Confronting Myths: The Native American Experience in an Academic Inpatient Palliative Care Consultation Program

Marr, Lisa; Neale, Devon; Wolfe, Venita K.; Kitzes, Judith

doi:10.1089/jpm.2011.0197

Cited by 29 publications

(25 citation statements)

References 19 publications

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“…There was a strong preference for living with family and within the community at EOL [ 23 , 29 , 31 , 33 , 35 – 37 , 39 , 41 – 43 ]. Family members generally wanted to be with their loved ones and to fulfil their wishes, including finding ways of enabling care and support to die at home.…”

Section: Resultsmentioning

confidence: 99%

Key features of palliative care service delivery to Indigenous peoples in Australia, New Zealand, Canada and the United States: a comprehensive review

et al. 2018

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BackgroundIndigenous peoples in developed countries have reduced life expectancies, particularly from chronic diseases. The lack of access to and take up of palliative care services of Indigenous peoples is an ongoing concern.ObjectivesTo examine and learn from published studies on provision of culturally safe palliative care service delivery to Indigenous people in Australia, New Zealand (NZ), Canada and the United States of America (USA); and to compare Indigenous peoples’ preferences, needs, opportunities and barriers to palliative care.MethodsA comprehensive search of multiple databases was undertaken. Articles were included if they were published in English from 2000 onwards and related to palliative care service delivery for Indigenous populations; papers could use quantitative or qualitative approaches. Common themes were identified using thematic synthesis. Studies were evaluated using Daly’s hierarchy of evidence-for-practice in qualitative research.ResultsOf 522 articles screened, 39 were eligible for inclusion. Despite diversity in Indigenous peoples’ experiences across countries, some commonalities were noted in the preferences for palliative care of Indigenous people: to die close to or at home; involvement of family; and the integration of cultural practices. Barriers identified included inaccessibility, affordability, lack of awareness of services, perceptions of palliative care, and inappropriate services. Identified models attempted to address these gaps by adopting the following strategies: community engagement and ownership; flexibility in approach; continuing education and training; a whole-of-service approach; and local partnerships among multiple agencies. Better engagement with Indigenous clients, an increase in number of palliative care patients, improved outcomes, and understanding about palliative care by patients and their families were identified as positive achievements.ConclusionsThe results provide a comprehensive overview of identified effective practices with regards to palliative care delivered to Indigenous populations to guide future program developments in this field. Further research is required to explore the palliative care needs and experiences of Indigenous people living in urban areas.Electronic supplementary materialThe online version of this article (10.1186/s12904-018-0325-1) contains supplementary material, which is available to authorized users.

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Section: Resultsmentioning

confidence: 99%

Key features of palliative care service delivery to Indigenous peoples in Australia, New Zealand, Canada and the United States: a comprehensive review

et al. 2018

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“…However, once correct information about hospice was shared after the interview, the participants praised its holistic approach that resembled an AI healing approach. 13 …”

Section: Resultsmentioning

confidence: 99%

American Indians’ Experiences of Life-Threatening Illness and End of Life

Colclough

Brown

2014

Journal of Hospice & Palliative Nursing

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“…Furthermore, the Zuni Home Health Care Agency has witnessed a 90% increase in the completion of advanced directives and increased acceptance of EOL care by the NA/AI population (Baldridge, 2011). The University of New Mexico Hospital (UNMH) launched a palliative care consultation service with guidance from NA/AI health care providers regarding appropriate communication techniques with Southwestern tribal communities (Marr et al, 2012). UNMH now reports a higher do not resuscitate status and hospice use, suggesting that difficult EOL discussions can be conducted successfully, if done in a culturally appropriate manner (Marr et al, 2012).…”

Section: Palliative Care Programs In Tribal Communitiesmentioning

confidence: 99%

Insights From Health Care Professionals Regarding Palliative Care Options on South Dakota Reservations

et al. 2014

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Confronting Myths: The Native American Experience in an Academic Inpatient Palliative Care Consultation Program

Cited by 29 publications

References 19 publications

Key features of palliative care service delivery to Indigenous peoples in Australia, New Zealand, Canada and the United States: a comprehensive review

Key features of palliative care service delivery to Indigenous peoples in Australia, New Zealand, Canada and the United States: a comprehensive review

American Indians’ Experiences of Life-Threatening Illness and End of Life

Insights From Health Care Professionals Regarding Palliative Care Options on South Dakota Reservations

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