Conceptualizing Police Complex Spiral Trauma and its applications in the police field.

Papazoglou, Konstantinos

doi:10.1177/1534765612466151

Cited by 60 publications

(58 citation statements)

References 76 publications

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“…), these families cannot live in the moment and anxiously prepare for symptoms and events that may never appear. This anticipation creates a hypervigilance, evoking raised expectation of threat that can negatively impact decision‐making (Papazoglou ) and has direct implications on their participation and activity limitation in light of functional and environmental barriers.…”

Section: Discussionmentioning

confidence: 99%

‘We've made the best of it. But we do not have a normal life’: families' experiences of tuberous sclerosis complex and seizure management

McDonald

Goodwin

Roberts

et al. 2019

J intellect Disabil Res

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Background Tuberous sclerosis complex (TSC) is a complex multisystem genetic disorder. Approximately 84% of people with TSC have epilepsy. However, there is little literature available regarding families' experiences with TSC and seizure management. Therefore, the aim of the current study was to explore families' positive and negative experiences, and attitudes towards TSC, epilepsy and medical management of seizures. Methods Framework analysis informed an open exploration of families' experiences with TSC, epilepsy and medical management of seizures. Using structured interviews, 11 parents of people with TSC and 2 people with TSC were interviewed, providing the data set for transcription and thematic analysis. Results ‘TSC rules our life’ overarched three subordinate themes: ‘Our normal’, ‘Burnout’ and ‘Seizure management has given us our life back’. Families had to adapt to the normality of needing to constantly supervise their child even as they become an adult. They express a feeling of fear particularly of seizures, and this has impact throughout the family. There are frequent expressions of exhaustion and struggling to fight for access and support. There are some positives and cautious hope with the gaining of control from seizures as being able to predict or plan improves activity and participation. These interviews provided a rich insight into the lives of those with TSC and their families. Conclusion There are exciting developments with respect to scientific understanding of the pathophysiology of TSC, which opens opportunity for new treatments. Holistic family centred health care and practical support (e.g. opportunities for parental respite) is as important as medical intervention. As TSC is such a complex condition, there is a need for specialist clinics and TSC‐specific research.

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Section: Discussionmentioning

confidence: 99%

‘We've made the best of it. But we do not have a normal life’: families' experiences of tuberous sclerosis complex and seizure management

McDonald

Goodwin

Roberts

et al. 2019

J intellect Disabil Res

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“…Similar to first responders who experience anticipation of trauma (Van der Kolk, McFarlane, Weisaeth;1996), these parents are unable to live in the moment and anxiously prepare for symptoms and events that may never appear. This anticipation creates a hypervigilance to potential traumatic events, evoking raised expectation of threat that can negatively impact decision-making (Papazoglou 2012). Fear is constant, and grief about what could have been if it were not for the 22q11DS is not easily subdued.…”

Section: Discussionmentioning

confidence: 99%

Positive and Negative Experiences of Parenting a Pre-school Child with 22q11.2 Deletion Syndrome

Goodwin

McCormack

Campbell

2017

Adv Neurodev Disord

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The presentation of 22q11.2 deletion syndrome (22q11DS) is symptomatically variable, presenting diagnostic challenges for paediatricians and anxious uncertainty in parents. The 'lived' experience of parenting a small child diagnosed with 22q11DS is unknown particularly how parents make sense, both positive and negative, of their role. A phenomenological study sought subjective interpretations from two fathers and four mothers of a young child (8-36 months) diagnosed with 22q11DS. Using interpretative phenomenological analysis, data were collected through semi-structured interviews and thematically analysed. Four themes embodied uncertainty and fear simultaneously experienced by these parents such as anticipatory traumatic distress, systemic stigma, confusion at professional smoke screens and 'not knowing'. This cacophony of distressing emotions plagued their unanswered fear, guilt, loss and grief. In seeking hope, their parenting journey was able to be redefined as one of intrapersonal and interpersonal growth from the adversity of 22q11DS. This study provides a lens into the experiences of parents struggling to make sense of their journey with 22q11DS in the early parenting years. It highlights the complex distress of parenting a small child whose development is fraught with uncertainly and where stigma and suspicion are often experienced when seeking support from social and health systems. However, a metamorphosis of personal strengths also emerged facilitated by hope. Healthcare professionals can best assist through open discussion that acknowledges often limited knowledge, using the guidelines for management of 22q11DS in guiding parents.

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“…Consequently, the provision of appropriate support should be a priority for organizations whose staff and volunteers are exposed to such experiences (IASC, 2007). Studies investigating the mental health of first responders identify common risk and protective factors that determine first responder wellbeing, including individual, interpersonal, and organizational factors (Ager et al, 2012; Hearns & Deeny, 2007; McCall & Salama, 1999; Papazoglou, 2013; Rubin et al, 2016; Thormar et al, 2014). However, conflicting findings remain regarding the specific role played by each of these factors and research often disregards the context under which these factors are assessed.…”

Section: Introductionmentioning

confidence: 99%

Training the next generation of psychotraumatologists: COllaborative Network for Training and EXcellence in psychoTraumatology (CONTEXT)

Vallières

Murphy

Hansen

et al. 2017

European Journal of Psychotraumatology

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In this paper we present a description of the Horizon2020, Marie Skłodowska-Curie Action funded, research and training programme CONTEXT: COllaborative Network for Training and EXcellence in psychoTraumatology. The three objectives of the programme are put forward, each of which refers to a key component of the CONTEXT programme. First, we summarize the 12 individual research projects that will take place across three priority populations: (i) refugees and asylum seekers, (ii) first responders, and (iii) perpetrators and survivors of childhood and gender-based violence. Second, we detail the mentoring and training programme central to CONTEXT. Finally, we describe how the research, together with the training, will contribute towards better policy, guidelines, and practice within the field of psychotraumatology.

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Conceptualizing Police Complex Spiral Trauma and its applications in the police field.

Cited by 60 publications

References 76 publications

‘We've made the best of it. But we do not have a normal life’: families' experiences of tuberous sclerosis complex and seizure management

‘We've made the best of it. But we do not have a normal life’: families' experiences of tuberous sclerosis complex and seizure management

Positive and Negative Experiences of Parenting a Pre-school Child with 22q11.2 Deletion Syndrome

Training the next generation of psychotraumatologists: COllaborative Network for Training and EXcellence in psychoTraumatology (CONTEXT)

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