Connectors, Translators, Facilitators: Research Advocacy Today

Smith, Mary Lou; Chauhan, Cynthia

doi:10.6004/jnccn.2012.0125

J Natl Compr Canc Netw

2012

DOI: 10.6004/jnccn.2012.0125

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Connectors, Translators, Facilitators: Research Advocacy Today

Mary Lou Smith¹,

Cynthia Chauhan²

Abstract: 7. Rajkumar SV, Jacobus S, Callander NS, et al for the Eastern Cooperative Oncology Group. Lenalidomide plus high-dose dexamethasone versus lenalidomide plus low-dose dexamethasoneas initial therapy for newly diagnosed multiple myeloma: an open-label randomised controlled trial.

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Patient informaticians: Turning patient voice into patient action

Petersen

2018

JAMIA Open

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Historically, patients have held a passive role within healthcare, seeking consultation from and following the directions of providers and their care teams. However, changes in culture, education, and technology are making it possible for patients to proactively develop and implement technologies and approaches for health management and quality of life enhancement—to act as patient informaticians. This perspective reviews the societal shifts facilitating the evolution of patient informaticians as discrete actors within healthcare, describes the work of patient informaticians and how this work differs from that of other patient roles (eg, patient advocates), considers examples of patient informaticians in action, and defines patient informaticians’ position relative to the healthcare system.

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Patient informaticians: Turning patient voice into patient action

Petersen

2018

JAMIA Open

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scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.

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Connectors, Translators, Facilitators: Research Advocacy Today

Abstract: 7. Rajkumar SV, Jacobus S, Callander NS, et al for the Eastern Cooperative Oncology Group. Lenalidomide plus high-dose dexamethasone versus lenalidomide plus low-dose dexamethasoneas initial therapy for newly diagnosed multiple myeloma: an open-label randomised controlled trial.

Cited by 1 publication

References 3 publications

Patient informaticians: Turning patient voice into patient action

Patient informaticians: Turning patient voice into patient action

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