Consumer and carer consultants in mental health: The formation of their role identity

Barkway, Patricia; Mosel, Krista A; Simpson, Alan; Oster, Candice; Muir‐Cochrane, Eimear

doi:10.5172/jamh.2011.10.2.157

Cited by 7 publications

(4 citation statements)

References 21 publications

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“…Staff development through improved training and education is recommended to provide a platform to address differences among staff members’ perceptions of consumer leadership, to communicate organizational expectations regarding consumer leadership, and to otherwise facilitate a consistent approach to consumer leadership (Barkway et al . ; Cleary et al . ; Scholz et al ., 2017).…”

Section: Discussionmentioning

confidence: 99%

‘It depends what you mean by leadership’: An analysis of stakeholder perspectives on consumer leadership

Stewart

Scholz

Gordon

et al. 2018

Int J Mental Health Nurs

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Contemporary mental health policies call for increased involvement of consumers in leadership across mental health service design, delivery, and evaluation. However, consumer leadership is not currently well understood within academia or in mental health services themselves. This study investigates how consumer leadership is currently conceptualized by stakeholders at the service delivery level. To this end, semistructured interviews were conducted with 14 mental health organization members identifying as consumer leaders, colleagues supporting consumer leaders, or organization executives. Interview data were analysed using an inductive thematic analysis to develop a broad understanding of participants’ perceptions of consumer leadership. Findings indicate constructions of consumer leadership within mental health organizations can be understood in relation to four themes: consumer leadership roles, requirements, purpose, and process. Inconsistencies across participants’ perceptions of consumer leadership were identified as constituting barriers to its development, highlighting the need to better clarify the nature of consumer leadership.

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Section: Discussionmentioning

confidence: 99%

‘It depends what you mean by leadership’: An analysis of stakeholder perspectives on consumer leadership

Stewart

Scholz

Gordon

et al. 2018

Int J Mental Health Nurs

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“…34 It is of note that most participants in the present study associated lived experience as direct or personal experience as opposed to descriptions within some literature of lived experience as inclusive of the experience of family members or carers. 35,36 The ambiguity in this study reinforces the need for greater consensus in defining and determining relevant lived experience in the context of designated roles. 22 Given the centrality of lived experience to designated roles, confusion related to what experience is relevant may compound issues of role clarity previously identified in the literature.…”

Section: Discussionmentioning

confidence: 85%

How much 'lived experience' is enough? Understanding mental health lived experience work from a management perspective

Roennfeldt

Byrne

2020

Aust. Health Review

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ObjectiveThe aim of this study was to explore management understanding of the lived experience required for designated lived experience or peer roles within mental health. MethodThis qualitative study used semi-structured interviews and one focus group with 29 participants employed in diverse management roles from the public and not-for-profit health and community sector in Queensland, Australia. ResultsThe findings indicate a lack of consensus in defining ‘lived experience’, including what lived experience is required to be eligible for designated roles. Although some participants were clear on what designated roles added to the workforce, uncertainty and attempts to avoid stigma led to some participants questioning the need for designated roles. ConclusionThis study suggests the ongoing expansion of the lived experience workforce is affected by challenges in defining ‘lived experience’ as a requirement for designated roles and fears regarding stigmatised identities. What is known about the topic?In the mental health sector, opportunities and challenges exist in attempting to effectively incorporate the emerging lived experience or peer workforce. Research has highlighted the need for support from senior management, the need for role clarity and the risk of ‘othering’ for the lived experience workforce. What does this paper add?This paper responds to the gap in existing research on the experiences of management in defining and articulating their understanding of lived experience and potential impact of uncertainty and inconsistency in understanding for the lived experience workforce. What are the implications for practitioners?This study identifies the need to strengthen management understanding of lived experience to facilitate ongoing development of lived experience roles.

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“…Boundary issues have also been identified, including whether to relate to service users as friends or clients, and difficulties with disclosing peer status (Barkway et al . ; Faulkner & Basset ; Kemp & Henderson ; Miyamoto & Sono ; Walker & Bryant ).…”

Section: Introductionmentioning

confidence: 99%

“…A significant issue is the experience of role conflict and ambiguity resulting from the status of PSW as both 'service users' and 'staff/providers'. Boundary issues have also been identified, including whether to relate to service users as friends or clients, and difficulties with disclosing peer status (Barkway et al 2012;Faulkner & Basset 2012;Kemp & Henderson 2012;Miyamoto & Sono 2012;Walker & Bryant 2013).…”

Section: Introductionmentioning

confidence: 99%

Liminality in the occupational identity of mental health peer support workers: A qualitative study

Simpson

Oster

Muir‐Cochrane

2017

Int J Mental Health Nurs

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Peer support is increasingly provided as a component of mental health care, where people in recovery from mental health problems use their lived experiences to provide support to those experiencing similar difficulties. In the present study, we explored the evolution of peer support workers’ (PSW) occupational identities. A qualitative study was undertaken alongside a pilot randomized, controlled trial of peer support for service users discharged from a mental hospital in London, UK. Two focus groups were conducted with eight PSW. Semistructured interviews were conducted with 13 service users receiving peer support and on two occasions with a peer support coordinator. The data were analysed using theoretical thematic analysis, focussing on occupational identity formation. We discuss how the occupational identity of PSW evolved through the interplay between their lived experience, their training, and their engagement in the practice environment in such a way as to construct a liminal identity, with positive and negative outcomes. While the difficulties associated with the liminality of PSW could be eased through the formalization and professionalization of the PSW role, there are concerns that this could lead to an undermining of the value of PSW in providing a service by peers for peers that is separate from formal mental health care and relationships. Skilled support is essential in helping PSW negotiate the potential stressors and difficulties of a liminal PSW identity.

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Consumer and carer consultants in mental health: The formation of their role identity

Abstract: This is the accepted version of the paper.This version of the publication may differ from the final published version. Permanent repository link:

Cited by 7 publications

References 21 publications

‘It depends what you mean by leadership’: An analysis of stakeholder perspectives on consumer leadership

‘It depends what you mean by leadership’: An analysis of stakeholder perspectives on consumer leadership

How much 'lived experience' is enough? Understanding mental health lived experience work from a management perspective

Liminality in the occupational identity of mental health peer support workers: A qualitative study

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