Constructing the experience of chronic pain through discourse

Robinson, Katie; Kennedy, Norelee; Harmon, Dominic

doi:10.3109/11038128.2012.720275

Cited by 18 publications

(6 citation statements)

References 51 publications

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“…Life was organized by pain, according to its effects and consequences, and participants lived their lives on the conditions of pain. The participants felt themselves distressed, depressed, and hopeless under the dominance of pain when pain controlled their thoughts, making life itself painful, as was also found in the studies by Afrell et al (2007) and Robinson et al (2013). In the analysis, it seemed that the participants' lives repeated themselves with misery and despair without hope of remission, as a vicious circle without an exit.…”

Section: An Overview Of the Main Findings And Their Conclusion -102mentioning

confidence: 66%

Revising the negative meaning of chronic pain – A phenomenological study

et al. 2014

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A Phenomenological StudyEsitetään Jyväskylän yliopiston liikuntatieteellisen tiedekunnan suostumuksella julkisesti tarkastettavaksi yliopiston Musica-rakennuksen salissa M103 helmikuun 21. päivänä 2015 kello 12.Academic dissertation to be publicly discussed, by permission of the Faculty of Sport and Health Sciences of the University of Jyväskylä, in building Musica, auditorium M103, on February 21, 2015 at 12 o'clock noon. UNIVERSITY OF JYVÄSKYLÄ JYVÄSKYLÄ 2015The Chronic pain is a complex combination of biopsychosocial symptoms affecting each other. In chronic pain, the patient's entire body may become a source of pain, and eventually the pain occupies the patient's mind and entire life. The purpose of this thesis was to search for a more profound understanding of the phenomenon of chronic pain from the perspective of persons with chronic pain and who have been treated for their chronic pain. Thirty-four participants with different types chronic pain were interviewed. The transcribed interviews were analysed using Giorgi's phenomenological method consisting of four phases: (1) reading the transcriptions several times, (2) discriminating meaning units, (3) collecting meaning units into groups, into meaning structures, (4) the synthesis, describing the phenomenon of chronic pain.The results indicate that chronic pain impaired the participants' life by controlling thoughts and making life itself painful. The strongest arguments made by the participants due to chronic pain were distress, loneliness, lost identity, and low quality of life. The participants stated that the key to managing their pain was to reconsider their meanings of pain. In the analysis, four essential themes of chronic pain emerged, namely: "Chronic pain affects the whole person", "Invisibility of chronic pain", "Negative meaning of chronic pain", and "Dominance of chronic pain".Chronic pain is a multidimensional illness which requires a multidisciplinary approach to understand the phenomenon of it. Accordingly, a multidisciplinary rehabilitation programme is required to manage it; unfortunately the opposite is true in clinical practice, adopting only a rhetoric approach. A potential source of psychosocial symptoms may be the personal responses to the experience of chronic pain based on individual meaning. Thus, the focus should be to identify and revise the meanings of pain in order to manage chronic pain and to restore positivity in personal life. The phenomenological framework provides a relevant new insight into the present understanding of chronic pain.

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Section: An Overview Of the Main Findings And Their Conclusion -102mentioning

confidence: 66%

Revising the negative meaning of chronic pain – A phenomenological study

et al. 2014

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“…The results also demonstrate the disruption to independence, self-management and access to healthcare provision during the pandemic among this population. Chronic pain poses a threat to individuals’ perceived independence, and research has highlighted the importance of retaining independence in order to carry out activities of daily living and social interactions ( Robinson et al, 2013 ; Tollefson et al, 2011 ). The ability to self-manage for individuals with chronic pain has been shown to reduce psychological distress and disability ( Nicholas et al, 2012 ).…”

Section: Discussionmentioning

confidence: 99%

Acute impact of a national lockdown during the COVID-19 pandemic on wellbeing outcomes among individuals with chronic pain

et al. 2021

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Changes to wellbeing in a community-based sample of 638 adults with non-malignant chronic pain were assessed during a period of mandated lockdown measures in the UK to control the COVID-19 outbreak. Participants completed an online survey pre-lockdown and were followed up during lockdown. Multivariate analysis demonstrated that decreased ability to self-manage pain, restricted access to healthcare and increased dependence on others were associated with negative wellbeing outcomes related to sleep, anxiety and depression. Essential but non-urgent services are required during periods of lockdown to maintain independence and self-management in order to preserve wellbeing in this population.

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“…Life with pain may become a trap with no exit (Afrell et al, 2007). Chronic pain dominated the participants' lives and became the master, removing everything else and raising itself to be the most important aspect of life; this is in agreement with the study by Robinson et al (2013). For many of the participants, chronic pain was a personal tragedy, leading to economic losses, divorce, additional mental disorders and despair at not receiving relief.…”

Section: Discussionmentioning

confidence: 99%