Consumer Assessment of Healthcare Providers and Systems Among Racial and Ethnic Minority Patients With Alzheimer Disease and Related Dementias

Abstract

ImportanceConsumer Assessment of Healthcare Providers and Systems (CAHPS) measures have been used widely to measure patient-centered care. Evidence is needed to understand CAHPS measures among racial and ethnic minority patients with Alzheimer disease and related dementias (ADRD).ObjectiveTo examine racial and ethnic disparities in CAHPS among patients with ADRD and to examine the association between social determinants of health and CAHPS disparities.Design, Setting, and ParticipantsThis study focused on patients with ADRD who were enrolled in Medicare Shared Savings Program Accountable Care Organizations (ACOs). The primary data sets were the 2017 Medicare Beneficiary Summary File and the beneficiary-level ACO data. The study population was limited to community-based beneficiaries who had a diagnosis of ADRD and were aged 65 years and older. Cross-sectional analyses and the decomposition approach were implemented. Data were analyzed from November 2021 to July 2022.ExposureEnrollment in a Medicare Shared Savings Program ACO.Main Outcomes and MeasuresSix ACO CAHPS measures were included: getting timely care, appointments, and information; how well providers communicate; patients’ rating of provider; access to specialists; health promotion and education; and shared decision-making. ACO CAHPS were continuous measures with possible ranges from 0 to 100. The summation of these 6 measures as an overall index was also created. In CAHPS measures, the term provider can include hospitals, home health care agencies, and doctors, among others.ResultsThe final sample included 568 368 beneficiaries (347 783 female patients [61.2%]; 38 030 African American patients [6.69%], 6258 Asian patients [1.10%], 18 231 Hispanic patients [3.21%], and 505 849 White patients [89.0%]; mean [SD] age, 82.17 [7.95] years). Significant racial and ethnic disparities in CAHPS scores were observed. After controlling for beneficiary, hospital, and area characteristics, compared with their White counterparts, African American or Black (coefficient = −1.05; 95% CI, −1.15 to −0.95; P < .001), Asian (coefficient = −0.414; 95% CI, −0.623 to −0.205; P < .001), and Hispanic (coefficient = −0.099; 95% CI, −0.229 to 0.032; P = .14) patients with ADRD reported lower total CAHPS scores. Disparities were also observed among individual ACO CAHPS. Decomposition results showed that a proxy for social determinants of health explained 10% to 13% of disparities of ACO CAHPS between African American or Black vs White and Hispanic vs White patients with ADRD. Most of the racial and ethnic disparities, especially those between White and Asian individuals, could not be explained by the models used to analyze data.Conclusions and RelevanceThese results demonstrated significant variations in CAHPS by race and ethnicity among patients with ADRD enrolled in ACOs. Social determinants of health are critical in explaining racial and ethnic disparities. More research is needed to explain disparities in CAHPS.

Differences in Neuropsychiatric Features in Black and White Individuals Diagnosed with Frontotemporal Degeneration

“…10 To date, the enumeration of racial disparities in ADRD care utilization, in general, demonstrate mixed results. [33][34][35] Research on the root causes of racial disparities in context-level determinants of healthcare access and healthcare utilization is critically needed. This is especially so because FTD specialist care is often linked to research opportunities as well as diagnostic recognition in registries such as the NACC, which in turn informs population level understanding of the prevelance and symptomatology of FTD.…”

Racial Differences in Clinical Presentation in Individuals Diagnosed With Frontotemporal Dementia

“…To date, the enumeration of racial disparities in ADRD care utilization, in general, demonstrate mixed results. [29][30][31] Research on the root causes of racial disparities in context-level determinants of health care access and health care utilization is critically needed. This is especially so because FTD specialist care is often linked to research opportunities as well as recognition in registries such as the NACC, which in turn informs population-level understanding of the prevalence and symptomatology of FTD.…”

“…In this context, Babulal et al suggest that Black individuals may choose to delay medical care for the neuropsychiatric symptoms they experience, relying instead on faith-based coping strategies and support from loved ones. To date, the enumeration of racial disparities in ADRD care utilization, in general, demonstrate mixed results . Research on the root causes of racial disparities in context-level determinants of health care access and health care utilization is critically needed.…”