Construction of nursing-sensitive quality indicators for epilepsy in China: A Delphi consensus study

Ma, Xueping; Li, Yinping; Zhou, Dong; Yang, Rong

doi:10.1016/j.seizure.2023.03.012

Cited by 3 publications

(1 citation statement)

References 35 publications

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“…Epilepsy is one of the most prevalent neurological disorders, that has various physical and psychosocial consequences, which can have adversative impact on the patient's QOL. (45) Inadequate education is one of the most frequent reasons and considered a wide problem for medication non-adherence producing "break through" seizures. (46) Thus, education for the patient with epilepsy is consider the main and primary supports in order to improving their knowledge, practices, coping and enhancing QOL.…”

Section: Discussionmentioning

confidence: 99%

Effect of a Designed Educational Protocol on Quality of Life among Patients with Epilepsy

Mohamed,

Abd-Elghany,

Shady

et al. 2023

Tanta Scientific Nursing Journal

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Background: Epilepsy is a disabling neurological disorder worldwide, affecting quality of life, which imposes a great burden on patients and their caregivers. Improving the quality of life is precisely one of the main objectives of therapeutic education, which are considered the gold standard in the delivery of health care. Aim: To evaluate the effect of a designed educational protocol on quality of life among patients with epilepsy. Design: A quasi-experimental research design using a one-group (pre-posttest) approach was used. Setting: The study was conducted at inpatient neurological department and outpatient clinics affiliated to Mansoura Main University Hospital. Subjects: A purposive sample of 100 patients diagnosed with epilepsy were selected. Tools: Four tools were used for data collection: Tool I: Structured interview questionnaire, Tool II: Knowledge assessment questionnaire, Tool III: Epilepsy self-management scale, and Tool IV: Quality of life in epilepsy inventory-31(QOLIE-31) scale. Results: There was a high statistically significance difference in the total mean score of knowledge, self-management practices, and quality of life pre and post implementing the designed educational protocol among the studied patients (p<.001). There was a significant positive correlation between the total score of knowledge, self-management practices among the studied patients and their quality of life at 3 and 6 months post implementing the designed educational protocol (p<.001& p=.006; p=0.022&p =0.041) respectively. Conclusion: The designed educational protocol proved that, there was an improvement in the knowledge and self-management practices total scores of the studied patients, which consequently had a positive effect on their quality of life. Recommendation: The designed educational protocol should be planned in a continuous manner and applied on regular basis to patients with epilepsy.

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Section: Discussionmentioning

confidence: 99%

Effect of a Designed Educational Protocol on Quality of Life among Patients with Epilepsy

Mohamed,

Abd-Elghany,

Shady

et al. 2023

Tanta Scientific Nursing Journal

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A Comprehensive Unit-Based Safety Program to Enhance the Safe Management of Children in an Epilepsy Monitoring Unit

Wang,

Gan,

Zhou

et al. 2024

Journal of Neuroscience Nursing

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BACKGROUND: The epilepsy monitoring unit (EMU) is an independent unit for video electroencephalogram monitoring of epilepsy patients, with the aim of capturing typical seizure events. Because of the uncontrolled seizure frequency, there may be safety risks for patients, such as falling, trauma, aspiration, status epilepticus, and sudden unexpected death in epilepsy. This study aims to evaluate the application effect of comprehensive safety projects on safety management in a pediatric EMU. METHODS: From June 2022 to May 2024, a preevaluation and postevaluation study was conducted at the EMU of a tertiary grade A children's specialized hospital in China. The intervention group carried out a unit-based comprehensive safety project, including nurse safety culture training, establishing a normalized mechanism for safety improvement, and developing evidence-based safety prevention strategies. RESULTS: The response time of paroxysmal events in the intervention group was shorter than that in the control group (P < .05). The scores of implementation of safety precautions and emergency measures in the intervention group were higher than those in the control group (P < .05). The nursing-related complications in the intervention group were lower than those in the control group (P < .05). CONCLUSION: The comprehensive unit-based safety project management mode can effectively improve the quality of EMU nursing care for children and reduce nursing-related complications.

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Quality of care and associated factors among patients with epilepsy at public hospitals in Arba Minch Town: a facility-based cross-sectional study

Nigatu,

Endashaw,

Sorato

et al. 2024

BMC Neurol

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Background Epilepsy is one of the most common neurologic disorders affecting approximately 51 million people globally and is associated with significant cases of age-standardized DALYs (182.6 per 100 000 people). The quality of health care services offered to people suffering from epilepsy often fails to meet standards in Ethiopia or internationally. This study was designed to assess the quality of care and associated factors among patients with epilepsy at public hospitals in Arba Minch Town, 2024. Method A facility-based cross-sectional study was conducted among 392 adult epileptic patients attending public hospitals in Arba Minch Town. Data entry was performed via Epi-data 3.1 software, and the data were analyzed via SPSS version 24 software. Binary logistic regression analysis was used to evaluate the associations between quality of care and sociodemographic, disease-related, and treatment-related factors. Multivariate logistic regression analysis was applied to identify factors independently associated with quality of care. Results Three hundred ninety-two adults with epilepsy participated in this study, for a response rate of 92.7%. More than one-half of the 237 (60.5%) patients were males, with a median age of 31 ± 12 years (interquartile range). Fewer than one-half (44.1%) of the patients adhered to antiepileptic medicines. The overall proportion of patients receiving quality care was 213 (54.3%). The seizure control rate was also low, at 130 (33.2%). Patients aged 18–29 years [AOR = 30.8 (95% CI, 8.22–35.616, p < 0.000)] and aged 30–39 years [AOR = 18.4 (95% CI, 5.016–67.613, p < 0.000)], and a seizure frequency of less than three [AOR = 2.318 (95% CI, 1.028–5.225, p < 0.043)] were positively associated with quality of care. Whereas, having poor knowledge about epilepsy [AOR = 0.107 (95% CI, 0.0.057–0.202, p < 0.000)] was negatively associated with quality care. Conclusion The quality of care provided to adult epilepsy patients at Arba Minch was low. In addition, patient knowledge, medication adherence, and the seizure control rate were also suboptimal. Therefore, addressing identified factors by involving all relevant stakeholders (health professionals, hospitals, zonal health departments, regional health bureaus, and patients) is critical for improving the quality of care. In addition, researchers willing to study this topic should use strong designs that can determine causal determinants of quality care.

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Construction of nursing-sensitive quality indicators for epilepsy in China: A Delphi consensus study

Cited by 3 publications

References 35 publications

Effect of a Designed Educational Protocol on Quality of Life among Patients with Epilepsy

Effect of a Designed Educational Protocol on Quality of Life among Patients with Epilepsy

A Comprehensive Unit-Based Safety Program to Enhance the Safe Management of Children in an Epilepsy Monitoring Unit

Quality of care and associated factors among patients with epilepsy at public hospitals in Arba Minch Town: a facility-based cross-sectional study

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