Complexity in Non-Pharmacological Caregiving Activities at the End of Life: An International Qualitative Study

Abstract

In a qualitative study reported by Olav Lindqvist and colleagues, the range of nonpharmacological caregiving activities used in the last days of a patient's life are described.

Exploring Sensory Experiences and Personalization in an Inpatient Residential Hospice Setting

“…The needs of family and friends were incorporated into the design of the hospice care environment, mainly in the design and location of the family room, availability of meals for families and friends, opportunities for gatherings and events in the communal space, and the possibility to contribute design artifacts for the walls and available floor space. These activities broadly support what has been referred to in earlier literature as dignity at end of life 16 for the resident and as supportive care for family caregivers. We interpret activities at our research site as providing well-being and comfort by helping residents and families to develop and maintain new rituals over a longer term of stay, rather than only in the very last days of residents' life, which has been emphasized by others.…”

Everyday activities for people with dementia in residential aged care: associations with person‐centredness and quality of life

“…Based on studies across a variety of care settings, such recent publications have pointedly illuminated how the concrete doings of everyday, direct care delivery can assist in developing person‐centred conversations and relationships (McCormack et al ., ; Edvardsson et al ., ; Lindqvist et al ., ). These articles have contributed a timely and necessary shift of focus around the discussion of person‐centred care, from the philosophical realm of policy and practice rhetoric towards how to actually achieve person‐centred care in everyday nursing practice.…”

Changing Patterns in Place of Cancer Death in England: A Population-Based Study

“…However, cancer deaths still most commonly occur in hospitals, which is consistently regarded as the least preferred place of death (PoD) [2]. Patients with cancer who die in a hospital or intensive care unit (ICU) have worse quality of life compared with those who die at home, and their bereaved caregivers are at increased risk for developing psychiatric illness [3]–[5]. Meeting people's preferences for PoD also has cost implications [6].…”