Congenital Zika Virus Syndrome: Knowledge and How to Communicate the Diagnosis

Abstract

Objective: to know how mothers affected by the Zika virus during pregnancy became aware on the diagnosis of Congenital Zika Virus Syndrome in their child and to understand the way in which the communication of the diagnosis was transmitted. Method: a qualitative approach study, with interpretative research, based on the Resilience, Stress, Adjustment and Family Adaptation Model. The research was conducted in a Specialized Rehabilitation Center in a city of Paraíba (Brazil), from June to November 2017, with 40 mothers of children with congenital Zika virus syndrome. The empirical material was produced from a semi-structured script developed by the researcher, related to the different phases and components of the adaptation and resilience process. The findings were submitted to content analysis. Results: two thematic categories were unveiled: The discovery of Congenital Zika Virus Syndrome: period of diagnosis and maternal expectations, and How to communicate the diagnosis: implications for the discovery of Congenital Zika Virus Syndrome. Conclusion: Communication of the diagnosis and professional conduct at the time of information play important roles in re-signifying the meaning of congenital malformation. The interaction established by the health professional and their posture are directly related to the satisfaction about the information received.

Repercussões emocionais em mães de crianças com microcefalia em decorrência do Zika Vírus

“…A investigação de Oliveira et al (2019) que buscou compreender como os pais de crianças com microcefalia receberam o diagnóstico, revelou que, naquele período, quando os profissionais informavam a notícia, diziam apenas que algo parecia estar diferente. A fragilidade neste processo de comunicação pode estar relacionada ao medo, a ansiedade e a incerteza dos profissionais de saúde em relação às reações dos pais e familiares que receberão a notícia Ainda, nesse sentido, outro estudo realizado, com 40 mães de crianças com microcefalia residentes na Paraíba (BR), uma das regiões brasileiras com maior número de casos registrados da doença durante a epidemia, evidenciou que oito mães vivenciaram uma experiência negativa quanto a forma como receberam a informação do diagnóstico do filho (Hamad & Souza, 2020). O que também foi verificado na pesquisa realizada entre 2017 e 2018 no Maranhão (BR), em que houve omissão do diagnóstico para oito mães, seja no pré-natal ou após o nascimento .…”

“…Diante da análise das entrevistas das participantes desta pesquisa, percebemos que, as mães passaram por um período de "luto" com a notícia de que teriam filhos com microcefalia, o que também foi relatado em um estudo nordestino (Hamad & Souza, 2020). No presente trabalho, a M2 recebeu a notícia somente no puerpério imediato, desta forma, seu momento de dor veio seguido por um período de enfrentamento e superação.…”

Abordagem profissional em tempos de pandemia: o que aprendemos com o Zika vírus?

“…But they didn't explain anything to me. (M7) Recent studies 28,29 have revealed obstetric violence during delivery of babies with ZCS, and have had serious impacts on women's mental health.…”

“…In this context, the interprofessional team plays an important role in the availability of clear information and in the recognition of the social support network accessible to the mother and her family, to improve the quality of life and the understanding of these mothers about the ZCS 28 .…”

Micronews: mobile application to support children with microcephaly

“…5 The moment of receiving the diagnosis of microcephaly can be very delicate; both the way the diagnosis is given and the professional's conduct are of great importance for parents to better understand and accept the diagnosis received, which can be facilitated if there is an interaction developed between the health professional and the child's parents. 6 As for their parents, on the other hand, after receiving the diagnosis, they begin their journey in search of causal explanations and therapeutic responses for the diagnosis of SCZV and focus on daily care, consultations and therapeutic follow-up, always in search of well-being. of your child.…”