99%

Limitations of the death certificate only index as a measure of incompleteness of cancer registration

Brenner

1995

Br J Cancer

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Summary The death certificate only (DCO) index, which quantifies the proportion of patients for whom the death certificate provides the only notification to the registry, is a widely used measure of incompleteness of population-based cancer registration. This paper provides an algebraic assessment and a quantitative illustration of the relationship between the DCO index and incompleteness of cancer registration. It is shown that the relationship between the DCO index and incompleteness of registration is strongly dependent on the case fatality rate and the misclassification rates of cancer deaths among unregistered patients. Therefore, the DCO index is a very poor indicator of incompleteness. Similar limitations apply to the DCN index (proportion of cases first notified by death certificate), which has been proposed as an alternative measure of incompleteness.Keywords: death certificate; cancer registry; disease surveillance; epidemiological method Population-based cancer registries are most valuable tools of both descriptive and analytical cancer epidemiology. Exhaustive ascertainment of all cases can rarely be achieved, however, on the population level. Therefore, attempts to quantify the degree of underascertainment are essential for proper interpretation of cancer registry data.Various approaches have been proposed to quantify incompleteness of population-based cancer registration (Freedman, 1978;Goldberg et al., 1980;Benn et al., 1982;Devesa et al., 1984;Shanmugaratnam, 1989;Jensen et al., 1991;Parkin et al., 1992). A particularly widely used indirect measure of incompleteness is the death certificate only index (DCO index) which quantifies the proportion of cases for whom the death certificate is the only source of notification. For example, the DCO index is routinely reported as an indicator of incompleteness in international cancer incidence statistics published by the International Agency for Research on Cancer (Parkin et al., 1992).One of the major reasons for the popularity of the DCO index is its ease of calculation in situations in which death certificates are routinely linked with registry data. Nevertheless, the DCO index has a variety of limitations, the best known being its dependence on case fatality rates: poor completeness may go along with a low DCO index for cancers which have low case fatality rates. Another major limitation of the DCO index is its sensitivity to the welldocumented inaccuracies of the certified causes of death (Barclay and Phillips, 1962;De Faire et al., 1976;Percy et al., 1981). As an example, endometrial cancer is often misclassified as cervical cancer, and vice versa, on death certificates, and similar misclassification problems have also been documented for other cancers, such as colon and rectum cancer (Percy et al., 1981). Furthermore, non-specific codes, such as cancer of unknown site, are frequently used on death certificates, and cancer often remains undetected as the underlying cause of death among elderly patients. While these limitations have been widely recogn...

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Completeness of Cancer Registration in Limburg, the Netherlands

Cited by 342 publications

References 0 publications

Disparities in quality of care for colon cancer between hospitals in the Netherlands

Disparities in quality of care for colon cancer between hospitals in the Netherlands

A prospective study on educational level and adaptation to cancer, within one year after the diagnosis, in an older population

Limitations of the death certificate only index as a measure of incompleteness of cancer registration

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