Conflicting Conceptions of Autonomy: Experiences of Family Carers with Involuntary Admissions of their Relatives

Hooff, Susanne van den; Goossensen, Anne

doi:10.1080/17496535.2014.937450

Cited by 8 publications

(6 citation statements)

References 27 publications

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“…They wanted to be listened to and wished that others would recognize their situation (van den Hooff & Goossensen, 2015b). One patient (008) If hopes like these were not realized, patients experienced feelings of injustice, powerlessness, humiliation, not being seen or disrespect (van den Hooff & Goossensen, 2014b).…”

Section: 'Doing Good' From Patients' Perspectivementioning

confidence: 99%

“…This could prevent patients from getting the proper care they need, with risk of more suffering and quality of life below the minimum acceptable. All this could lead to immoral dehumanizing situations (van den Hooff & Goossensen, 2015a). Things may go wrong in the 'doing good' network in the period between the onset of Korsakoff's syndrome and actual admission into a long-term care institution.…”

Section: Introductionmentioning

confidence: 99%

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Healthcare professionals under pressure in involuntary admission processes

2015

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The main objective of this paper is to describe how quality of care may be improved during an involuntary admission process of patients suffering from Korsakoff's syndrome. It presents an empirically grounded analysis with different perspectives on 'doing good' during this process. Family carers', healthcare professionals' and legal professionals' ways of understanding and ordering this problematic situation appear very different. This could prevent patients from getting the proper care they need, with risk of more suffering and quality of life below the minimum acceptable. All this possibly lead to immoral dehumanizing situations. Firstly, the background of our empirical study is sketched. Secondly, the different perspectives on 'doing good' are summarized and compared. Thirdly, the tensions arising from the different conceptualizations of autonomy and different types of responsibilities of the actors are clarified. A common 'doing good' during involuntary admission necessitates removal of any tensions within the relational network by weighing and balancing the different perspectives on autonomy and the resulting responsibilities. With this in mind, we propose a renewed time/action table for involuntary admission, which tends to address all patients' needs at the right time. The solution presented might help healthcare professionals, who are squeezed in between patients, family carers, legal professionals and overall rules, to create practices in which patients suffering from Korsakoff's syndrome can maintain their dignity and receive the care they need. Earlier interventions, timely and adequate diagnosis, and diminishment of tensions between the different actors by fine-tuning their paradigmatic frameworks are suggested to be part of a solution.

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Section: 'Doing Good' From Patients' Perspectivementioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Healthcare professionals under pressure in involuntary admission processes

2015

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“…People with KS are not aware of their illness and consequently do not demand care themselves; they are usually brought into contact with professional healthcare through an intervening family carer (van den Hooff & Goossensen, 2015a). Results of a study by (Isenberg‐Grzeda et al, 2012, 507) indicated that ‘most cases of WE are missed by clinicians, likely because patients do not present with the classic signs associated with the condition’.…”

Section: Introductionmentioning

confidence: 99%

Treatment delay within the patient journey of people with Korsakoff's syndrome: A retrospective qualitative multiple‐case study in the Netherlands

Hooff

2022

Health Social Care Comm

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Treatment delay is the best explanation for the development of Korsakoff's syndrome. This study aimed to improve the patient pathway to reduce treatment delay and/or increase proper care on time for people with Korsakoff's syndrome by generating knowledge about the patient journey from the first moment that professional care was deemed necessary until the time of admission into a specialised residential facility for long‐term care and treatment. This retrospective exploratory multiple‐case study used an individual semi‐structured interview approach in 14 cases, with a total of 56 respondents. Process mapping was used to understand the chronological patient journey and the multiple‐case description was analysed by using the same question as used by the individual case studies: ‘What risk factors do the respondents discuss that can explain treatment delay?’. The exploration of the data revealed three reoccurring cross‐case risk factors to explain treatment delay or delay in receiving proper care on time. Our respondents discussed: the lack of knowledge of KS, the fragmentation of care/waiting lists and the lack of specialistic home care. We recommend the development of knowledge programmes about Korsakoff's syndrome for family carers, GP's, healthcare professionals in general hospitals and home care workers, which could play an essential role in reducing treatment delays for patients with KS. There is also a need to find ways to organise coordinated care for patients with KS. Further research into the role of Korsakoff case managers is recommended.

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“…These stakeholders also report often feeling alone when dealing with the crisis (Doherty et al . ; van den Hooff & Goossensen ; Jabbar et al . ; Jankovic et al .…”

Section: Introductionmentioning

confidence: 99%

“…Studies report that relatives experience frustration in getting timely interventions prior to the person being admitted involuntarily to a psychiatric hospital, believing that the delay led to a deterioration in the person's mental health (Hallam ; van den Hooff & Goossensen's ; Jankovic et al . ).…”

Section: Introductionmentioning

confidence: 99%

Qualitative exploration of stakeholders’ perspectives of involuntary admission under the Mental Health Act 2001 in Ireland

Smyth

Casey

Cooney

et al. 2016

Int J Mental Health Nurs

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There is international interest in, and continued concern about, the potential long-term impact of involuntary admission to psychiatric institutions, and the effect this coercive action has on a person's well-being and human rights. Involuntary detention in hospital remains a controversial process that involves stakeholders with competing concerns and who often describe negative experiences of the process, which can have long-lasting effects on the therapeutic relationship with service users. The aim of the present study was to explore the perspectives of key stakeholders involved in the involuntary admission and detention of people under the Mental Health Act 2001 in Ireland. Focus groups were used to collect data. Stakeholders interviewed were service users, relatives, general practitioners, psychiatrists, mental health nurses, solicitors, tribunal members, and police. Data were analysed using a general inductive approach. Three key categories emerged: (i) getting help; (ii) detention under the Act; and (iii) experiences of the tribunal process. This research highlights gaps in information and uncertainty about the involuntary admission process for stakeholders, but particularly for service users who are most affected by inadequate processes and supports. Mental health law has traditionally focussed on narrower areas of detention and treatment, but human rights law requires a greater refocussing on supporting service users to ensure a truly voluntary approach to care. The recent human rights treaty, the UN Convention on the Rights of Persons with Disabilities, is to guarantee a broad range of fundamental rights, such as liberty and integrity, which can be affected by coercive processes of involuntary admission and treatment.

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Conflicting Conceptions of Autonomy: Experiences of Family Carers with Involuntary Admissions of their Relatives

Cited by 8 publications

References 27 publications

Healthcare professionals under pressure in involuntary admission processes

Healthcare professionals under pressure in involuntary admission processes

Treatment delay within the patient journey of people with Korsakoff's syndrome: A retrospective qualitative multiple‐case study in the Netherlands

Qualitative exploration of stakeholders’ perspectives of involuntary admission under the Mental Health Act 2001 in Ireland

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