Complications after Hypospadias Repair: Are We Adequately Counseling Families?

Rague, James T.; Cheng, Earl Y.

doi:10.1097/ju.0000000000002828

Cited by 1 publication

(2 citation statements)

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“…Outcomes described by our informants were consistent with previous literature and clinical experience (23). Some of our informants described that they had developed strictures and other issues well into adulthood, in concordance with some previous studies on long-term surgical outcomes (24,25). While some of our informants were concerned that functional complications had arisen from tissue such as corpus spongiosum being removed, it is important to highlight that modern hypospadias surgery is conservative reconstructive surgery.…”

Section: Discussionsupporting

confidence: 83%

“…While some of our informants were concerned that functional complications had arisen from tissue such as corpus spongiosum being removed, it is important to highlight that modern hypospadias surgery is conservative reconstructive surgery. However, certain surgical procedures used to treat penile curvature may increase the risk of nerve damage or erectile dysfunction, although improved surgical techniques have reduced the risk (24).…”

Section: Discussionmentioning

confidence: 99%

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A qualitative content analysis of the experience of hypospadias care: The importance of owning your own narrative

Phillips

Dennermalm²,

Örtqvist³

et al. 2023

Front. Pediatr.

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ObjectivesThere is a lack of studies on men's individual experiences of living with hypospadias. We aimed to explore the personal experiences of having hypospadias in relation to healthcare and surgery.Subjects and methodsPurposive sampling was used to include men (aged 18 and over) with hypospadias representing different phenotypes (from distal to proximal) and ages in order to maximise the variation and richness of our data. Seventeen informants, aged 20–49, were included in the study. In-depth semi-structured interviews were conducted between 2019 and 2021. Inductive qualitative content analysis was used to analyse the data.ResultsWe identified three categories: (1) Having surgery, which comprised the decision to operate, the experience of having surgery, and the outcomes of surgery; (2) Going to the doctor, which focused on follow-up care, re-entering care in adolescence or adulthood, and the experience of healthcare interactions; (3) Being informed, both about hypospadias in general, as well as about your specific body and medical history. There was overall a large variation in experiences. The latent theme across the data was the importance of owning your own narrative.ConclusionThe experience of men with hypospadias in healthcare is complex and varied, highlighting the difficulty of fully standardised care. Based on our results, we suggest that follow-up should be offered in adolescence, and that ways of accessing care for late onset complications be made clear. We further suggest clearer consideration for the psychological and sexual aspects of hypospadias. Consent and integrity in all aspects and all ages of hypospadias care should be adapted to the maturity of the individual. Access to trustworthy information is key, both directly from educated healthcare staff and if possible, from websites or patient-led forums. Healthcare can play a key role in providing the growing individual with tools to understand and address concerns that may develop relating to their hypospadias through life, giving them ownership over their own narrative.

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Section: Discussionsupporting

confidence: 83%

Section: Discussionmentioning

confidence: 99%