Consumers’ views of breast care services in Ireland

Abstract

One Irish woman in 14 develops breast cancer. There are 1700 new cases each year. These rates compare poorly with EU figures. The government indicated in 1995 that it favoured rapid, comprehensive diagnostic facilities, using the triple assessment model of clinical care, to improve survival rates and to diminish the anxiety women experience about breast cancer. Implementation of this policy was delayed until 1999, when a plan for centres of excellence in breast care was conceived. To compliment this plan, the Department of Health and Children wanted consumer views on existing breast care services. The Women's Health Council was asked by the Department of Health and Children, through the National Cancer Forum, to conduct research on women's views and reactions as consumers of existing services for symptomatic breast disease. The research team was asked to document women's views on: diagnostic services; counselling; additional treatment services such as surgery and radiotherapy. The methodology consisted of four strands: questionnaires and focus groups with consumers of breast care services; postal questionnaires to clinic staff and a literature review. Striking aspects were the long delays women experienced before obtaining a completed diagnosis; often chaotic clinic settings which added greatly to women's shock and anxiety; the lack of support if they received a diagnosis of cancer; and problems relating to limited resources for cancer treatment, including radiotherapy. We explored women's coping mechanisms and their experiences, in the context of the model of quality of care. Finally, we argue that a centre of excellence must develop a multidimensional model of breast disease care that incorporates the full range of psycho-social dimensions for women, if it is to earn its claim to excellence. Correspondence

A comparative analysis of patients’ rights: an international perspective

“…In a recent study in Ireland, women receiving breast care services from one of six clinics in the study indicated that they were given no written information (86%) and three‐quarters were not offered any counselling. Most of their support came from their families 9 …”