Concerns of Family Caregivers during COVID-19: The Concerns of Caregivers and the Surprising Silver Linings

Lightfoot, Elizabeth; Moone, Rajean P.; Suleiman, Kamal; Otis, Jacob; Yun, Heejung; Kutzler, Courtney; Turck, Kenneth

doi:10.1080/01634372.2021.1898512

Cited by 41 publications

(49 citation statements)

References 28 publications

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“…Even a health crisis does not evoke major change in this respect. This is in line with other studies reporting similar findings, such as Lightfoot et al and Todorovic et al, who found that family members were reluctant to ask others out of fear of contagion [11,12]. It would be interesting for further research to investigate if this appeal to non-family members differs across neighborhoods dependent on, for example, the socioeconomic position of the inhabitants and spatial characteristics (e.g., dense working-class inner city neighborhoods vs. low-density suburban or rural villa parks).…”

Section: Discussion: From Familiarism To Community?supporting

confidence: 93%

“…In several cases, only one primary caregiver remained, and the others stopped providing care; travel restrictions may have stopped family members from visiting, neighbors may have worried about transmitting the virus, and so on. The former is in line with Lightfoot et al, who found that some of their respondents who previously divided caring responsibilities with others redistributed them at the beginning of the pandemic [12]. Thereby, some informal caregivers likely decreased their care load.…”

Section: Discussion: From Familiarism To Community?supporting

confidence: 84%

“…Quantitative studies from Germany and Austria reported that the psychosocial burden on many informal caregivers intensified during the pandemic [ 9 , 10 ]. Qualitative studies in Serbia and the USA likewise found an impact on the mental health of informal caregivers [ 11 , 12 ]. This paper adds to this qualitative body of knowledge, focusing on the experience and coping mechanisms of informal caregivers in Flanders during the COVID-19 pandemic.…”

Section: Introductionmentioning

confidence: 99%

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“I Could Not Manage This Long-Term, Absolutely Not.” Aging in Place, Informal Care, COVID-19, and the Neighborhood in Flanders (Belgium)

D’herde

Gruijthuijsen

Vanneste

et al. 2021

IJERPH

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Public health and care policies across OECD (Organisation for Economic Co-operation and Development) countries increasingly encourage aging in place, enabled by both formal care networks, and informal (family) care and social solidarity in the neighborhood. However, little is known about how a person’s neighborhood might affect their aging in place. The COVID-19 crisis unintendedly offered a good opportunity to observe the neighborhood’s role in the provision of care. Since formal care services were often limited during the lockdown, informal caregiving may have increased. However, intergenerational contacts in and outside of the household were strongly discouraged by governments worldwide, adding another layer of complexity to caregiving. The aim of this qualitative study was to assess how informal caregivers in Flanders managed to provide care to their care receivers, and what role the neighborhood played in this provision of care. Sixteen qualitative Skype and telephone interviews with informal caregivers were conducted between June and December 2020 to understand their experiences and coping strategies. Overall, most respondents increased their frequency of caregiving during the first lockdown. They took on the extra care needs during the lockdown themselves, and did not actively invoke any kind of neighborhood support. The significance of the neighborhood seemingly remained limited. This was often not because no help was offered, but rather due to a sense of pride or the fear of infection, and an increased effort by family caregivers.

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Section: Discussion: From Familiarism To Community?supporting

confidence: 93%

Section: Discussion: From Familiarism To Community?supporting

confidence: 84%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

“I Could Not Manage This Long-Term, Absolutely Not.” Aging in Place, Informal Care, COVID-19, and the Neighborhood in Flanders (Belgium)

D’herde

Gruijthuijsen

Vanneste

et al. 2021

IJERPH

View full text Add to dashboard Cite

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“…similarly, for the non-FCs depression rate increased from 12.1% in the pre-COVID-19 period to 17.9% at COVID-19 pandemic, however, FCs had upper rates of depression J o u r n a l P r e -p r o o f than non-FCs (Gallagher & Wetherell, 2020). Furthermore, in the United States during COVID-19, FCs mostly suffered from declined mental health, increased stress, and lack of support (Lightfoot et al, 2021;Russell, Hutchison, Tambling, Tomkunas, & Horton, 2020).…”

Section: Discussionmentioning

confidence: 92%

“…Another longitudinal study in the UK with data of 1349 caregivers and 6178 non-caregivers demonstrated that the rate of depression in FCs increased during the COVID-19 pandemic (21.6%) than pre-COVID-19 period (16.7%); similarly, for the non-FCs depression rate increased from 12.1% in the pre-COVID-19 period to 17.9% at COVID-19 pandemic, however, FCs had upper rates of depression than non- FCs( Gallagher & Wetherell, 2020 ). Furthermore, in the United States during COVID-19, FCs mostly suffered from declined mental health, increased stress, and lack of support ( Lightfoot et al, 2021 ; Russell, Hutchison, Tambling, Tomkunas, & Horton, 2020 ).…”

Section: Discussionmentioning

confidence: 99%

Psychiatric distress in family caregivers of patients with COVID-19

Jafari-Oori

Ebadi

Moradian

et al. 2022

Archives of Psychiatric Nursing

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This is a PDF file of an article that has undergone enhancements after acceptance, such as the addition of a cover page and metadata, and formatting for readability, but it is not yet the definitive version of record. This version will undergo additional copyediting, typesetting and review before it is published in its final form, but we are providing this version to give early visibility of the article. Please note that, during the production process, errors may be discovered which could affect the content, and all legal disclaimers that apply to the journal pertain.

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Psychological distress as a predictor of the burden of care in family caregivers of COVID‐19 patients in Iran: A community‐based cross‐sectional study

Mirhosseini

Grimwood

Basirinezhad

et al. 2022

Health Science Reports

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Background and Aims Coronavirus disease 2019 (COVID‐19) has profoundly affected millions worldwide, including family caregivers of COVID‐19 patients, in terms of caregiver burden and psychological distress. The present study aimed to evaluate the care burden and psychological distress among family caregivers, caring for a family member with COVID‐19. Methods The present study was performed with a cross‐sectional design in the Shahroud community, northeast Iran using the convenience sampling method. A total of 297 family caregivers of COVID‐19 patients were assessed using self‐report scales including the depression, anxiety, and stress scale‐21 and the Zarit burden interview to assess the symptoms of psychological distress (depression, anxiety, and stress) and caregiver burden. Data were analyzed using descriptive and inferential statistics (multivariate regression analysis). Results Factors such as self‐reported symptoms of depression (β = 0.920, p < 0.001) and anxiety (β = 0.712, p < 0.02) were significantly predicted care burden. Variables such as lower levels of education of the family member and caregivers and also the relationship between the caregiver and family member were additional predictive factors that aggravated the care burden. Conclusion Caregivers of a family member with COVID‐19 suffer significant levels of care burden that also results from psychological distress such as depression and anxiety. Therefore, appropriate psychoeducational interventions are highly recommended.

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Concerns of Family Caregivers during COVID-19: The Concerns of Caregivers and the Surprising Silver Linings

Cited by 41 publications

References 28 publications

“I Could Not Manage This Long-Term, Absolutely Not.” Aging in Place, Informal Care, COVID-19, and the Neighborhood in Flanders (Belgium)

“I Could Not Manage This Long-Term, Absolutely Not.” Aging in Place, Informal Care, COVID-19, and the Neighborhood in Flanders (Belgium)

Psychiatric distress in family caregivers of patients with COVID-19

Psychological distress as a predictor of the burden of care in family caregivers of COVID‐19 patients in Iran: A community‐based cross‐sectional study

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