2004
DOI: 10.1002/casp.778
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Consensus conference on genetic testing: citizenship and technology

Abstract: What is the process to be facilitated when citizens get the opportunity to make their voices heard in the debate on biotechnology? We observed the challenges citizens take up when participating in a 'Consensus Conference' on Genetic Testing and analysed the ambivalences of the learning process. Facilitators, not only should guide the interaction process, but also should support the substance of the process, that is an interaction between personal stories of citizens, the questions that spring from it and the k… Show more

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Cited by 6 publications
(11 citation statements)
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“…The project described is based primarily on the well-established citizens' jury model (Genetics Forum, 1999;WIHSC, 1997;Wakeford, 2002;PEALS, 2003). It has been adapted by adding elements of other participation methods, namely the consensus conference, which is a model used primarily to discuss issues of a technological nature (Einsiedel and Eastlick, 2000;Vandenabeele and Goorden, 2004). The citizens' jury and consensus conference are considered models of "deliberative public engagement" and have a distinctive approach to involving publics in decision making.…”
Section: Methodsmentioning
confidence: 99%
“…The project described is based primarily on the well-established citizens' jury model (Genetics Forum, 1999;WIHSC, 1997;Wakeford, 2002;PEALS, 2003). It has been adapted by adding elements of other participation methods, namely the consensus conference, which is a model used primarily to discuss issues of a technological nature (Einsiedel and Eastlick, 2000;Vandenabeele and Goorden, 2004). The citizens' jury and consensus conference are considered models of "deliberative public engagement" and have a distinctive approach to involving publics in decision making.…”
Section: Methodsmentioning
confidence: 99%
“…So how might multi-stakeholder debate that leads to expanded learning capacity take place? Vandenabeele and Goorden (2004, p. 212) propose that argumentation should be “systematic as well as pluralistic”. The term systematic encompasses “logic or clarity ( […] sound reasoning); scepticism ( […] explicit about ambiguities and uncertainties); flexibility ( […] concrete and abstract thought); transparency ( […] provide for the testing of results)” ( .).…”
Section: Accounting As a Technology Of Humilitymentioning
confidence: 99%
“…The term systematic encompasses “logic or clarity ( […] sound reasoning); scepticism ( […] explicit about ambiguities and uncertainties); flexibility ( […] concrete and abstract thought); transparency ( […] provide for the testing of results)” ( .). However, to focus solely on systematic argumentation misleadingly suggests issues are “resolvable purely by remedying a lack of knowledge” (Vandenabeele and Goorden, 2004, p. 212). For proponents of technologies of humility, the quality of arguments is equally an issue of recognising the plurality of viewpoints.…”
Section: Accounting As a Technology Of Humilitymentioning
confidence: 99%
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“…Several forms of public participation have been used in this arena, e.g. the public debate "Food and Genes" in the Netherlands ( 2001) and consensus conferences in Denmark (1999), France (1998), the UK (1994), and Norway (1996) (Einsiedel et al, 2001;Joss and Durant, 1995;Vandenabeele and Goorden, 2004;Joss, 2002Joss, , 2005. It is not always clear whether dialogues such as these have helped to improve the conditions for participatory knowledge production (Jelsma, 2001).…”
Section: Introductionmentioning
confidence: 99%