Consent Consensus: Time for a National Site-Specific Consent Form for Radiotherapy?

Kenney-Herbert, Emma; Mylonas, M.; Todd, J.; Tipples, K. H.

doi:10.1016/j.clon.2020.05.020

Cited by 3 publications

(1 citation statement)

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“…Or they can be something more -a genuine exchange of values, interests and knowledge… with all the noise of healthcare reform, the small conversations that matter most have been drowned out. (41) The move by the UK Royal College of Radiologists to introduce standardised radiotherapy consent forms has ensured the content of consent conversations has been given attention, enabling a move towards standardisation of information provided as part of informed consent (42,43). Yet, focussing changes to consent procedures around the development of a medicalised form further highlights the tendency of healthcare providers to talk about matters on a medical and generalised basis.…”

Section: Discussionmentioning

confidence: 99%

A Qualitative Analysis of Patient Narratives Describing Experiences of Radiotherapy for Gynaecological Cancer: Impacts on Social, Personal and Sexual Lives

Ashmore,

Stewart,

Kragh-Furbo

et al. 2023

Preprint

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Background: Studies that have gathered patient experiences of radiotherapy for gynaecological cancers have described anguish related to body image, lack of control, social isolation, lack of social support, mystification and self-criticism. Frequently, outward experiences of side effects are presented as ‘necessary suffering’ hampering attempts to gain understanding of what can be done to offer adequate support. This project aimed to address this gap in understanding through analysis of detailed patient accounts of how radiotherapy impacts on their bodies and their social, personal and sexual lives. Methods: A qualitative study by means of collection of narratives (written, audio or video recorded journal entries) was conducted between September 2020 and August 2021. 34 women submitted narratives relating to their experiences of radiotherapy treatment for cervical, endometrial, vulval or ovarian cancer. Participants had all received radiotherapy for gynaecological cancer up to 25 years previous. Results: The most prominent feature of the narratives related to patients not being listened to or not being heard. Seven principal areas for developing conversations for support were identified. Conversations about: (1) Life, (2) Treatment, (3) Late Effects, (4) Communication, (5) Sexual Selves, (6) Dignity and (7) Trauma. Conclusions: The study offers insights into the experience of undergoing radiotherapy for gynaecological cancer and the support required. Further work needs to be done on improving listening to patients’ experiences and ensuring care is patient centred moving forward.

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Section: Discussionmentioning

confidence: 99%

A Qualitative Analysis of Patient Narratives Describing Experiences of Radiotherapy for Gynaecological Cancer: Impacts on Social, Personal and Sexual Lives

Ashmore,

Stewart,

Kragh-Furbo

et al. 2023

Preprint

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The Patient's perspective: A review of the results from a radiotherapy patient experience survey in the North-West of England

Hutton¹,

Booker

Shuttleworth

et al. 2023

Radiography

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Consent consensus: time for national standard consent forms as an aid to robust consent

Kenney-Herbert

Mylonas²,

Murphy³

et al. 2023

BMJ

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Informed consent in the medical context is defined in the Oxford Dictionary as "permission from a patient for a medical professional to carry out treatment, with complete understanding of the possible risks and consequences." In both medicine and surgery, clinicians take consent regularly for routine and emergency treatments and procedures. Ethically, we must take consent to respect patient autonomy. Legally, performing a procedure without consent is a criminal offence and the physician can be charged with battery.

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Consent Consensus: Time for a National Site-Specific Consent Form for Radiotherapy?

Abstract: Clinical Oncology j o ur n a l h o m e p a ge : w w w . c l i n i c a l on c o l o gy o n l i ne . n e t

Cited by 3 publications

References 0 publications

A Qualitative Analysis of Patient Narratives Describing Experiences of Radiotherapy for Gynaecological Cancer: Impacts on Social, Personal and Sexual Lives

A Qualitative Analysis of Patient Narratives Describing Experiences of Radiotherapy for Gynaecological Cancer: Impacts on Social, Personal and Sexual Lives

The Patient's perspective: A review of the results from a radiotherapy patient experience survey in the North-West of England

Consent consensus: time for national standard consent forms as an aid to robust consent

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