Computing PROPr Utility Scores for PROMIS® Profile Instruments

Dewitt, Barry; Jalal, Hawre; Hanmer, Janel

doi:10.1016/j.jval.2019.09.2752

Cited by 44 publications

(48 citation statements)

References 18 publications

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“…Standardization, based on common metrics, allows for comparisons across domains, across health problems, and with the general population [ 2 ]. PROMIS measures are freely available and have widespread application internationally [ 3 , 4 ].…”

Section: Introductionmentioning

confidence: 99%

“…The instrument has also been used in crosswalks or mapping to other widely used PROMs including the EuroQol EQ-5D [ 12 ]. The inclusion of an extra domain of cognitive function-abilities, or its imputation using PROMIS-29 data, also makes it suitable for economic evaluation through the inclusion of values for health states in the form of PROPr [ 3 , 13 ].…”

Section: Introductionmentioning

confidence: 99%

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The Norwegian PROMIS-29: psychometric validation in the general population for Norway

Garratt

Coste

Rouquette

et al. 2021

J Patient Rep Outcomes

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Background The Patient Reported Outcome Measurement Information System profile instruments include “high information” items drawn from large item banks following the application of modern psychometric criteria. The shortest adult profile, PROMIS-29, looks set to replace existing short-form instruments in research and clinical practice. The objective of this study was to undertake the first psychometric evaluation of the Norwegian PROMIS-29, following a postal survey of a random sample of 12,790 Norwegians identified through the National Registry of the Norwegian Tax Administration. Confirmatory factor analysis was used to assess structural validity. Fit to the Rasch partial credit model and differential item functioning (DIF) were assessed in relation to age, gender, and education. PROMIS-29 scores were compared to those for the EQ-5D-5L and the Self-assessed Comorbidity Questionnaire (SCQ), for purposes of assessing validity based on a priori hypotheses. Results There were 3200 (25.9%) respondents with a mean age (SD) of 51 (20.7, range 18 to 97 years) and 55% were female. The PROMIS-29 showed satisfactory structural validity and acceptable fit to Rasch model including unidimensionality, and measurement invariance across age and education levels. One pain interference item had uniform DIF for gender but splitting gave satisfactory fit. Domain reliability estimates ranged from 0.85 to 0.95. Correlations between PROMIS-29 domain, SCQ and EQ-5D scores were largely as expected, the largest being for scores assessing very similar aspects of health. Conclusions The Norwegian version of the PROMIS-29 is a reliable and valid generic self-reported measure of health in the Norwegian general population. The instrument is recommended for further application, but the analysis should be replicated and responsiveness to change assessed in future studies before it can be recommended for clinical and health services evaluation in Norway.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

The Norwegian PROMIS-29: psychometric validation in the general population for Norway

Garratt

Coste

Rouquette

et al. 2021

J Patient Rep Outcomes

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“…Future research can focus on calculating an NQU score even with a missing domain, similar to a recent study focused on preference-based scoring of PROMIS. 52 Finally, unlike other MAUT measures where domain scores are calculated with the same items used in the construction of the measure, researchers can estimate Neuro-QoL domain (theta) scores using any items from the associated item banks. Thus, utilities for theta values based on combinations of other items require interpolation between the assessed theta values.…”

Section: Discussionmentioning

confidence: 99%

A Scoring Algorithm for Deriving Utility Values from the Neuro-QoL for Patients with Multiple Sclerosis

et al. 2020

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Introduction The Neuro-QoL is a standardized approach to assessing health-related quality of life in people with neurological conditions, including multiple sclerosis (MS). Item banks were developed with item response theory (IRT) methodology so items are calibrated along a continuum of each construct. The purpose of this study was to develop a preference-based scoring algorithm for the Neuro-QoL to derive utilities that could be used in economic modeling. Methods With input from neurologists, 6 Neuro-QoL domains were selected based on relevance to MS and used to define health states for a utility elicitation study in the United Kingdom. General population participants and individuals with MS valued the health states and completed questionnaires (including Neuro-QoL short forms). The Neuro-QoL Utility Scoring System (NQU) was derived based on multi-attribute utility theory using data from the general population sample. Single-attribute disutility functions for 6 Neuro-QoL domains were estimated using isotonic regression with linear interpolation and then combined with a multiplicative model. NQU validity was assessed using MS participant data. Results Interviews were completed with 203 general population participants (50.2% female; mean age = 45.0 years) and 62 participants with MS (62.9% female; mean age = 46.1 years). Mean (SD) NQU scores were 0.94 (0.06) and 0.82 (0.13) for the general population and MS samples, respectively. The NQU demonstrated known-groups validity by differentiating among subgroups categorized based on level of disability. The NQU demonstrated convergent validity via correlations with generic measures (0.66 and 0.63 with EQ-5D-5L and Health Utilities Index Mark 3, respectively; both P < 0.001). Discussion With the NQU, utilities can be derived from any MS treatment group, subgroup, or patient sample who completes items from 6 Neuro-QoL domains. Because the Neuro-QoL is frequently used with MS patients, the NQU greatly expands the options for quantifying outcomes in cost-utility analyses conducted to inform allocation of resources for MS treatment.

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“…This secondary outcome will be assessed using the patient reported outcomes measurement information system (PROMIS) preference questionnaire (i.e., the PROPr). 27,28 The PROPr is a 31 items instrument assessing eight domains (29 items) (i.e., anxiety, depression, fatigue, pain interference, physical function, sleep disturbance, ability to participate in social roles and activities, and pain intensity), and cognitive function abilities (two items). Raw scores generated for each domain are transformed into T scores; higher PROMIS T scores indicate greater endorsement of the construct being assessed.…”

Section: Secondary Outcome: Qolmentioning

confidence: 99%

Examining the effecting of a life-coaching intervention on breast cancer survivors’ post treatment adjustment: protocol of a parallel group randomized controlled trial

et al. 2021

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Background: The growing number of breast cancer survivors in the country has warranted health interventions targeted to mitigate the bio-psychosocial impact associated with a cancer diagnosis and the toxicities of oncological treatments. Life coaching is a widely adopted intervention strategy to promote an individual’s positive psychological adaptation, self-management, and self-confidence. This present study will investigate whether a life coaching intervention with group and individual coaching components can significantly improve quality of life (QoL) and post traumatic growth among breast cancer survivors.Methods: This study is a randomized controlled trial with three parallel study arms. A prospective sample size of 120 adult breast cancer survivors will be randomized into one of the three study groups either to receive: 1) group coaching following by individual coaching sessions; 2) group coaching sessions only; or 3) routine care. The primary outcome evaluates post traumatic growth and secondary outcomes assess QoL and fear of cancer recurrence (FCR). Data collection will occur at baseline (T0) and at 3 weeks (T1), and at 18 weeks (T2). A follow-up assessment will occur at 30 weeks (T3).Conclusions: This is the first randomized control trial to address post traumatic growth among breast cancer survivors using a life coaching intervention. If positive, the results of this study could inform intervention development that benefits the health of cancer survivors.Trial registration: This trial is ethically approved and registered with clinical trial registry (NCT05020561).

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Computing PROPr Utility Scores for PROMIS® Profile Instruments

Cited by 44 publications

References 18 publications

The Norwegian PROMIS-29: psychometric validation in the general population for Norway

The Norwegian PROMIS-29: psychometric validation in the general population for Norway

A Scoring Algorithm for Deriving Utility Values from the Neuro-QoL for Patients with Multiple Sclerosis

Examining the effecting of a life-coaching intervention on breast cancer survivors’ post treatment adjustment: protocol of a parallel group randomized controlled trial

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