Confronting the Complexities of “Co-Production” in Participatory Health Research: A Critical, Reflexive Approach to Power Dynamics in a Collaborative Project on Parkinson’s Dance

Phillips, Louise Jane; Frølunde, Lisbeth; Christensen-Strynø, Maria Bee

doi:10.1177/10497323211003863

Cited by 30 publications

(25 citation statements)

References 23 publications

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“…We as initiators shape the conditions for the HPI and even though we ask residents to be part of planning the HPI, the intervention needs to fit into a framework set by research questions and interests. In line with the work of Phillips et al , we argue that it is of high importance in co-designed HPIs to continuously reflect on how we interact with the people we invite to participate, and that the co is produced and negotiated through relationships ( Phillips et al , 2021 ). We have referred to the residents taking part in the HPI as participants rather than, e.g.…”

Section: Discussionsupporting

confidence: 69%

Undertaking graphic facilitation to enable participation in health promotion interventions in disadvantaged neighbourhoods in Denmark

Sandholdt

Srivarathan

Kristiansen

et al. 2022

Health Promotion International

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Summary This study reports on a health promotion intervention (HPI), where graphic facilitation (GF) was used as an innovative method to enable participation in a co-design process in a multi-ethnic and disadvantaged neighbourhood in Denmark. The aim was to enable middle-aged and older residents to participate in the research process of planning and evaluating the HPI, as well as in the activities it constituted. GF was used to document statements and inputs from residents through visual meeting minutes and resident experiences with coronavirus disease 2019 (COVID-19) lockdown were drawn by a graphic facilitator. We use the ladder of participation as a framework to unfold the participation enabled by GF. During the HPI, data were produced through ethnographic field studies in and outside the neighbourhood and in design workshops with residents. The study finds that GF helped in reaching a target group difficult to engage in research and that the engagement of a graphic facilitator shifted the power-balance between the researchers and the residents, redistributing expertise. Carrying out GF in a HPI is a collaborative endeavour and in addition to research competences, it requires the artistic and relational skills of a graphic facilitator. The co-created process of the visual minutes and COVID-19 experiences created a sense of ownership and encouraged the residents to reflect on their interaction with the researchers. The redistribution of expertise was conditioned by the power dynamics present and GF helped unfold these dynamics. This is especially important in an HPI engaging socio-economically vulnerable populations.

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Section: Discussionsupporting

confidence: 69%

Undertaking graphic facilitation to enable participation in health promotion interventions in disadvantaged neighbourhoods in Denmark

Sandholdt

Srivarathan

Kristiansen

et al. 2022

Health Promotion International

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“…This article addresses one of two main research questions in the research project: What possibilities and challenges arise in the tensions in co-production in participatory research? It is one of several publications addressing this question (see Phillips et al, 2021a;2021b). See Christensen-Strynø et al (2021;2022a;2022b) The project consists of three phases.…”

Section: Methodsmentioning

confidence: 99%

“…In contrast, in the democratic, dialogic discourse, co-production is enacted as emergent, relational practices of mutual learning building on personal relationships of mutual caring (Groot et al, 2019). Here, nurturing meaningful relationships of mutual caring in the process itself is given priority in order to honour principles of relational ethics and provide a strong foundation for dialogic learning across difference (Nicholas et al, 2019;Phillips et al, 2021b).…”

Section: A Brief Mapping Of the Contested Discursive Terrainmentioning

confidence: 99%

Arts-based co-production in participatory research: harnessing creativity in the tension between process and product

Phillips

Christensen-Strynø

Frølunde

2022

Evidence &Amp; Policy

Self Cite

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Background: In participatory research approaches, co-researchers and university researchers aim to co-produce and disseminate knowledge across difference in order to contribute to social and practice change as well as research. The approaches often employ arts-based research methods to elicit experiential, embodied, affective, aesthetic ways of knowing. The use of arts-based research in co-production in participatory research is embedded in a contested discursive terrain. Here, it is embroiled in political struggles for legitimacy revolving around what counts as knowledge and whose knowledge counts. Aims and objectives: The aim is to present and illustrate the use of a theoretical framework for analysing the complexities of co-production in the nexus between arts and research – with a focus on the overarching tension between cultivating the collaborative, creative process and producing specific research results. The article maps out the contested discursive terrain of arts-based co-production, and illustrates the use of the theoretical framework in analysis of a participatory research project about dance for people with Parkinson’s disease and their spouses. Methods: The theoretical framework combines Bakhtin’s theory of dialogue, Foucault’s theory of power/knowledge and discourse, Wetherell’s theory of affect and emotion, and work in arts-based research on embodied, affective, aesthetic knowing. Results: The analysis shows how arts-based processes of co-production elicit embodied, emotional, aesthetic knowing and with what consequences for the research-based knowledge and other outputs generated. Discussion and conclusions: Trying to contribute to both research and practice entails navigating in a discursive terrain in which criteria for judging results, outputs and impact are often defined across conflicting discourses. Key messages There is a dearth of detailed analyses of the potentials and challenges arising in arts-based co-production. The article offers a theoretical framework for analysing the tension between cultivating collaborative, creative processes and generating specific results. It explores how arts-based co-production elicits embodied, emotional, aesthetic knowing, and with what consequences for the results.

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“…“Within the health and community sector, co-design has been used to co-develop service experiences with designers and users at the center, thereby differing from CBPR 2 that focuses on participatory research partnerships with a community” ( O’Brien et al, 2021 , p. 3). Patients are invited to share their firsthand experiences, knowledge, opinions, and views about the disease and treatments that become fundamental resources in the design process ( Boyd et al, 2012 ; Grosjean, Bonneville, & Redpath, 2019b ; Phillips et al, 2021 ). Our co-design approach involved patients, care partners, and health care professionals (nurses, physicians, allied health professionals) who shared their experiences, prioritized issues for improvement, and collaboratively “co-designed” an integrated care model.…”

Section: Methodsmentioning

confidence: 99%

Co-designing an Integrated Care Network With People Living With Parkinson’s Disease: From Patients’ Narratives to Trajectory Analysis

et al. 2021

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An integrated care model for people living with Parkinson’s disease (PD) offers the promise of meeting complex care needs in a person-centered way that addresses fragmentation and improves quality of life. The purpose of our research was to co-design a care delivery model that supports both social and medical care from the perspective of patients and care partners. In the first step of our co-design approach, participants from five countries were invited to share their experiences of living with PD during a narrative interview. A qualitative analysis of these narrative interviews based on the Corbin and Strauss model was done to map out patients’ trajectories. Three typical trajectories were identified: (a) the “unpredictable” trajectory, (b) the “situated” trajectory, and (c) the “demanding” trajectory. Based on the analysis of these trajectories, we were able to integrate various patient experiences into the design of an integrated care network.

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Confronting the Complexities of “Co-Production” in Participatory Health Research: A Critical, Reflexive Approach to Power Dynamics in a Collaborative Project on Parkinson’s Dance

Cited by 30 publications

References 23 publications

Undertaking graphic facilitation to enable participation in health promotion interventions in disadvantaged neighbourhoods in Denmark

Undertaking graphic facilitation to enable participation in health promotion interventions in disadvantaged neighbourhoods in Denmark

Arts-based co-production in participatory research: harnessing creativity in the tension between process and product

Co-designing an Integrated Care Network With People Living With Parkinson’s Disease: From Patients’ Narratives to Trajectory Analysis

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