Conceptual and Ethical Considerations for Citizen Science in Biomedicine

Fiske, Amelia; Savio, Lorenzo Del; Prainsack, Barbara; Buyx, Alena

doi:10.1007/978-3-658-16428-7_10

Cited by 33 publications

(39 citation statements)

References 53 publications

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“…In the following sections, we discuss several dimensions of citizen science that provide a window into relevant ethical considerations. These dimensions complement an existing typology of citizen science in health and biomedical sciences (Fiske et al 2019), which focuses on the types of contributions that participants make in the project.…”

Section: Foundations Of Health and Biomedical Citizen Sciencesmentioning

confidence: 99%

“…Commonly, research scientists and institutions take the principles to require informed consent for participants, an honest and transparent assessment of risks and benefits by researchers, and an equitable process to select and enroll participants. In addition to these standard categories, Fiske et al (2019) also raise the issues of social or scientific value and scientific validity as additional concerns, noting that these are typically addressed in top-down researcher-led projects and are more likely to be problematic in community-driven projects. Vayena et al further reinforce the need for a new "social contract" for participant-led research (Vayena et al 2016).…”

Section: Beyond Belmont: Ethical Principles In Citizen Sciencementioning

confidence: 99%

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The Rise of Citizen Science in Health and Biomedical Research

Wiggins

Wilbanks

2019

The American Journal of Bioethics

214

151

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Citizen science models of public participation in scientific research represent a growing area of opportunity for health and biomedical research, as well as new impetus for more collaborative forms of engagement in large-scale research. However, this also surfaces a variety of ethical issues that both fall outside of and build upon the standard human subjects concerns in bioethics. This article provides background on citizen science, examples of current projects in the field, and discussion of established and emerging ethical issues for citizen science in health and biomedical research.

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Section: Foundations Of Health and Biomedical Citizen Sciencesmentioning

confidence: 99%

Section: Beyond Belmont: Ethical Principles In Citizen Sciencementioning

confidence: 99%

The Rise of Citizen Science in Health and Biomedical Research

Wiggins

Wilbanks

2019

The American Journal of Bioethics

214

151

View full text Add to dashboard Cite

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“…Work by Prainsack [68] also considers the inputs of citizen science (CS), from realms ranging from crowdsourcing to social networks, and in consideration of factors such as selfselection or other motivations to participate. Even while these types of citizen science have advanced mostly due to broadbased increases in the availability of technology, it has been suggested that different kinds of citizen science are steeped in traditions going back generations, may operate differently, and manifest themselves differently than others.…”

Section: Some Advantages Of Chsmentioning

confidence: 99%

“…This set of laws limits public data uses and increases personal control of data in highly specific ways, especially the kinds of health data that tend to be shared in on-line archives by citizens. However, in order for all of these types of inputs to be accepted as science, there must be a redefining in society of what it means for data to be considered to be scientific, and, in keeping how this new data generated should be evaluated and assessed as a scientific entity in its own right [67][68].…”

Section: Some Advantages Of Chsmentioning

confidence: 99%

“…For example, opting to not administer vaccines to children based on nonsystematic personal assessments of their risks could endanger public health in ways that are not consistent with the proposed goals of CHS, which strive for increased well-being through scientific emphasis and engagement of individuals in study of their health concerns. Despite any challenges that this emerging field faces, it is also increasingly important that society does not place overly prohibitive regulations on citizen scientists, as in turn this could lead to a stifling of scientific outcomes and data generation as a whole, while also disempowering citizens of their right to participate in the study of their health, if not of their rights in general [68].…”

Section: Some Potential Liabilitiesmentioning

confidence: 99%

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Citizen Health Science

Walls

Coria

2019

IJPDS

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Psychology has a long tradition of interest and experience in single subject studies, providing a forerunner scientific platform for person-level trends as they contribute to population data science. Building on this long-standing tradition, population health scientists are increasingly concerned with opportunities to draw inferences about the single case, or studies utilizing an ‘N-of-1’. At the same time, citizen scientists with health interests have become more equipped to conduct their own types of N-of-1 studies given new tools such as smart phone tracking and many other mobile health or “mHealth” devices. These advances in the single case or N-of-1 tradition sometimes involve self-tracking of health data and/or self-experimentation with one’s own health. As networks (increasingly, virtual ones) of people work to maintain or improve their health, a new platform for scientific inquiry has emerged. This paper considers how the confluence of the single case tradition and self-experimentation are key ingredients in a new data science-rich platform, that of citizen health science. Keywords: Citizen health science, single-case designs, single-subject studies, idiographic research, self-experimentation.

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A novel business strategies framework of do‐it‐yourself practices in logistics to minimise environmental waste and improve performance

Upadhyay

Kumar

Alzaben³

2021

Bus Strat Env

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The transportation sector is consuming a high quantity of oil and producing air pollution, CO2 and allergies, as well as promoting the storage of goods in traditional warehouses. It is not only creating waste and environmental pollution but also increasing temperature, air pollution and low rainfall. The present study intends to uncover and understand the challenges of logistic infrastructure as well as how the adoption of do‐it‐yourself (DIY) business strategies is useful to encourage those practices and technology which are useful in transforming the logistic infrastructure into an eco‐friendly environment. The DIY focuses on purposely utilising digital technologies to increase the engagement and involvement of customers in businesses. Moreover, DIY enables organisations to produce products and services that are highly demanded and have high acceptability. After doing an extensive literature review, the enablers of DIY are identified, and empirical investigation has been conducted. The analysis of the study provides a business strategies framework of DIY which would help the logistics managers in the proper implementation of the DIY practices to minimise negative environmental impact and improve business performance.

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Conceptual and Ethical Considerations for Citizen Science in Biomedicine

Cited by 33 publications

References 53 publications

The Rise of Citizen Science in Health and Biomedical Research

The Rise of Citizen Science in Health and Biomedical Research

Citizen Health Science

A novel business strategies framework of do‐it‐yourself practices in logistics to minimise environmental waste and improve performance

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