2023
DOI: 10.1186/s13023-023-02870-8
|View full text |Cite
|
Sign up to set email alerts
|

Consensus-based guidelines for the provision of palliative and end-of-life care for people living with epidermolysis bullosa

Mark P. Popenhagen,
Paola Genovese,
Mo Blishen
et al.

Abstract: Background Inherited epidermolysis bullosa (EB) is a cluster of rare, genetic skin and mucosal fragility disorders with multi-system and secondary effects, in which blistering and erosions occur in response to friction/mechanical trauma. Considering the incurable and potentially life-limiting nature of the condition and the challenges posed by its symptoms, a palliative approach to EB-related care is necessary. However, knowledge and experience related to the provision of EB palliative care is … Show more

Help me understand this report

Search citation statements

Order By: Relevance

Paper Sections

Select...

Citation Types

0
0
0

Year Published

2024
2024
2024
2024

Publication Types

Select...
1

Relationship

0
1

Authors

Journals

citations
Cited by 1 publication
references
References 77 publications
(189 reference statements)
0
0
0
Order By: Relevance