Construct validity of the Actiwatch‐2 for assessing movement in people with profound intellectual and multiple disabilities

Alphen, Helena J M van; Waninge, Aly; Minnaert, Alexander; Post, Wendy J.; Putten, Annette van der

doi:10.1111/jar.12789

Cited by 7 publications

(3 citation statements)

References 40 publications

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“…Based on the content of motor activities, specific outcomes can be logically reasoned and checked based on staff reports and measurable results from instruments. In future studies, instruments such as diaries and accelerometers can be used to evaluate the motor activity of each individual with PIMD before and after implementation [39]. Moreover, instruments related to the goals set can be used to prove the findings based on staff reports.…”

Section: Theoretical Reflection and Implicationsmentioning

confidence: 99%

Development and process evaluation of a motor activity program for people with profound intellectual and multiple disabilities

Alphen

Waninge

Minnaert

et al. 2021

BMC Health Serv Res

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Background The support of people with profound intellectual and multiple disabilities (PIMD) rarely focused on motor activity, which might have negative consequences for the quality of life of these people. Evidence-based motor activity programs that present individually tailored and structural motor activity for these people are, regretfully, lacking. This study developed such a program for these people and evaluated the implementation process. Methods The motor activity program is developed in accordance with the theoretical premises of the educational program and consists of four methodological steps in which the content is individually filled with: motor activity structurally embedded within the activities of daily living, and 3–5 motor activities aimed at a specific goal, which is evaluated. Program delivery consisted of a manual, explanation to the teams, and coaching of one contact person per participant (n = 9). Process evaluation included the delivered fidelity, dose, reach, and adaptations made during the program. In addition, mechanisms of impact and the influence of contextual factors were evaluated. Data collection included researcher logbooks, individual program content, and staff reports. Results The intended fidelity, dose, and reach were not obtained in most participants. Content has been made explicit for seven participants, but only in one participant all critical steps in implementation were performed as intended, though later in time. In three participants, previously offered motor activities were described within the weekly program, but without all activities having a clear link with the goal set. It is showed that the core elements of the program were affected with the conceived implementation plan. The time schedule, critical elements in implementation and program content were influenced by a lack of conditions such as professionals’ motivation and responsibility, methodical working, interdisciplinarity and continuity in staff. Conclusions The results suggest that the implementation might be improved in case more attention is paid to the organizational conditions and implementation structure. The findings led to substantial changes in the implementation strategy. This study underlines the importance of process evaluation prior to testing for effectiveness. Trial registration The (overarching) study was registered at the Netherlands Trial Register (number 6627) on February 10, 2017: https://www.trialregister.nl/trial/6449.

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Section: Theoretical Reflection and Implicationsmentioning

confidence: 99%

Development and process evaluation of a motor activity program for people with profound intellectual and multiple disabilities

Alphen

Waninge

Minnaert

et al. 2021

BMC Health Serv Res

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“…We excluded (i) pregnant patients, (ii) those with cognitive impairment/intellectual disability severe enough to preclude self-report or self-consent, and (iii) those with significant mobility limitations (e.g., hemiparesis, quadriparesis). Subjects were instructed to wear the rugged, widely popular [46][47][48][49][50][51] and FDA-approved Actiwatch-2 device (Phillips Respironics) continuously for at least 10 days on their nondominant wrist ("through sleep and showers"), and asked to complete a printed handout of psychometric surveys (QIDS-SR, ESS, AEP, PHQ-SADS [which includes the PHQ15-somatic, GAD7-anxiety and PHQ9-depression]). A prepaid envelope was provided to return study materials.…”

Section: Participants and Study Designmentioning

confidence: 99%

Actigraphic Correlates of Neuropsychiatric Disability in Adult Patients with Focal Epilepsy

Abboud

Kamen

Bass

et al. 2022

Preprint

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Disability in patients with epilepsy (PWE) is multifactorial: beyond seizure frequency/severity, PWE are prone to a range of neuropsychiatric, cognitive, and somatic comorbidities that significantly impact quality of life. In this study, we explored how variations in epilepsy severity and the burden of self-reported somatic/neuropsychiatric symptoms are associated with disruptions to 24h activity patterns (rest-activity rhythms, RARs), determined through wrist accelerometry/actigraphy. Continuous multiday recordings were obtained from 59 adult patients with focal epilepsy (44% male, ages 18-72), who contemporaneously provided responses to a range of validated psychometric instruments to measure the burden of anxiety, depression, sleepiness, and somatic symptoms. As a comparator, we conducted a similar psychometric-actigraphic correlation in 1761 subjects of Hispanic origin (35% male, ages 18-65) from the Study of Latinos (SOL) Sueño Ancillary Study. RARs were analyzed via a sigmoidally-transformed cosine model (quantifying RAR amplitude, steepness, acrophase and robustness) and non-parametric measures to estimate RAR stability, fragmentation, and sleep. Compared with age- and sex-matched SOL subjects, RARs from PWE subjects featured a significantly diminished amplitude, a wider rest phase and significantly more total daily sleep. Within PWE, similar RAR distortions were associated with seizure intractability and/or anticonvulsant polytherapy. In contrast, high anxiety, depression, and somatic symptom scores were associated with diminished RAR robustness and a delayed acrophase. We applied the complete SOL Sueño database to train logistic regression models to dichotomously classify anxiety, depression and sleepiness symptoms using age, sex, body mass index and a range of non-collinear RAR parameters. When tested on PWE, these models predicted prevalent anxiety and depression symptoms with modest success (accuracy ∼70%) but failed to predict subjective sleepiness. Together, these results demonstrate that RAR features may vary with depression and anxiety symptoms in ambulatory patients with focal epilepsy, potentially offering a set of objective wearable-derived endpoints to adjunct routine clinical care and drug/device treatment trials. With larger actigraphic-psychometric datasets in PWE, we may identify RAR signatures that can more precisely distinguish between variations in seizure risk, the burden of anticonvulsant therapy and prevalent mood/anxiety symptoms.

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“…Secondary outcome measurements of the preliminary results are the level of physical activity and the food intake of people with moderate to profound levels of ID (n ¼ 24). Physical activity will be measured with the Actigraph (Chow et al, 2016;Nordstrm et al, 2013) for walking respondents and the Actiwatch (Van Alphen et al, 2020) for nonwalking respondents. Additionally, DSPs will record the planned movement activities during the measurements of physical activity.…”

Section: Feasibilitymentioning

confidence: 99%

Development of a Dutch Training/Education Program for a Healthy Lifestyle of People With Intellectual Disability

Overwijk

Hilgenkamp

Schans

et al. 2022

Intellectual and Developmental Disabilities

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Individuals with intellectual disability (ID) need support from direct support professionals (DSPs) to engage in a healthy lifestyle. However, literature shows DSPs feel insufficiently equipped to support a healthy lifestyle. Therefore, the aim of this study is to develop a theory-based program for DSPs to support physical activity and healthy nutrition for people with moderate to profound levels of ID, and to design its evaluation. The Intervention Mapping Protocol (IM) was followed to develop a theory-based program for DSPs. The program evaluation consists of process and feasibility evaluations. This study provided a theory-based program consisting of a training and education section with online and face-to-face components to support DSPs in promoting health for people with ID.

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Construct validity of the Actiwatch‐2 for assessing movement in people with profound intellectual and multiple disabilities

Cited by 7 publications

References 40 publications

Development and process evaluation of a motor activity program for people with profound intellectual and multiple disabilities

Development and process evaluation of a motor activity program for people with profound intellectual and multiple disabilities

Actigraphic Correlates of Neuropsychiatric Disability in Adult Patients with Focal Epilepsy

Development of a Dutch Training/Education Program for a Healthy Lifestyle of People With Intellectual Disability

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