Consensus Statement of the International Summit on Intellectual Disability and Dementia Related to Nomenclature

Abstract

The 2016 International Summit on Intellectual Disability and Dementia examined the terminology used to define and report on dementia in publications related to intellectual disability (ID) and found mixed uses of terms associated with dementia or causative diseases. It noted that language related to dementia in the ID field often lacks precision and could lead to a misunderstanding of the condition(s) under discussion. Most articles related to ID and dementia reporting clinical or medical research generally provide a structured definition of dementia or related terms; social care articles tend toward term use without definition. Toward terminology standardization within studies/reports on dementia and ID, the Summit recommended that a consistent approach is taken that ensures (a) growing familiarity with dementia-related diagnostic, condition-specific, and social care terms (as identified in the working group's report),

The Global Deterioration Scale for Down Syndrome Population (GDS-DS): A Rating Scale to Assess the Progression of Alzheimer’s Disease

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